TV Video: Hannah - Health Insurance Story. View her fight for insurance coverage for the SCOT Trial, with David Becker, ISN Assistant News Guide.
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Scleroderma Newsroom
janeywillisHello, I am Janey Willis, ISN News Director and ISN Asst. Webmaster. David Becker, ISN Assistant News Guide researches our Autoimmune News section. Jeannie McClelland, ISN Assistant News Guide, researches Scleroderma Medical and Media News. Assistant News Guide Lisa Bulman posts these stories to our Sclero Forums.
Scleroderma Medical News
Autoimmune News
Media Stories
ISN Website News
Donations & In Memory
New Personal Stories
ISN Donation and Web Site News
April 2008
In Loving Memory of Shirley Glassman
The nonprofit International Scleroderma Network thanks Sally Beth Dougherty for her donation in loving memory of Shirley Glassman. Posted 04-29-08.
New Page: Severity and Prognosis of Scleroderma Pulmonary Involvement
Lung involvement is now the primary cause of death in scleroderma patients. Our new page, Severity and Prognosis for Scleroderma Pulmonary Involvement, includes topics such as predictors of morbidity and mortality, and health related quality of life issues. Posted 04/28/08.
Scleroderma Webcast #2 Replay with Dr. Art Theodore, BUMC
Scleroderma Webcast #2 Replay. Dr. Art Theodore is a nationally recognized expert with special interests in systemic sclerosis and interstitial lung disease from Boston University Medical Campus. 04-25-08. PatientPower. (Also see: What is Scleroderma? and Pulmonary Involvement )
New Page: Diagnosis of Scleroderma Pulmonary Involvement
Our new page, Diagnosis of Scleroderma Pulmonary Involvement, covers topics such as tests for pulmonary involvement, and diagnosis of pulmonary fibrosis and pulmonary hypertension. Posted 04/25/08.
New Page: Oxygen Therapy
Our new page, Oxygen Therapy, covers topics such as Dangers of Oxygen and Flame, Oxygen Carrying Cases, and OxyView glasses! Posted 04/23/08.
In Loving Memory of Frank F. Altmar, Jr.
The nonprofit International Scleroderma Network thanks George and Sarah Jane Inglis for their donation in loving memory of Frank F. Altmar, Jr.. Posted 04-15-08.
In Loving Memory of Maxine Gail Mackler
The nonprofit International Scleroderma Network thanks Gerald Mackler for his donation in loving memory of Maxine Gail Mackler. Posted 04-15-08. (Also see: Donate in Memory of Maxine Gail Mackler and Donations in Memory )
Tackling Scleroderma!
Tackling scleroderma in April 2008 through donations, memberships, books, brochures and awareness bracelets:

Diane Dube
Beth Smith
Philip Whittle
Bethany Benes
Shirlene Edwards
Sue Dekker
Robin Gouvernel
Emily Lawson
Mellie Jordan
Mary Ponce
Joe Vance
(Updated 04/30/08)

Welcome Sheryl Doom: ISN Sclero Forums Support Specialist
Sheryl Doom: ISN Sclero Forums Support Specialist. I'm very excited to also take on the role of ISN Support Specialist for Sclero Forums! Posted 04-08-08.
Janey Willis: ISN News Manager
Janey Willis has been promoted to ISN News Manager to work with the ISN news guides and to manage the ISN Newsroom. Janey has worked as a News Guide for over 3 years. She is also ISN Assistant Webmaster in helping to maintain and update the ISN website, among many other positions. Posted 04-06-08.
Welcome David Becker: ISN Assistant News Guide
David Becker: ISN Assistant News Guide. I am an attorney practicing law in wonderful sunny Florida. In 2007 I had a stem cell transplant for diffuse scleroderma. As your Assistant News Guide, I hope to provide the same support that was given to me when I needed it most. Posted 04-04-08.
Welcome Sheryl Doom: ISN Sclero Forums Chat Host
Sheryl Doom: ISN Sclero Forums Chat Host. We have free weekly chats in Sclero Forums. Join us!. Posted 04-03-08.
In Loving Memory of Denise Harry
The nonprofit International Scleroderma Network thanks the following for their donation in loving memory of Denise Harry. Posted 04/01/08. (Also see: Donate in Memory of Denise Harry and Donations in Memory )
Alice McKay
 
Go to ISN Donation and Web Site News: March 2008
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
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