TV Video: Hannah - Health Insurance Story. View her fight for insurance coverage for the SCOT Trial, with David Becker, ISN Assistant News Guide.
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SCLERO.ORG by the nonprofit International Scleroderma Network (ISN) is a full-service nonprofit charitable foundation providing stellar research, support, education and awareness
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International Scleroderma Network (ISN)
Stellar research, support, education and awareness for scleroderma and related illnesses.
Caregivers/Caregiver Stories
Disability Resources
Emotional Adjustment: Coping, Depression, Pain, Relationships, Sex

Email Support
Gift Shop
Scleroderma Email Lists
Humor: Joke Lists and Games
Humor: World's First Virtual Pity Party!
Message Boards
Online Support
* Personal Stories (over 800!) *
Personal Stories on Other Web Sites
Phone Support
Photos of Scleroderma Symptoms
* Sclero Forums, Chats, Blogs and Videos: Free Online Support Group! *
Scleroderma Sites to Surf!
* Support Groups (U.S. and Worldwide) *
Survivor Stories: In Loving Memory
Scleroderma Webmaster's Assn
INFORMATION SUPPORT STORIES
ISN Memberships
Join the nonprofit ISN! Members receive our ISN Insider Newsletter with the latest medical and support information. Great for scleroderma patients and those who care for them. Join or Donate Now.
Coping
Coping, Depression, Pain, Sex.
Coping, depression, emotional adjustment, quality of life issues, pain, sex, and suicide.
Disability Resources
Our Disability Resources includes listings of free medication programs.
Volunteers
ISN Volunteers include a dynamic team of dozens of patients, caregivers, doctors, scientists, translators, artists, designers and writers. Read our profiles or submit your volunteer application!
For Support Groups
We network and empower other scleroderma groups in all countries with:
Free web pages
Free website listings
Free promotion of your special events
ISN Affiliates
Our first ISN affiliate community-based support group is the Asociación Colombiana de Esclerodermia led by Francisco Castellanos.
New ISN Affiliates
Do you want to start a new support group, or affiliate your existing group or organization with the ISN? It's easy! Just contact Shelley Ensz.
For Webmasters
Our Scleroderma Webmaster's Association offers Scleroderma Sites to Surf! It's free to join the SWA so enter your site or support group today.
English Online Support
We invite you to join our free and fabulous:
Sclero Forums
Español/Spanish Online Support
Sclero Forums Español Colombia. Esperamos desde este espacio proporcionar a sus participantes information, esperanza y ayudo. Francisco Castellanos.
Phone Support
Our toll-free number for people in the United States is 1-800-564-7099. You may also join, donate or purchase our books by phone.
Our direct number (at your expense) for people outside the U.S. is 952-583-5735 (U.S.). Be sure to let us know a good time to return your call.
Email Support
Email the ISN using our simple Site Inquiry Form or just email us with your question, concern or comments.
Gift Shop
Raise awareness of scleroderma and support our nonprofit agency while enjoying wonderful items from our ISN Gift Shop! A portion of each item goes to the nonprofit International Scleroderma Network (ISN) to help provide our full range of services, all throughout the world.
Humor
Humor: Joke Lists and Games
Everyone is invited to attend our
Virtual Pity Party!
Poems for Caregivers
Poetry for Caregivers: Husband, Wife,  Son, Daughter, Family, Parents by Sylvia Finegan.
ISN Book Series
ISN's Voices of Scleroderma book series features world experts plus inspiring personal stories!
Personal Stories
We have the world's largest collection of patient, caregiver and survivor stories for scleroderma and related illnesses! Browse by topic or by alphabetical listing.
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Caregivers/Caregiver Stories
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
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