ISN Donation and Web Site News |
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| October 2007 |
| Scleroderma Webcast with Dr. Art Theodore, BUMC |
| Scleroderma Webcast Replay. Dr. Art Theodore is a nationally recognized expert with special interests in systemic sclerosis and interstitial lung disease from Boston University Medical Campus. If you have scleroderma, know of someone who has this illness, or are interested in learning more about this illness you don’t want to miss this special presentation. Posted 10-30-07. PatientPower. (Also see: What is Scleroderma?) |
| In Loving Memory of Dr. Ruth McCormick Nerlich |
| The International Scleroderma Network thank the following people for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Dr. Ruth McCormick Nerlich. Posted 10-30-07. (Also see: Donate in Memory of Dr. Ruth McCormick Nerlich and ISN Donations in Loving Memory) |
Harry Bederian
David Covell
Sabine Foster |
Lancaster Flooring, Inc.
Brian & Andrea McKinnon
Agnes Pasco |
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| Welcome Serena Justis, ISN Blogger |
 Serena Justis: ISN Blogger. I am honored to be offered the opportunity to be a blogger here at ISN, home of the most beautiful, caring, supportive, compassionate group of people I have ever had the pleasure of knowing. I only hope my blogging can hold a candle to Barbs Lowe. If I can make you smile then I have done my job. If I can make you laugh then I have done my job well. Posted 10-30-07. |
| Webcast Tue, Oct 30th, Boston University School of Medicine |
| Scleroderma Webcast! You are invited to attend a Scleroderma webcast Tuesday, October 30, 2007 from 12:00 pm— 1:00 pm Central Time at www.patientpower.info. You can listen live, and call in live at 877.711.5611 or 877.711.5211. Dr. Art Theodore is a nationally recognized expert with special interests in systemic sclerosis and interstitial lung disease from Boston University Medical Campus. If you have scleroderma, know of someone who has this illness, or are interested in learning more about this illness you don’t want to miss this special presentation. Call in with your questions live! Posted 10-29-07. PatientPower. |
| Raising Scleroderma Awareness in October 2007! |
| The nonprofit International Scleroderma Network thanks the following people who have purchased awareness items such as books, brochures and bracelets. Brochures are 50 cents each and include a Systemic Scleroderma Symptom Checklist. The teal silicone bracelets say "SCLERODERMA" and "SCLERO.ORG" and are $2.50 each. Reposted 10-29-07. (Also see: ISN Secure Shops) |
Jennifer Gutierrez
Michele Hanes
Michele Maki
Michele Marron
Kiyoshi Nakazawa
Lee Overton |
Joyce Ricker
Josh Romero
Stephen Sandman
Penni Strait
Ray Valenzuela |
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| In Loving Memory of Bobby Fell |
| The International Scleroderma Network thanks Kristy Dempsey for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Bobby Fell. Posted 10-25-07. (Also see: ISN Donations in Loving Memory) |
| Welcome Michele Maki |
| The International Scleroderma Network welcomes Michele Maki as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 10-25-07. (Also see: Join or Donate and ISN Membership) |
| In Loving Memory of Marcel Rochette |
| The International Scleroderma Network thanks Barbara Rochette for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Marcel Rochette.who passed away October 17, 2006. Posted 10-23-07. (Also see: ISN Donations in Loving Memory) |
| In Loving Memory of Dr. Ruth McCormick Nerlich |
| The International Scleroderma Network thanks Sabine Foster for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Dr. Ruth McCormick Nerlich. Posted 10-23-07. (Also see: Donate in Memory of Dr. Ruth McCormick Nerlich and ISN Donations in Loving Memory) |
| In Loving Memory of Margaret Tellekson |
| The International Scleroderma Network thanks Nancy McGlamery for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Margaret Tellekson. Posted 10-17-07. (Also see: Donate in Memory of Margaret Tellekson and ISN Donations in Loving Memory) |
| Welcome Andrew McKechnie |
| The International Scleroderma Network welcomes Andrew McKechnie as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 10-17-07. (Also see: Join or Donate and ISN Membership) |
| Autoimmune Disease? Get Paid for Your Antibodies! |
| Access Biologicals’ Specialty Antibody Donors. If you have been diagnosed with and are being treated for any autoimmune disease, you may be eligible to receive up to $500 per plasma donation, as long as your antibody levels are high. For U.S. residents who weigh at least 110 lbs and are at least 18 years of age. Access Biologicals. Reposted 10-15-07. (Also see: Antibodies) |
| Pulmonary Hypertension Registry of Scleroderma by SCTC |
| Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Reposted 10-15-07. (Also see: Pulmonary Hypertension) |
| SCOT Trial: Open Enrollment, 2005-2008 |
| SCOT Clinical Trial, which stands for "Scleroderma Cyclophosphamide Or Transplantation", will compare two potential therapies: autologous stem cell transplantation versus high-dose monthly cyclophosphamide. Study dates 2005-2008. Reposted 10-15-07. (Also see: Scleroderma Clinical Trials: Current, Cyclophosphamide, Cytoxan and Stem Cell Transplantation) |
| NIH: Now Enrolling for Family/Twin Study |
| Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Reposted 10-15-07. (Also see: Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics ) |
| U.S. Morphea Registry and DNA Repository |
| First U.S. Morphea Registry and DNA Repository for both Adults and Children Established. Dermatologists at University of Texas Southwestern Medical Center are establishing a DNA repository aimed at people with morphea. They will collect information about other health conditions present, collect information about family history, and collect blood and skin samples to further define the genes associated with morphea and the genetic faces of morphea. Southwestern Medical Center. Reposted 10-15-07. (Also see: Morphea) |
| In Loving Memory of Maxine Gail Mackler |
| The International Scleroderma Network thanks the following people for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler, who passed away on 6-29-03. Posted 10-15-07. (Also see: Donate in Memory of Maxine Gail Mackler and ISN Donations in Loving Memory) |
| Howard and Rita Sackstein |
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| Welcome Kristin Hume |
| The International Scleroderma Network welcomes Kristin Hume as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 10-10-07. (Also see: Join or Donate and ISN Membership) |
| ISN Sclero Live Chat: Sun, Oct 14th, 6pm PST (9pm EST) |
| Sclero Forums Live Chat! You are all invited to Sclero Forums Live Chat! Our chat time this week will be as follows: Chat #1: Sunday, October 14th @ 6PM PST (9PM EST; 11AM Monday in Australia.) Posted 10-10-07. (Also see: Erin Eton: ISN Chat Host and Sclero Forums) |
| In Loving Memory of Sheila Hitchcock |
| The International Scleroderma Network thanks Shelda Lenetz for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Sheila Hitchcock. Posted 10-10-07. (Also see: Donate in Memory of Sheila Hitchcock and ISN Donations in Loving Memory) |
| ISN Sclero Chat: Sunday, 10/07/07, 9:00 PM EST |
| ISN Sclero Chat! The next ISN Sclero Live Chat, for registered members of Sclero Forums, will be held at 9pm EST (8PM CT), in Sclero Forums (see Chat link in upper right of each page). Posted 10-05-07. (Also see: Sclero Forums and Erin Eton: ISN Sclero Chat Host) |
| In Loving Memory of Jeanette Heidelberg |
| The International Scleroderma Network thanks Mary Flikke for her comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Jeanette Heidelberg. Posted 10-05-07. (Also see: Donate in Memory and ISN Donations in Loving Memory) |
| Allyson Kilburn is Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Allyson Kilburn for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 10-05-07. (Also see: Join or Donate and ISN Donors) |
| Erin Eton: ISN Sclero Chat Host |
| Erin Eton: ISN Sclero Chat Host. I am excited about being the ISN's first Sclero Chat Host! I will be launching the chat initiative this week, with our first Sclero Chat to be held tomorrow, October 2nd, in Sclero Forums (click on the Live Chat link on the top of each page.) We will begin with just casual chats and later on, after we get our system refined, we will be inviting special guest speakers. Please let me know if you'd like to become an ISN Chat Host, too! Posted 10-01-07. (Also see: Sclero Forums and Erin Eton) |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma now! Reposted 09-04-07. (Also see: ISN Donors) |
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