By the nonprofit International Scleroderma Network, SCLERO.ORG. Co-editors Judith Thompson Devlin and Shelley L. Ensz.
This book features over 100 patient, caregiver and survivor stories from this sclero.org website, from 16 countries, and in 5 languages!
Professional contributors include Dr. Joseph Korn, Gary Barg, Dr. Magdalena Dziadzio, Dr. Asim Iqbal Qureshi, and Dr. Thomas Lehman.
Story topics include Caregivers and Survivors, Difficult Diagnosis, Diffuse Scleroderma, CREST, Limited Scleroderma, Linear/Localized, Morphea, Overlap and MCTD, Lupus, UCTD, Pulmonary Fibrosis, Fibromyalgia, Polymyositis, and Juvenile Scleroderma (just to name a few!)
Volume 1 offers 104 stories altogether; in English (91 stories), Greek (1), Italian (10), Polish (1) and Romanian (1) along with an English translation for each story.
Story authors are from 16 countries: Australia, Canada, Greece, England, India, Italy, Iran, Jordan, New Zealand, Norway, Pakistan, Peru, Poland, Puerto Rico, Romania, and 32 states in the United States.
Dr. Joseph Korn, who passed away shortly after this book was published, was Chief of the Rheumatology Section of the Boston University Arthritis Center. He was a highly renowned scleroderma expert with many research studies and professional publications to his credit. His lead-in article for Volume 1, entitled "Introduction to Scleroderma", clearly explains this complex disease.
Judith Rose Thompson, co-editor, is ISN Archive Committee Chair. She is the author of three fiction novels.
Shelley Ensz, co-editor, is Founder and President of the International Scleroderma Network, the SCLERO.ORG website, and the Scleroderma Webmaster's Association.
Now on sale! Not taxable. Price includes shipping. We use Google Checkout. (You may email PayPal or Fandango orders and payment to webmaster@sclero.org.)
- List Price:
- $19.99
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- $14.99(You save $5.00)