| March 2009 ISN Donation and Website News |
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| In Honor of Sharon I. Ehrlich |
| The nonprofit International Scleroderma Network thanks Sarah Jane Inglis for her comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses in honor of Sharon I. Ehrlich. Posted 03/27/09. |
| Pampered Chef Online Fundraiser! |
| Lisa Bulman's Pampered Chef Fundraiser for the nonprofit International Scleroderma Network! Our second Pampered Chef Online Fundraiser is now online! Cooking at home is a great way to save money during tough economic times. Stock up on kitchen essentials now -- and share this link with your friends, family, and co-workers. Reposted 03/25/09. (Also see: Lisa Bulman: ISN Fundraiser) |
| ISN Thanks Loren Singleton for the Voices of Scleroderma Book Order! |
 Thanks to Loren Singleton for the Voices of Scleroderma book order! You too can cuddle up with our scleroderma heroes as we regale our courageous battle with "the disease that turns people to stone." Laugh with our inspiring whimsy, and clutch our steadfast warmth to your heart. Embrace the knowledge no matter what befalls you, we understand, and you are not alone. Snatch up the sale price now, regularly $25.00 -- now only $14.99 each, only when ordered directly from the ISN, while supplies last! Posted 03/24/09. |
| ISN Thanks Patricia Lettieri for her Voices of Scleroderma Book Order! |
 Thanks to Patricia Lettieri for her Voices of Scleroderma book order! You too can cuddle up with our scleroderma heroes as we regale our courageous battle with "the disease that turns people to stone." Laugh with our inspiring whimsy, and clutch our steadfast warmth to your heart. Embrace the knowledge no matter what befalls you, we understand, and you are not alone. Snatch up the sale price now, regularly $25.00 -- now only $14.99 each, only when ordered directly from the ISN, while supplies last! Posted 03/18/09. |
| Jeannie McClelland: ISN Sclero Forums Manager |
| Jeannie McClelland: ISN Sclero Forums Manager. Jeannie has been promoted from ISN Sclero Forums Support Specialist to ISN Sclero Forums Manager. Jeannie, who has also known as J.J. Knitter, has been training for this position for the past month. In this new position, she will be responsible for the management, development and training for Sclero Forums. Posted 03-16-09. (Also see: Sclero Forums ) |
| Elizabeth Freese is Tackling Scleroderma Now! |
 The nonprofit International Scleroderma Network thanks Elizabeth Freese for her support in helping to raise awareness of scleroderma through purchase of sclero awareness items. These purchases tackle research, support, education and awareness for scleroderma and related illnesses. Posted 03-13-09. (Also see: Donate/Shop) |
| Beverly Russell is Tackling Scleroderma Now! |
| The nonprofit International Scleroderma Network thanks Beverly Russell for her support in helping to raise awareness of scleroderma through purchase of sclero awareness items. These purchases tackle research, support, education and awareness for scleroderma and related illnesses. Posted 03-11-09. (Also see: Donate/Shop) |
| Thanks to Sponsors of Earl Manns, Marathon Runner! |
| The nonprofit International Scleroderma Network thanks Silver Sponsor R. Hugh Fitzpatrick and Booster Sponsors Thomas and Gail Rhodes for their support for upcoming Earl Manns Marathons. These comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. Posted 03-09-09. (Also see: Donate and Earl Manns) |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
 The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma and pulmonary hypertension now! Posted 03-09-09. |
| New ISN Page: Perioral Dermatitis |
| Perioral Dermatitis (also called periorificial dermatitis) is a facial rash that tends to occur around the mouth and/or nose and occasionally, the eyes. Our new page covers its symptoms, possible causes, diagnosis and treatments. A recent case of Perioral Dermatitis is also covered. |
| Join the ISN Rosetta@Home Team...use your computer's idle time to find disease cures! |
 Join ISN's Rosetta@home team! We need your help to determine the 3-dimensional shapes of proteins in research that may ultimately lead to finding cures for some major human diseases. By running the Rosetta program on your computer while you don't need it you will help us speed up and extend our research in ways we couldn't possibly attempt without your help. You will also be helping efforts at designing new proteins to fight diseases such as HIV, Malaria, Cancer, and Alzheimer's, etc. After signing up with Rosetta@Home, join the International Scleroderma Network (ISN) Team! Posted 03/06/09. |
| Pampered Chef Online Fundraiser! |
| Lisa Bulman's Pampered Chef Fundraiser for the nonprofit International Scleroderma Network! Our second Pampered Chef Online Fundraiser is now online! Cooking at home is a great way to save money during tough economic times. Stock up on kitchen essentials now -- and share this link with your friends, family, and co-workers. Posted 03/05/09. |
| Carrie Maddoux: ISN Sclero Forums Director |
| Carrie Maddoux: ISN Sclero Forums Director. Carrie has been promoted from ISN Sclero Forums Manager to ISN Sclero Forums Director. Carrie, also known as Jefa, has been an active member of the ISN Forums since its beginning in October 2006 and has been Manager since May 2007. In this new position, she will oversee the management, development and training for Sclero Forums, Chats, Blogs and Videos. Posted 03-04-09. (Also see: Sclero Forums ) |
| New Personal Stories |
| Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end... |
| (Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia... |
| (Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was... |
| Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information... |
| More New Stories: August-November 2009 |
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