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February-September 2008
Sibel: Scleroderma and Raynaud's (Turkey) Changes in my skin were making me look different in the mirror...
Donna: CREST, Raynaud's, possible Fibromyalgia I was diagnosed with CREST (Limited Systemic Scleroderma) by a rheumatologist in 2006. This wasn't really a surprise to me as my mother was diagnosed with diffuse scleroderma in 1998...
Jessica G: Parry Romberg Syndrome By the time I was about five years old, the disease had already disfigured my left side drastically. I have had over fifty operations and surgical procedures for Romberg's....
Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers...
Jaci: MCTD and Autoimmune Hepatitis Out of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors...
Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me...
Amanda: Diffuse Scleroderma Systemic Sclerosis I am thirty-nine years old and was diagnosed with diffuse scleroderma systemic sclerosis in August 2007...
Jennifer M: Mom of Linear Morphea Patient Almost the minute that the doctor walked into the room she knew what it was. The first words out of her mouth were, "That's linear morphea"...
(Update) Sherri M: CREST Syndrome This seems to be progressing as time goes on. But so far I still have no internal involvement and my lungs are doing fine...
Theon: Scleroderma and Pneumothorax This is very hard for me, because I was a very active woman, and then suddenly I am totally and completely disabled...
(Update) Bill: Diffuse Scleroderma When I quit drinking milk, not only did the cough from the pneumonia lessen but my chronic night cough disappeared entirely within a couple of days...
(Update) Rosebud: Diffuse Scleroderma with Raynaud's, Diabetes, Depression and Anxiety Hopefully this update will touch all of you who are in doubt or pain or just on the edge of giving up please always remember there is a light at the end of the tunnel...
Sue D: Diffuse Scleroderma Pain developed in my hands, then I noticed pain in my knees, then my shoulders, down my back, elbows, hips, feet...
Doris: Morphea I was diagnosed with morphea in 2006. It started with itching that would not stop and now after a year and a half later it is still itching and painful...
(Update) Maggie M: Lichen Sclerosus et Atrophicus and Generalized Morphea After having UV light therapy all summer, my skin started to improve slightly in July, and I stopped treatments the last part of October 2007...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to New Patient Stories: January 2008
 
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