| July 2009 ISN Donation and Website News |
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| Carrie Maddoux is Tackling Scleroderma Now! |
The nonprofit International Scleroderma Network thanks Carrie Maddoux for her comprehensive donation to help tackle research with funds dedicated towards a much-needed Sclero Forums software upgrade. Posted 07/21/09. (Also see: Donate/Shop) |
| Thanks to Lisa Bulman's 4th Annual Scoring for Scleroderma Fundraiser! |
 The Scoring for Scleroderma 4th Annual Fundraiser to benefit the nonprofit International Scleroderma Network was a great success! It was held June 19, 2009 in the Canton Sports Plex, in Canton, Massachusetts. More than 50 women registered to play in the tournament. People who were unable to play in the tournament generously donated their time and money, making this year’s event even bigger. Posted 07/21/09. (Also see: ISN: Lisa Bulman) |
| ISN: Dr. Jerry A. Molitor, ISN Medical Advisory Board |
 ISN: Dr. Jerry A. Molitor. Dr. Jerry A. Molitor is Associate Professor of Medicine in the Division of Rheumatology and Autoimmune Diseases at the University of Minnesota. His translational research is focused on the development of laboratory tests called biomarkers that predict the clinical course of disease, and the response of disease to therapies. Posted 07-20-09. |
| New Photo: Bullous Morphea |
| New Photo: Bullous Morphea. We have added this new photo to the site of the very rare condition, bullous morphea, to the ISN Photo Repository. Many thanks to Amanda for submitting the photo! Posted 07/13/09. (Also see: ISN Photo Repository) |
| (Finnish/Suomi) Tervetuloa Emmi Myohanen, ISN Kääntäjä (Suomi) |
| Emmi Myohanen: ISN kääntäjä (suomi). Hei, nimeni on Emmi ja olen opiskelija Suomesta, teidän ISN kääntäjänne (suomi). Minulla diagnosoitiin paikallinen skleroderma kun olin 6 vuotta vanha, 1996. Olen möys Suome skleroderma yhdistyksen sihteeri, joka on ISN:n yhteistyökumppani. Posted 07/13/09. |
| Welcome to Emmi Myohanen, ISN Finnish Translator |
| Emmi Myohanen: ISN Finnish Translator. Hi there, my name is Emmi and I'm a student from Finland, your ISN Finnish Translator. I was diagnosed with localized scleroderma when I was only 6 years old, in 1996. I am also the secretary of The Finnish Scleroderma Association, which is an ISN Affiliate. Posted 07/13/09. |
| ISN Thanks Carol Miller for her Voices of Scleroderma Book Series Order! |
 Thanks to Carol Miller for her Voices of Scleroderma book series order! You too can cuddle up with our scleroderma heroes as we regale our courageous battle with "the disease that turns people to stone." Laugh with our inspiring whimsy, and clutch our steadfast warmth to your heart. Embrace the knowledge no matter what befalls you, we understand, and you are not alone. Snatch up the sale price now, regularly $25.00 -- now only $14.99 each, only when ordered directly from the ISN, while supplies last! Posted 07/13/09. |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
 The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma and pulmonary hypertension now! Reposted 07/01/09. |
| Donate Your Car/Truck/Motorcycle/Boat! |
 The nonprofit International Scleroderma Network accepts cars, trucks, motorcycles, snowmobiles and boats -- from the U.S. and Canada. To donate your vehicle, please call toll free 1-877-537-5277. Donate for "ISN". International Scleroderma Network, www.sclero.org. Posted 07/01/09. (Also see: Donate Your Vehicle)
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| New Personal Stories |
| Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end... |
| (Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia... |
| (Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was... |
| Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information... |
| More New Stories: August-November 2009 |
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