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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Stories by Month Posted
May 2005
Neelam: Systemic Sclerosis (India) In December 1998 my right pointer finger started becoming blue and was hurting a lot...
(Italiano) Lilli: Morphea Dopo qualche tempo notai delle macchie scure sulla parte anteriore di entrambe le gambe...
Kym: Diffuse, CREST Scleroderma, Lupus and Fibromyalgia It all started with Raynaud's in my fingers and toes when I was about nineteen years old, in 1979...
Maxine D: Cousin of Scleroderma Patient Thank you for the space to express my long awaited grief for my cousin Laurita...
(Update) Gazea: Diffuse Scleroderma To make a long story short, all of my skin is now back to normal. I have no pain, no problems with internal organs and no threat for that happening...
Ray N: Watermelon Stomach This past Friday I had two more pints of blood, making nineteen in all. I felt like King Kong from Saturday until Monday afternoon...
(Italiano) Ru: Non so che tipo di sclerodermia ho Penso che sofro di morphea,ma non lo so esanamente...
(Español/Spanish) Isabel: Esclerodermia Limitada Lineal Se me quito un poco, solo dure como 2 meses iendo al doctor, despues deje de ir por un problema que tuve...
(Update) Jeri-Lou: Watermelon Stomach I am writing again because I need to find out if anyone out there with this diagnosis has had surgery to help it? My doctors want to remove half of my stomach...
(Update) Jackie S: Overlap Syndrome I have been having a lot of pain in my left index finger. There is a lot of swelling and it feels very hard and hot. I went to to see a doctor and he said he was pretty sure it was the scleroderma going into my fingers...
Suzy H: Mother of Daughter with Morphea She is twelve now, and although it has not gotten worse, it does not seem to be getting any better...
Susie: CREST Syndrome I have had CREST syndrome for the past eight years. My specialist is Dr. Frederick Wigley, from Johns Hopkins...
Tracie S: CREST with Fibromyalgia I ache from head to toe, am cold all the time, feel like I am in a fog, in general I am just not up to par...
Elva: Mother of Diffuse Scleroderma Patient My son is unable to put on his own socks and shoes. He is very tired, and has tremendous pain...
Debbie G: CREST, Lupus, Interstitial Lung Disease and Pulmonary Hypertension It has been a very long and bumpy road at times but somehow through all the hospital visits and other illnesses I have managed to stay ahead of the game by a step or two...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to June 2005 Personal Stories
 
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