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Patient & Caregiver Stories Main Menu
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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Stories by Month Posted
January 2005
Sherrill: My Experience with Anemia Since I became ill with diffuse scleroderma just over eight years ago, I have found that anemia is a quite complex subject...
D.M. Hoffe: Progressive Systemic Sclerosis (Scleroderma CREST) After an endoscopy it was discovered I had a Watermelon Stomach...
(Italiano) Mony: Sindrome di Sjogren Questa malattia l'ho scoperta circa 10 anni fr, con sitomi di tipo secchezza alla pelle, senza saliva, molti problemi ai denti...
Janice E: CREST/Fibromyalgia At some point I came to the realization that what I was feeling just could not be normal. By this time my hands were swelling...
(Update) Pam: Systemic Sclerosis for 27 Years Last year it was discovered that my right lung had a very rapid progression of pulmonary fibrosis...
(Update) Marian: Watermelon Stomach Since posting my story here, people have been writing to me about watermelon stomach or GAVE. Many people suffered for months before diagnosis...
(Update) Star: Widow of Scleroderma Patient I want to thank all of you for being there for me and my three sons, Charles, Jay and David. I do not think I could have understood what scleroderma really was without you...
(Update) Sheri M: CREST Syndrome I am now forty-three years old and have remained stable since my previous entry. I do have a problem with fibromyalgia and joint pain, especially in the winter months...
Yolima: Diffuse Scleroderma I was misdiagnosed for more than a year with so many diseases and given all types of medication for different problems except for the real disease...
Kevin: Undiagnosed Scleroderma, Lupus, Mixed Connective Tissue Disease, Rheumatoid Arthritis, etc.? All I do is live, sleep and breathe the pain in my hand...
Rachelle: Interstitial Cystitis I am just happy after two and a half years to know that I have a real answer and I can get better...
Lorna: Undiagnosed Scleroderma? When I went to the hospital this young doctor came in and looked at my hands. He said that he thought I had Raynaud's and scleroderma...
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to February 2005 Personal Stories
 
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