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Patient & Caregiver Stories Main Menu
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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Stories by Month Posted
August 2006
Jackie J: Localized Scleroderma Initially I noticed a dark patch on my left forearm and the front of my left thigh...
Henry: Eosinophilic Fasciitis The disease then grabbed hold and started spreading like wild fire...
(Español/Spanish) Ivone: Esclerodermia Morfea Mi dermatóloga me ha dicho que esto no tiene cura, pero lo mío está estabilizado...
Ivone: Morphea My dermatologist has said that this has no cure, but that I am stable...
(Español/Spanish) Ainhoa: Morfea Esclerodermia La piel no está dañada, y es el músculo el que tiene una depresión cada vez mas pronunciada...
Ainhoa: Morphea I do not have most of the apparent and most common symptoms...
Judith F: CREST Scleroderma Having all this information about my condition is helpful but also a bit daunting...
Danene: Daughter of CREST Scleroderma Patient Especially knowing that your loved one may eventually die from this disease...
Jessica N: Eosinophilic Fasciitis Sometimes I still worry about myself and how my parents are dealing with this...
Betty W: Morphea That was in 1984. Twenty-two years later I am fine except for some ugly spots on these places...
(Update) Melanie V: Scleroderma and CREST About three months ago I made a decision that has affected every aspect of my life: I chose to live...
Gaynor: Morphea and Possible Systemic Sclerosis I was diagnosed in 2003 with morphea. It began as a bruise-like patch on my upper right arm...
Marie F: Scleroderma and Raynaud's I realized that either I get up and walk, move, quit smoking and take care of my body or suffer more...
(Italiano) Circadiano: Sclerodermia Limitata con Modesto Raynaud ad un dito Circa 10 anni fa gli era stato diagnosticato il lupus e. s. diagnosi poi cambiata...
Circadiano: Limited Scleroderma with Raynaud's in One Finger (Italy) About ten years ago she was diagnosed with lupus....
(Italiano) Michela P: Gonfiore Mani e Piedi Non accuso veri e propri dolori ma un forte bruciare sopratutto alle mani, poi la notte mentre dormo mi vengono crampi alle gambe...
Michela P: Swelling in Hands and Feet I do not feel a lot of pain, but I feel like my skin is burning on my hands...
Sandy J: CREST Scleroderma I have had an ileostomy for two years and a feeding peg for just over one year, and would appreciate comments from any person who also has one or both of these problems...
Mary T: CREST Scleroderma If my rheumatologist does not explain my problems to my satisfaction, I will be looking for another doctor...
(Update) Katie P: Surviving Daughter of Father with Scleroderma Our father's battle ended on Sunday May 30, 2004 at 1:00pm. He fought long and hard, but we know that he is in a much better place with no suffering...
(Italiano) Peky: Sjogren e Hushimoto Solo quest'anno, dopo esser stata male, ho rivisto il reumatologo...
Peky: Sjogren's and Hashimoto's Thyroiditis (Italy) This year, after continuing to be sick, I visited the rheumatologist again...
Daisy: Sjogren's, Spondyloarthritis and Fibromyalgia Everything started two years ago, with a pain in my knee for which I got surgery...
(Italiano) Daisy: Sjogren's, Spondiloartrite and Fibromyalgia Poi il dolore alle anche, alla schiena e adesso ho dolori diffusi da pertutto...
B.C.: Surviving Daughter of Pulmonary Fibrosis Patient Immediately after the diagnosis my father started to go downhill...
Elizabeth G: Diffuse Scleroderma I was fired from my job since I cannot work as I used to...
Lyn: Systemic Sclerosis I thought my life was ending and that I would never have that little girl I always wanted. I was wrong. I did make it through somehow...
(Español/Spanish) Elizabeth G: Esclerodermia Difusa Progresiva Me estan saliendo ulceras enlos dedos de la mano y delos pies y se me ponen las manos aveses negro claro y aveses palidas...
(Español/Spanish) B.C.: Hija de Paciente con Fibrosis Pulmonal Inmediatamente despues del diagnostico mi padre empezo a deteriorarse tan rapido...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to New Patient Stories: July 2006
 
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