| December 2008 ISN Donation and Website News |
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| In Loving Memory of Tom Regensburger |
 The nonprofit International Scleroderma Network thanks the following people for their comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses, in loving memory of Tom Regensburger: Dee Gable, Thomas Furey, Robert Klimm, William R. Johnson Sr., Ilene Martin, Joan Ruhl, and Jill Swiatowicz. Posted 12/30/08. (Also see: Donate in Memory) |
| Thanks to Rev. Griffith and Evelyn Williams! |
| The nonprofit International Scleroderma Network thanks the Reverend Griffith and Evelyn Williams for their comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. Posted 12/30/08. (Also see: Donate) |
| ISN Fund: In Honor of Caregivers |
 The nonprofit International Scleroderma Network thanks Carrie Maddoux for her donation "In Honor of Caregivers", with special recognition to Lori Bass, David Knaggs, and CE Tanner. The fund provides comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. New fund totals will be posted each month. Help us show our appreciation for all caregivers by donating now! Posted 12/29/08. (Also see: Donate in Honor of Caregivers) |
| Thanks to Rose Adkins |
| The nonprofit International Scleroderma Network thanks Rose Adkins for her comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. Posted 12/27/08. (Also see: Donate) |
| Thanks to Monica Serianni |
| The nonprofit International Scleroderma Network thanks Monica Serianni for her comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. Posted 12/21/08. (Also see: Donate) |
| ISN Fund: In Honor of Caregivers |
| The nonprofit International Scleroderma Network has launched a new fund, "In Honor of Caregivers". The fund provides comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. New fund totals will be posted each month. Help us show our appreciation for all caregivers by donating now! Posted 12/19/08. (Also see: Donate in Honor of Caregivers) |
| Welcome New ISN Affiliate: Finnish Scleroderma Association |
 Welcome New ISN Affiliate: Finnish Scleroderma Association! The Finnish Scleroderma Association, Suomen Skleroderma Yhdistys ry, has become an affiliate of the nonprofit International Scleroderma Network. The association is led by Maria Paiho-Vartiainen. Posted 12/19/08. |
| Thanks to Kathy Baxter and United Way! |
| The nonprofit International Scleroderma Network thanks Kathy Baxter for her comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses, through United Way. Posted 12/19/08. (Also see: Donate) |
| Thanks to Daniel and Diane Doiron! |
| The nonprofit International Scleroderma Network thanks Daniel and Diane Doiron for their comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses in loving memory of Violet Doiron. Posted 12/19/08. (Also see: Donate) |
| Thanks to Earl and Delana Manns! |
| The nonprofit International Scleroderma Network thanks Earl and Delana Manns for their comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. Posted 12/19/08. (Also see: Earl Manns and Donate) |
| Thanks to Arnold Slotkin! |
| The nonprofit International Scleroderma Network thanks Arnold Slotkin for his comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses, in memory of Marta Marx. Posted 12/19/08. (Also see: Donate) |
| Welcome ISN Assistant News Guide: Jeannie McClelland |
 ISN Assistant News Guide: Jeannie (JJ Knitter) McClelland. Like many of us I had difficulty getting a diagnosis and once I did, even more difficulty finding out about the 'elephant in the room'. That's why I'm especially pleased to be able to volunteer to help with the ISN Newsroom. I'd like to help people have good access to the all latest information about scleroderma. Posted 12/09/08. |
| ISN SCLERO.ORG Newsletter: Free Sample Issue! |
 ISN SCLERO.ORG Newsletter: Free Sample Issue! This is also a great time to help us tackle scleroderma. If you would like a free subscription, just write in "FREE" on the enclosed donation/order form. (Also see: Donate/Join/Shop) |
| Venezuela Revista: Esclerodermia y Algo Mas (FLASH Document) —Gratis! |
 (Español/Spanish) En la Grupo de Apoyo de Venezuela contra la Esclerodermia: Revista:Esclerodermia y Algo Mas (FLASH Document) —Gratis! Esta es una publicación en español, 41 paginas.
(English) The Scleroderma Support Group of Venezuela (which is an affiliate of the ISN) has published a 41-page online FLASH magazine, in Spanish, Escleroderma y Algo Mas, which is free! Reposted 12/02/08. |
| ISN Request for Photos of Scleroderma Mouth Involvement |
| The International Scleroderma Network has an urgent request from a dental hygienist researcher for photos of scleroderma oral manifestations. They would like high resolution photos of the head, neck and more specifically the oral cavity of an individual with systemic scleroderma. Please inquire or submit photos by email to shelley-ensz@sclero.org. Reposted 12/01/08. (Also see: Donate/Join/Shop) |
| Online Survey: Needs Assessment of College Students Diagnosed with Autoimmune Related Diseases |
| (Expired) Needs Assessment of College Students Diagnosed with Autoimmune Related Diseases. If you are a college student diagnosed with a(n) autoimmune related disease(s), then you may be eligible to participate in this study. It's an anonymous on-line questionnaire asking about your health related academic problems, needs, perceptions, and experiences of living with an autoimmune related disease while attending college. Must be 18 or older and currently enrolled full time or part time in a 4-year institute of higher education diagnosed with one or more autoimmune related diseases by your health care provider. Researcher Lauren Boyle, Indiana University. Reposted 12/1/08. |
| New Personal Stories |
| Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end... |
| (Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia... |
| (Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was... |
| Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information... |
| More New Stories: August-November 2009 |
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