International Scleroderma Network (ISN)
Stellar research, support, education and awareness for scleroderma and related illnesses.
Caregivers/Caregiver Stories
Disability Resources
Emotional Adjustment: Coping, Depression, Pain, Sex
Email Support
Gift Shop
Scleroderma Email Lists
Humor: Joke Lists and Games
Humor: World's First Virtual Pity Party!
Message Boards
Online Support
Personal Stories!
Phone Support
Photos of Scleroderma Symptoms
Sclero Forums
Scleroderma Sites to Surf!
Support Groups (Worldwide)
Survivor Stories: In Loving Memory
Scleroderma Webmaster's Assn
INFORMATION SUPPORT STORIES
ISN Memberships
Join the nonprofit ISN! Members receive our ISN Insider Newsletter with the latest medical and support information. Great for scleroderma patients and those who care for them. Join or Donate Now.
Coping
Coping, Depression, Pain, Sex.
Coping, depression, emotional adjustment, quality of life issues, pain, sex, and suicide.
Disability Resources
Our Disability Resources includes listings of free medication programs.
Volunteers
ISN Volunteers include a dynamic team of dozens of patients, caregivers, doctors, scientists, translators, artists, designers and writers. Read our profiles or submit your volunteer application!
For Support Groups
We network and empower other scleroderma groups in all countries with:
Free web pages
Free website listings
Free promotion of your special events
ISN Affiliates
Our first ISN affiliate community-based support group is the Asociación Colombiana de Esclerodermia led by Francisco Castellanos.
New ISN Affiliates
Do you want to start a new support group, or affiliate your existing group or organization with the ISN? It's easy! Just contact Shelley Ensz.
For Webmasters
Our Scleroderma Webmaster's Association offers Scleroderma Sites to Surf! It's free to join the SWA so enter your site or support group today.
English Online Support
We invite you to join our free and fabulous:
Sclero Forums
SCLERO FORUMS MESSAGES
How to Register, Login and Post
Español/Spanish Online Support
Sclero Forums Español Colombia. Esperamos desde este espacio proporcionar a sus participantes information, esperanza y ayudo. Francisco Castellanos.
Phone Support
Our toll-free number for people in the United States is 1-800-564-7099. You may also join, donate or purchase our books by phone.
Our direct number (at your expense) for people outside the U.S. is 952-831-3091 (U.S.). Be sure to let us know a good time to return your call.
Email Support
Email the ISN using our simple Site Inquiry Form or just email us with your question, concern or comments.
Gift Shop
Raise awareness of scleroderma and support our nonprofit agency while enjoying wonderful items from our ISN Gift Shop! A portion of each item goes to the nonprofit International Scleroderma Network (ISN) to help provide our full range of services, all throughout the world.
Humor
Humor: Joke Lists and Games
Everyone is invited to attend our
Virtual Pity Party!
Poems for Caregivers
Poetry for Caregivers: Husband, Wife,  Son, Daughter, Family, Parents by Sylvia Finegan.
ISN Book Series
ISN's Voices of Scleroderma book series features world experts plus inspiring personal stories!
Personal Stories
We have the world's largest collection of patient, caregiver and survivor stories for scleroderma and related illnesses! Browse by topic or by alphabetical listing.
New Personal Stories
Nikhath: Linear Scleroderma (India) I hide my hands from everyone and because of this behavior of mine, people assume that I am shy...
Dorne: Overlap and Possibly CREST Since 2002 I have been diagnosed with Lupus, Sjogren's Disease, B12 deficiency, mild pulmonary hypertension, Celiac disease, Type II diabetes and now the specialists are seriously talking about CREST...
(Update) Dorothy: CREST Scleroderma for 39 Years I've learned many things over the years and the most important is having a positive attitude no matter what incurable affliction one has...
Yvette: Undifferentiated Connective Tissue Disease (UCTD) and Thyroid Cancer For now, I have accepted that the diagnosis of my core problem is not important. The way I choose to deal with it is...
Kathy: Generalized Morphea Scleroderma I finally pressured another doctor for a referral to a dermatologist and had a biopsy done and was finally told morphea scleroderma...
Karligash: Systemic Scleroderma (Republic of Kazakhstan) Young, beautiful, full of hope and expectations for my life, for happiness and love — that was me, 19 years of age...
(Russian) Карлыгаш: системная склеродермия (Республика Казахстан) Молодая,красивая,полная ожидания от жизни счастья,любви такая я была в 19 лет...
More New Stories: June 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Caregivers/Caregiver Stories
Contact ISN. We are a full-service nonprofit scleroderma charitable foundation.

Email Inquiry Form (English)
Email Inquiry Form (Spanish)
Email Inquiry Form (Italian)
Email: isn@sclero.org
Or, post a message in our terrific
Sclero Forums Online Support Group!

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S.
1-800-564-7099
Direct Line
1-952-831-3091 (U.S.)

Donate in Memory to the nonprofit International Scleroderma Network at sclero.org. We will make a custom donation form and link for you, and send thank you's and acknowledgement cards. We list donors and events in our website and newsletter.

Please help raise awareness of scleroderma and related illnesses by mentioning and linking to the nonprofit International Scleroderma Network at sclero.org in conversations, speeches, web sites, and publications.

(We are also known as the Scleroderma from A to Z web site.)
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All Rights Reserved