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| September 2009 ISN Donation and Website News |
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| Thanks to Anonymous Donor: Silver Sponsor of Earl Manns Marathons! |
| The nonprofit International Scleroderma Network thanks an Anonymous Donor for their Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Donate Now, Earl Manns, and Judy Tarro) Posted 09/28/09. |
| In Loving Memory of Roger Ford (Birdman) |
| Obituary: Roger Dean Ford. Survivors include his beloved wife and best friend, Julie Ford of Oak Island, NC. Memorials should be made to International Scleroderma Network, 7455 France Ave SO # 266, Edina MN, 55435 or online at www.sclero.org. Arrangements are in the care of Heritage Funeral Home, Weddington Chapel. Online condolences may be left at www.heritagefuneral.net. (Also see: ISN Donate in Memory) Posted 9-23-09. Thank you to donors in his memory: Gene and Shelley Ensz and William E. Schuck. |
| Running for SCLERO.ORG! |
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| Running for SCLERO.ORG: Sponsor Earl Manns in Kansas City, Missouri Marathon, October 17, 2009! I'm running in honor of my daughter Mya, and in memory of Judy Tarro. (Also see Donate Now, Earl Manns, and Judy Tarro) Posted 09/21/09. |
| ISN is Tackling Scleroderma Now, Thanks to Recent Donors! |
| The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: Kathy Baxter, United Way of Snohomish County, Jody Monserrate, Wendy Custer, George and Sarah Inglis, Mary Wise, McGraw-Hill Companies, Anonymous Donor, Anonymous Foundation, Jason Lee, Karen Burdsall, Lucy Leonard, and Barbara Lyons. 09/17/09. (Also see: Sclero Shop/Donate) |
| Thanks to Ron and Jo Gledhill: Silver Sponsor of Earl Manns Marathons! |
| The nonprofit International Scleroderma Network thanks Ron and Jo Gledhill for their Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Donate Now, Earl Manns, and Judy Tarro) Posted 09/16/09. |
| Online support for scleroderma patients. |
| Last year, together with her son, Adelwyn Holder, Susan Le Gendre, who has Systemic Scleroderma, launched the Scleroderma Care Foundation (SCF), after realising a need for nationwide public awareness about the disease and to reach out to other sufferers. SCF is now an affiliate of the International Scleroderma Network (ISN). Trinidad and Tobago's Newsday. 09/15/09. (Also see: Susan LeGendre) |
| Thanks to George and Sarah Inglis: Silver Sponsor of Earl Manns Marathons! |
| The nonprofit International Scleroderma Network thanks George and Sarah Inglis for their Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Donate Now, Earl Manns, and Judy Tarro) Posted 09/16/09. |
| Thanks to Gene and Shelley Ensz: Silver Sponsor of Earl Manns Marathons! |
| The nonprofit International Scleroderma Network thanks Gene and Shelley Ensz for their Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. (Also see Donate Now, Earl Manns, and Judy Tarro) Posted 09/16/09. |
| Running for SCLERO.ORG! |
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| Running for SCLERO.ORG: Sponsor Earl Manns in Ohio Marathon, September 19, 2009! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Judy Tarro) Posted 09/16/09. |
| Scleroderma Research: On-line Survey |
Stressful Life Events, Quality of Attachment, Resilience and Experience of Scleroderma. (Password: Scleroderma1)
This on-line survey is about the experience of Scleroderma. We invite people aged 18 years and over diagnosed with Scleroderma to complete the online survey. Scleroderma Research, Bond University, Australia. |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
 The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma and pulmonary hypertension now! Reposted 09/08/09. |
| Donate Your Car/Truck/Motorcycle/Boat! |
 The nonprofit International Scleroderma Network accepts cars, trucks, motorcycles, snowmobiles and boats -- from the U.S. and Canada. To donate your vehicle, please call toll free 1-877-537-5277. Donate for "ISN". International Scleroderma Network, www.sclero.org. Posted 09/08/09. (Also see: Donate Your Vehicle) |
| New Personal Stories |
| Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end... |
| (Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia... |
| (Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was... |
| Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information... |
| More New Stories: August-November 2009 |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
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| Go to ISN News: September 2009 |
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