TV Video: Hannah - Health Insurance Story. View her fight for insurance coverage for the SCOT Trial, with David Becker, ISN Assistant News Guide.
Tackle Scleroderma! Join/Shop/Donate
SCLERO.ORG by the nonprofit International Scleroderma Network (ISN) is a full-service nonprofit charitable foundation providing stellar research, support, education and awareness
Search sclero.org:

The World's First Virtual Pity Party
Here's an array of great party items for use whenever you or a friend feel like properly groveling around in depression, anxiety, and general overall misery. Now please get real sad and cry, weep, moan and groan right along with us. Your tears are ALWAYS welcome here!
Welcome
Diagnosis Roulette Wheel
Judy T's Pity Party Story
Medical Misadventures
Meditation for Depression
Pity Party Mugs
Pity Party Music
Pity Party Slogans
Pity Party Supplies
Undiagnosable Blues
Virtual Dartboard
Music: The Undiagnosable Blues by Sylvia
Feeling sorry for me being officially undiagnosed (with it changing at nearly every doctor's visit), Sylvia wrote this for me, to be sung to the tune of "It's My Party."
Doctors do not know what disease that I have,
They can't seem to find out;
They just keep giving me tests,
I have got a reason to pout.

chorus: It's my party and I'll cry if I want to, cry if Iwant to, cry if I want to, you would cry too if this happened to you!

We are all on different medications,
With side effects we found out;
Some of us never do sleep,
And that's a reason to shout.

chorus: It's my party and I'll cry if I want to, cry if I want to, cry if I want to, you would cry too if this happened to you!

Also See
In Loving Memory of Sylvia. ISN.
 
Go to Virtual Pity Party: Dartboard
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
© Copyright 1998-2009 International Scleroderma Network
All Rights Reserved