ISN Donation and Website News: October 2008

October 2008 ISN Donation and Website News

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Venezuela Revista: Esclerodermia y Algo Mas (FLASH Document) —Gratis!

(Español/Spanish) En la Grupo de Apoyo de Venezuela contra la Esclerodermia: Revista:Esclerodermia y Algo Mas (FLASH Document) —Gratis! Esta es una publicación en español, 41 paginas.

(English) The Scleroderma Support Group of Venezuela (which is an affiliate of the ISN) has published a 41-page online FLASH magazine, in Spanish, Escleroderma y Algo Mas, which is free! Posted 10-29-08.

Tackling Scleroderma!

Tackling scleroderma through donations, memberships, books, brochures and awareness bracelets:

Shop/Donate

Running for SCLERO.ORG!

Running for SCLERO.ORG: Sponsor Earl Manns in Chicago Marathon, October 12, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. (Also see Donate Now, Earl Manns, and Sherrill Knaggs ) Reposted 10/01/08.

Scleroderma Can Koozies Now Available!

Scleroderma Can Koozies! Keep your hands warm with cold pop cans, $2.50 each, minimum order of 4 ($10), please. Reposted 10/01/08.

In Loving Memory of Maxine Gail Mackler

The nonprofit International Scleroderma Network thanks Gerald Mackler for his donation in loving memory of Maxine Gail Mackler. Posted 09/15/08.

New Personal Stories

Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...

(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...

(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...

Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...

More New Stories: August-November 2009

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