| Stories by Month Posted |
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2009: Jan-Feb Mar-Apr May Jun Jul Aug-Nov 2008: Jan Feb-Sep Oct Nov-Dec 2007: Jan-May Jun Jul Aug Sep Oct-Dec 2006: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov-Dec 2005: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2004: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2003: Jan -Apr May Jun Jul Aug Sep Oct Nov Dec 2002: Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec 2001, 2000, 1999 |
| January 2006 |
| Mel: Just Diagnosed with Systemic Sclerosis I have recently been diagnosed with systemic sclerosis. This prognosis has absolutely rocked my world... |
| Jose Luis: Morfea (Mexico) I am 17 and going though a difficult time. I need help and I hope someone will hear me and tell me something... |
| (Español/Spanish) Jose Luis: Morfea Tengo 17 años y estoy pasando por una etapa difícil. Necesito ayuda y ojalá me escuchen y me aconsejen... |
| (Russian) Zhanna: дочь больной системной склеродермии Моя мама болеет системной склеродермией лет 18. Сейчас ей 49.За все время болезни она не принимала никакие препараты от данного заболевания, так как ей от них становилось еще хуже... |
| Birilla: CREST and Bilateral Thoracic Outlet Syndrome It all began in 1998, I was 32 years old. Two of my fingers turned white... |
| (Italiano) Birilla: CREST, Sindrome dello Stretto Toracico Bilaterale Tutto è cominciato nel 1998, allora avevo 32 anni. Mi sono comparse due dita bianche... |
| (Update) Steve D: Diffuse Scleroderma In England, we have the National Health Service which allows us to have free treatment in hospitals, so we do not have to worry about paying for that treatment. I am fortunate in that eventually I managed to obtain benefits... |
| Gipi: Raynaud's, Scleroderma (Italy) I'm a 53 year old woman. When I was 21 my illness began, my fingers turned white and I had pain in my bones... |
| (Italiano) Gipi: Raynaud's, Sclerodermia Sono una donna di 53 anni. Quando avevo 21 anni ho avuto l'esordio della mia malattia con pallore alle dita delle mani e dolori alle ossa... |
| Andrea: Girlfriend with Raynaud's Syndrome (Italy) It started a few months ago when my girlfriend started finding strange spots on her hands when it was cold, they would turn purple... |
| (Italiano) Andrea: Fenomeno di Raynaud Acutissimo Da alcuni mesi alla mia ragazza sono comparse sulle mani delle strane macchie che nei periodi di maggior freddo... |
| Nico: Daughter of Patient with Raynaud's Syndrome and Systemic Scleroderma (Italy) My mother was twenty-nine years old (now she is almost sixty one) when she discovered she was affected by Raynaud's Syndrome... |
| (Italiano) Nico: Sindrome di Raynaud e Sclerodermia Mia madre aveva 29 anni (ora ne ha quasi 61) quando scoprì di essere affetta dalla Sindrome di Raynaud... |
| Brenda M: Primary Biliary Cirrhosis (PBC), Fibromyalgia, Pulmonary Fibrosis, and Sjogren's Syndrome In 1965, when I was twenty-six, I went to work for a firm of electro-platers, which was mainly aircraft work... |
| Jerry: Systemic Scleroderma After twenty-five years in the medical field I thought I had seen and heard it all... |
| Hilde: Scleroderma, Lupus, Raynaud's I was diagnosed with lupus, scleroderma and Raynaud's in 1997. I have been through hell and back several times... |
| Myrianisa: Daughter of a Severe Scleroderma Patient My mother was diagnosed with scleroderma six years ago. At the same time, she was also diagnosed with lupus, Raynaud's, MCTD, pulmonary fibrosis and fibromyalgia... |
| Bill: Diffuse Scleroderma I was relieved to have a label for my condition but the doctor was not very reassuring telling me that there was no effective cure or treatment... |
| (Update) Judith R. Thompson Devlin: Diffuse with CREST Last week I saw a nephrologist due to abnormal kidney results. This was disconcerting. My doctor has suggested vascular surgery on them... |
| (Update) Ro M: Scleroderma After baseline testing, it has been discovered that I have esophagus and lung involvement. I will be having a lung biopsy soon before the next course of treatment can be determined... |
| Jessica M.: Mother of Linear Morphea Patient About eight months ago my daughter developed a dark circle on her leg. It looked like a deep bruise, but we let it go. It never went away... |
| Marie B: Progressive Systemic Sclerosis I do not know how much tighter my skin can get. It is crushing the blood vessels and my arms and hands are just about frozen... |