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| Patient & Caregiver Stories Main Menu |
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| Main Story Listings | | We welcome patient, caregiver, and survivor stories about scleroderma and/or autoimmune symptoms or diseases, and about those who are undiagnosed. | | | | How to Submit Your Story | | | | Caregivers & Survivors | | | | Difficult Diagnosis | | Difficult Diagnosis and Undiagnosed | | Localized Scleroderma | | | | Systemic Scleroderma | | | | By Symptoms | | | | Similar Skin Diseases | | | | Other Diseases | | | | Submit Your Story | | Story Submission Form. Stories are now being accepted for posting on this website from patients with scleroderma or related illnesses, including the undiagnosed...plus from their survivors, caregivers or friends. | | Your story can help others feel like they're not alone and raise public awareness of illness and its impact on people's lives. Raising public awareness is an essential step in drumming up the public and financial support for finding a cure. | | That's why sharing your story is a small way in which you can make a big difference! See How to Submit Your Story for easy story guidelines and a very simple online Story Submission Form. | | |
| Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button... |
| (Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo... |
| (Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años. |
| Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite... |
| (Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito... |
| Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for... |
| (Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on... |
| More New Stories: November 2008 |
Submit Your Patient, Caregiver or Survivor Story in:
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Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
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