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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Main Story Listings
We welcome patient, caregiver, and survivor stories about scleroderma and/or autoimmune symptoms or diseases, and about those who are undiagnosed.
How to Submit Your Story
Caregivers & Survivors
Difficult Diagnosis
Localized Scleroderma
Systemic Scleroderma
By Symptoms
Similar Skin Diseases
Story Collections
Other Diseases
How to Submit Your Story
How to Submit Your Story
Story Tip Sheet
Story Submission Form
Voices of Scleroderma book series
Caregivers & Survivors
Caregivers Survivors: In Memory Of
Difficult Diagnosis
Difficult Diagnosis and Undiagnosed
Localized Scleroderma
Linear Stories (Includes en coup de sabre and Parry Romberg's) Morphea Stories
Morphea Profunda
Generalized Morphea
Systemic Scleroderma
CREST Stories
Diffuse Scleroderma
Limited Scleroderma
Overlap/MCTD/UCTD
By Symptoms
Aspiration Pneumonia
Barrett's Esophagus
Cardiac Involvement
Difficulty Swallowing (Dysphagia)
Digital (Finger) Ulcers
Dysphonia (Hoarseness)
Gangrene and Amputations
Gastroparesis
Esophageal Stricture
Heartburn/Reflux
Kidney (Renal) Involvement
Neurological/Neuropathy
Neurological/Neuropathy
Nissen Fundoplication Surgery
Osteoporosis
Pleural Effusions
Pregnancy and Scleroderma
Pulmonary Fibrosis
Pulmonary Hypertension
Radiation Treatments
Scleroderma Lung Transplant
Sjögren's Syndrome
Telangiectasia
Also see: Medical (Main Page)
Similar Skin Diseases
Eosinophilic Fasciitis
Lichen Sclerosus
Scleredema adultorum Buschke
Vitiligo
Also see: Skin Diseases (Main Page)
Other Diseases
Antiphospholipid Syndrome
Cancer
Dermatomyositis
Diabetes
Fibromyalgia
Dermatomyositis and Polymyositis
Interstitial Cystitis
Polymyositis
Rheumatoid Arthritis
Systemic Lupus Erythematosus
Thyroid Disease
Other Story Collections
Also see: Autoimmune Diseases
Submit Your Story
Story Submission Form. Stories are now being accepted for posting on this website from patients with scleroderma or related illnesses, including the undiagnosed...plus from their survivors, caregivers or friends.
Your story can help others feel like they're not alone and raise public awareness of illness and its impact on people's lives. Raising public awareness is an essential step in drumming up the public and financial support for finding a cure.
That's why sharing your story is a small way in which you can make a big difference! See How to Submit Your Story for easy story guidelines and a very simple online Story Submission Form.
New Personal Stories
Nina: Fibromyalgia, Raynaud's, Limited Scleroderma/CREST That is when I found ISN! The volume of reliable, informative, trusted information that I found on this site completely overwhelmed me...
Wade: Scleredema vs Scleroderma At first look, my doctor thought I might have scleroderma, but after doing blood work, they said my tests came back negative...
Mendyon: Mother-in-Law of CREST Patient Unfortunately, as I sit here writing this letter my husband and I are faced with some grim circumstances. She is currently losing her battle to CREST syndrome...
Rhonda L: Systemic Scleroderma I have recently been diagnosed with sclerodema, and am still trying to wrap my brain around this...
Joan B: Scleroderma and Raynaud's One day in 2000, I was raking leaves and my hands were really cold. I went into the house in pain and my hands looked like I had frostbite...
(Update) Donna: CREST, Raynaud's, possible Fibromyalgia It is now one and a half weeks since I had the iloprost infusion and I am very happy to say that my pain has gone in my hands...
Alina: Scleroderma CREST Syndrome This site is very helpful as I have been reading articles of people with my condition and can relate to what they are going through...
Star S: Morphea and Systemic Scleroderma I was diagnosed with morphea at age seven. Now at age thirty-three, I have recently developed systemic scleroderma with gastrointestinal manifestations, Sjogren's syndrome, inflammatory arthritis, malabsorption...
Merry: Deep Morphea They diagnosed it as localized morphea however they did not treat or elaborate...
More New Stories: October 2008
Submit Your Patient, Caregiver or Survivor Story in:
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Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
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(Also see: Contact ISN )
International Scleroderma Network (ISN)
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