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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Stories by Month Posted
January 2008
Joanna: Morphea The first dermatologist said I had more spots than he could find on any one person in his medical books and treated me with a steroid tape that I had to cut into the shape of each spot on a daily basis...
(Update) Kathy Baker: CREST - Systemic Scleroderma Two weeks later I was back in surgery where he amputated the entire index finger...
Mary L: Morphea My mom had the department of child services call on her because someone said I was all "bruised". I was denied enlistment into the United States Army because of this disease...
Anita G: Localized Scleroderma This all started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms...
(Español/Spanish) Anita G: Esclerodermia Localizada También comencé con una manchita que creí insignificante pero con el tiempo se extendió, y se fueron agravando los síntomas...
Terri: Subcutaneous Morphea I was finally diagnosed with deep morphea (or subcutaneous morphea) around mid February 2007, after having a biopsy...
Kym P: Morphea It started almost seven years ago, when I developed an odd looking bruise about the size of a quarter on my shin. The next couple of years it slowly changed...
Robin T: CREST Syndrome My hands were always cold and turning white, purple then red then back to normal, and hurting. Then I developed a sore on my finger tip that wouldn't go away...
Marion: Friend of Systemic Scleroderma Patient Bridget was diagnosed about seven years ago with systemic scleroderma with signs of stiffness in parts of her body and taut skin, mainly on her hands, arms and face...
(Update) Natasha Lubin: Thelma & Louise of the Geriatric Set No, we didn't go over a cliff...
Rubie: Linear Morphea Scleroderma I was referred to a dermatologist and was finally diagnosed with linear morphea at the age of four...
(Update) Donna C: UCTD I started shots of methotrexate and finally got this disease under some control...
(Update) Marian: Watermelon Stomach Since posting my story here, people have been writing to me about watermelon stomach or GAVE...
(Update) Jon T: Eosinophilic Fasciitis The disease has spread throughout my entire body, making getting out of a chair, bed, or doing just about anything, very difficult...
Stacie: Linear Scleroderma I may have been incurable at four years old but it gave me an insight. I appreciate my life so much more than I would have thought. It could be worse...
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
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Go to New Patient Stories: Oct-Dec 2007
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