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| International Scleroderma Network (ISN) |
| Stellar research, support, education and awareness for scleroderma and related illnesses. |
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| INFORMATION |
SUPPORT |
STORIES |
| ISN Memberships |
| Join the nonprofit ISN! Members receive our ISN Insider Newsletter with the latest medical and support information. Great for scleroderma patients and those who care for them. Join or Donate Now. |
| Coping |
Coping, Depression, Pain, Sex.
Coping, depression, emotional adjustment, quality of life issues, pain, sex, and suicide. |
| Disability Resources |
| Our Disability Resources includes listings of free medication programs. |
| Volunteers |
| ISN Volunteers include a dynamic team of dozens of patients, caregivers, doctors, scientists, translators, artists, designers and writers. Read our profiles or submit your volunteer application! |
| For Support Groups |
| We network and empower other scleroderma groups in all countries with: |
| • Free web pages |
| • Free website listings |
| • Free promotion of your special events |
| ISN Affiliates |
| Our first ISN affiliate community-based support group is the Asociación Colombiana de Esclerodermia led by Francisco Castellanos. |
| New ISN Affiliates |
| Do you want to start a new support group, or affiliate your existing group or organization with the ISN? It's easy! Just contact Shelley Ensz. |
| For Webmasters |
| Our Scleroderma Webmaster's Association offers Scleroderma Sites to Surf! It's free to join the SWA so enter your site or support group today. |
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| ISN Book Series |
| ISN's Voices of Scleroderma book series features world experts plus inspiring personal stories! |
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| Personal Stories |
| We have the world's largest collection of patient, caregiver and survivor stories for scleroderma and related illnesses! Browse by topic or by alphabetical listing. |
| Nikhath: Linear Scleroderma (India) I hide my hands from everyone and because of this behavior of mine, people assume that I am shy... |
| Dorne: Overlap and Possibly CREST Since 2002 I have been diagnosed with Lupus, Sjogren's Disease, B12 deficiency, mild pulmonary hypertension, Celiac disease, Type II diabetes and now the specialists are seriously talking about CREST... |
| (Update) Dorothy: CREST Scleroderma for 39 Years I've learned many things over the years and the most important is having a positive attitude no matter what incurable affliction one has... |
| Yvette: Undifferentiated Connective Tissue Disease (UCTD) and Thyroid Cancer For now, I have accepted that the diagnosis of my core problem is not important. The way I choose to deal with it is... |
| Kathy: Generalized Morphea Scleroderma I finally
pressured another doctor for a referral to a dermatologist and had a
biopsy done and was finally told morphea scleroderma... |
| Karligash: Systemic Scleroderma (Republic of Kazakhstan) Young, beautiful, full of hope and expectations for my life, for happiness and love — that was me, 19 years of age... |
| (Russian) Карлыгаш: системная склеродермия (Республика Казахстан) Молодая,красивая,полная ожидания от жизни счастья,любви такая я была в 19 лет... |
| More New Stories: June 2009 |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
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| Keep on Surfing! |
| Go to Caregivers/Caregiver
Stories |
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