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Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 ;2009
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Stories by Month Posted
1999 Stories by Month Posted
We began tracking stories by date posted in Nov. 1999. Nov Dec
Nov-Dec 1999
Shirley: Progressive Systemic Sclerosis I found out about my Scleroderma on November 1, 1971 at 4pm. Difficulty swallowing was the thing which got my doctor's attention...
Flora - Sclerodermia Sistemica (Italiana) Sono una ragazza di 23 anni e nell' Agosto di quest'anno (1999), dopo un ricovero, presso l' Arcispedale S. Anna di Ferrara, mi hanno diagnosticato una sclerodermia sistemica...
Valeria - Scleroderma Sistemica (Italiana) Mi farebbe anche molto piacere sapere se esiste qualche centro, possibilmente non troppo lontano da Roma...
Naye: Systemic Scleroderma "I was looking in the mirror one morning when I noticed a pink discoloration around my nose. I thought maybe I had scratched myself..."
Krissy: Systemic Scleroderma/Stem Cell Transplant Candidate Our home is like a hospital. We have oxygen tanks for when I need extra help breathing, and a lovely kangaroo pump which is how I get my continuous feeding in me...
Speranza: Figlia di donna colpita da sclerodermia morphea Mia madre ne è affetta da circa 8 anni e fino ad ora è andata peggiorando di mese in mese... ISN Italiana
Amy: Daughter of Systemic Sclerosis Patient (This was written for an informative speech which I delivered in my Communications class.) Imagine for me if you would that in certain areas of your body the skin has begun to thicken and harden...
Sheri: CREST Syndrome In the winter of '97, my fingers and toes started turning white and numb in response to the cold weather...
Patient and Caregiver Stories (Master Listing)
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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