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April 2006
(Update) Leeben: Limited Scleroderma and CREST Since writing the first time, my disease has become progressively worse. I have increasing kidney damage which limits the kind of medications I can take...
Andi P: UCTD and Possible Scleroderma It is believed that I do have an autoimmune disease they are not sure if it is systemic or not, but I know what I live through on a daily basis...
R.G.: Raynaud's and Chillblains Within just a few minutes of vigorous swimming all of the chillblains had disappeared...
Nancy H: Raynaud's I also have the beginning stages of Crohn's, panniculitis, rheumatoid arthritis, and now Raynaud's...
Kathy M: CREST (Limited Systemic Scleroderma) If you do not have the right doctor, do not get furious, move on...
(Update) Donna C: Undifferentiated Connective Tissue Disase (UCTD) It has been three years since I was diagnosed with UCTD. Last year I finally realized I had a disease. It was so hard to understand that I was really sick because I kept getting symptoms but no real concrete disease...
(Update) Trish: Spouse of a Diffuse Scleroderma Patient My husband had the second surgery on his other hand but it was not as successful as the first...
Merrie: Mother of Daughter with Raynaud's and Fibromyalgia? They said it might mean something or not and referred her to a rheumatologist, but he just blew it off as nothing...
(Update) Jackie S: Overlap Syndrome I had about four months of tolerable pain. Then we moved up to Washington and the story begins...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to New Patient Stories: March 2006
 
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