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Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
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Main Story Listings
We welcome patient, caregiver, and survivor stories about scleroderma and/or autoimmune symptoms or diseases, and about those who are undiagnosed.
*How to Submit Your Story*
Caregivers & Survivors
Difficult Diagnosis
Localized Scleroderma
Systemic Scleroderma
By Symptoms
Similar Skin Diseases
Stories on Other Web Sites
Other Diseases
How to Submit Your Story
How to Submit Your Story
Story Tip Sheet
Story Submission Form
Voices of Scleroderma book series
Caregivers & Survivors
Caregivers Survivors: In Memory Of
Difficult Diagnosis
Difficult Diagnosis and Undiagnosed
Localized Scleroderma
Linear Stories (Includes en coup de sabre and Parry Romberg's) Morphea Stories
Morphea Profunda
Generalized Morphea
Systemic Scleroderma
CREST Stories
Diffuse Scleroderma
Limited Scleroderma
Overlap/MCTD/UCTD
By Symptoms
Aspiration Pneumonia
Barrett's Esophagus
Cardiac Involvement
Difficulty Swallowing (Dysphagia)
Digital (Finger) Ulcers
Dysphonia (Hoarseness)
Gangrene and Amputations
Gastroparesis
Esophageal Stricture
Heartburn/Reflux
Kidney (Renal) Involvement
Neurological/Neuropathy
Neurological/Neuropathy
Nissen Fundoplication Surgery
Osteoporosis
Pleural Effusions
Pregnancy and Scleroderma
Pulmonary Fibrosis
Pulmonary Hypertension
Radiation Treatments
Scleroderma Lung Transplant
Sjögren's Syndrome
Telangiectasia
Also see: Medical (Main Page)
Similar Skin Diseases
Eosinophilic Fasciitis
Lichen Sclerosus
Scleredema adultorum Buschke
Vitiligo
Also see: Skin Diseases (Main Page)
Other Diseases
Antiphospholipid Syndrome
Cancer
Dermatomyositis
Diabetes
Fibromyalgia
Dermatomyositis and Polymyositis
Interstitial Cystitis
Polymyositis
Rheumatoid Arthritis
Systemic Lupus Erythematosus
Thyroid Disease
Stories on Other Web Sites
Also see: Autoimmune Diseases
Submit Your Story
Story Submission Form. Stories are now being accepted for posting on this website from patients with scleroderma or related illnesses, including the undiagnosed...plus from their survivors, caregivers or friends.
Your story can help others feel like they're not alone and raise public awareness of illness and its impact on people's lives. Raising public awareness is an essential step in drumming up the public and financial support for finding a cure.
That's why sharing your story is a small way in which you can make a big difference! See How to Submit Your Story for easy story guidelines and a very simple online Story Submission Form.
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
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SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
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International Scleroderma Network (ISN)
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United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
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We are also known as the Scleroderma from A to Z web site.
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