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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Stories by Month Posted
July 2007
Jason G: Morphea I went to see a rheumatologist, who unfortunately originally told me that morphea has been known to lead to systemic sclerosis. Obviously, he was wrong about this, and later admitted that he spoke too soon...
Stephanie L: Morphea I have also had numbness in my arms, legs and face for the past two months. The doctors do not believe they are related to each other, but it does seem strange that it happened within the same year...
Vivian: Morphea Truth is that for now my health hasn't been too effected, but emotionally it becomes quite hard...
(Español/Spanish) Vivian: Morfea La verdad es que por ahora no me ha afectado en mi salud pero sí emocionalmente pues es difícil...
Myle: Morphea I went to a dermatologist, who at first told me it was some type of fungus and treated me accordingly. But the spot kept on growing and changing in colour and aspect...
(Español/Spanish) Myle: Esclerodermia Morfea Fui con un dermatólogo que en principio me dijo que era un hongo, y me envió un tratamiento para los hongos, pero la mancha seguía creciendo, y cambiando de color y aspecto...
Susie L: Raynaud's (and Scleroderma, too?) I have been told that I "probably" have scleroderma in the early stages by one doctor, that it is unlikely by another, and that I almost certainly do have it by yet another...
Andrea H: Mother of Son with Facial Morphea I am the mother of a six year old boy called Alex who is suffering from facial scleroderma...
Jane D: Linear Morphea (En Coup de Sabre) In August 2006, I found another dent in my head, but this one was deeper and longer and just to the left of the first one...
Joe Joe: Morphea Because such a large area of my body is attacked my doctors believe that my internal organs are also affected...
Alegria: Fibromyalgia (Israel) My hands, legs and shoulders hurt in a very distinctive manner; my fingers are paralyzed with pain, and sometimes I get strong headaches...
(Español/Spanish) Alegria: Fibromialgia Me duelen las manos, las piernas, los hombros, de maner extraña; los dedos se me paralizan del dolor, y en ocasiones me duele la cabeza...
Yuri: CREST Syndrome Now, one month before my nineteenth birthday, I live with CREST Syndrome, rheumatoid arthritis, acid reflux and anemia...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to New Patient Stories: June 2007
 
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