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| International Scleroderma Network (ISN) |
| Stellar research, support, education and awareness for scleroderma and related illnesses. |
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| INFORMATION |
SUPPORT |
STORIES |
| ISN Memberships |
| Join the nonprofit ISN! Members receive our ISN Insider Newsletter with the latest medical and support information. Great for scleroderma patients and those who care for them. Join or Donate Now. |
| Coping |
Coping, Depression, Pain, Sex.
Coping, depression, emotional adjustment, quality of life issues, pain, sex, and suicide. |
| Disability Resources |
| Our Disability Resources includes listings of free medication programs. |
| Volunteers |
| ISN Volunteers include a dynamic team of dozens of patients, caregivers, doctors, scientists, translators, artists, designers and writers. Read our profiles or submit your volunteer application! |
| For Support Groups |
| We network and empower other scleroderma groups in all countries with: |
| • Free web pages |
| • Free website listings |
| • Free promotion of your special events |
| ISN Affiliates |
| Our first ISN affiliate community-based support group is the Asociación Colombiana de Esclerodermia led by Francisco Castellanos. |
| New ISN Affiliates |
| Do you want to start a new support group, or affiliate your existing group or organization with the ISN? It's easy! Just contact Shelley Ensz. |
| For Webmasters |
| Our Scleroderma Webmaster's Association offers Scleroderma Sites to Surf! It's free to join the SWA so enter your site or support group today. |
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| English Online Support |
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| MSN grupo de esclerodermia. Esperamos desde este espacio proporcionar a sus participantes information, esperanza y ayudo. Francisco Castellanos. | |
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| ISN Book Series |
| ISN's Voices of Scleroderma book series features world experts plus inspiring personal stories! |
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| Personal Stories |
| We have the world's largest collection of patient, caregiver and survivor stories for scleroderma and related illnesses! Browse by topic or by alphabetical listing. |
| Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button... |
| (Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo... |
| (Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años. |
| Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite... |
| (Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito... |
| Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for... |
| (Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on... |
| More New Stories: November 2008 |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
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