Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Month Posted
January 2002
(Italiano) Veronica: La Sindrome di Sjögren Sono una ragazza di 30 anni da tre anni sono affetta da la Sindrome di Sjögren con alta positività per anticorpi anti-SSA...
(Update) Kellie: Thyroid Cancer, Sjögren's, Raynaud's, Underlying Scleroderma After two more years of getting sicker, more weak, increased headaches, complete loss of movement of left arm...
(Update) LJ Fullerton: CREST Scleroderma, Rheumatoid Arthritis, Fibromyalgia, Hashimoto's Thyroiditis, Hematoma and Osteomyelitis I have learned a lot from what happened to me and want the world to learn from my experience before I depart from it...
(Update) Marilyn: Diffuse Scleroderma In September 2001, I had a G-J tube inserted into my stomach...
(Update) Pammy: Systemic Sclerosis for 27 Years She has had a very long week of pre-operations, which has delayed her finger amputations...
B. A. McKinny: Mother of Atrophoderma of Pierini and Pasini Patient My 17 year old daughter was told she had Atrophoderma of Pierini and Pasini (APP) last year...
Barbs: Systemic Sclerosis, CREST, Raynaud's So from the outset, diagnosis took 20 years...
Stefan: Progressive Systemic Sclerosis I have been moving towards this diagnosis beginning in 1987 with a heart failure resulting from cardimyopathy...
(Italiano) Maya: Sindrome di Sjögren Ciao a tutti, sono una ragazza di 27 anni erano sette anni che lamentavo disturbi di vario genere...
Sue "SASA": Morphea Scleroderma I am a thirty-eight-year-old woman living in South Australia, where there is a high incidence of morphea...
(Update) Jo: Mother of a Child with Morphea Scleroderma My daughter had her MRI in October 2001, and the good news is the scleroderma only goes as deep as the fat...
(Update) Pammy: Systemic Sclerosis for 27 Years : Pam is in the hospital and I am looking into her e-mails while she has confirmation on further amputations...
Grace: My Mother's Fight Against Pulmonary Fibrosis I lost my Mum 8 months ago, after a 2 year fight against pulmonary fibrosis...
Keenan: Surviving Son of Fibrosing Alveolitis Patient Dad passed away now almost 4 years ago. It still hurts knowing that I will never be able to ask his advice or listen to his corny jokes again...
Michelle S: Daughter of Systemic Scleroderma Patient I am eighteen years old and my father has systemic scleroderma. He has had this disease for about two years now...
Carla M: Morphea I am a 29 year old mother of three. I have localized Morphea on my lower back...
New Personal Stories
Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button...
(Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo...
(Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años.
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
More New Stories: November 2008
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to February 2002 Stories
Contact ISN. We are a full-service nonprofit scleroderma charitable foundation.
Email: isn@sclero.org or
Post in Sclero Forums!
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S.
1-800-564-7099
Direct Line
1-952-831-3091 (U.S.)

Donate in Memory to the nonprofit International Scleroderma Network at sclero.org. We will make a custom donation form and link for you, and send thank you's and acknowledgement cards. We list donors and events in our website and newsletter.

Please help raise awareness of scleroderma and related illnesses by mentioning and linking to the nonprofit International Scleroderma Network at sclero.org in conversations, speeches, web sites, and publications.

(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2009 International Scleroderma Network
All Rights Reserved