ISN Donation and Web Site News |
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| March 2007 |
| Welcome Chuck Blatt, ISN New or Renewing Member |
| The International Scleroderma Network welcomes Chuck Blatt as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 03-29-07. (Also see: Join or Donate and ISN Membership) |
| Welcome Dana Esposito, ISN New or Renewing Member |
| The International Scleroderma Network welcomes Dana Esposito as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 03-27-07. (Also see: Join or Donate and ISN Membership) |
| 03-30-07: Bogotá, Columbiana |
| (Español/Spanish) Asociación Colombiana de Esclerodermia Nuestra proxima reunion se ralizara el Viernes 30 de Marzo de 2007 a las 10:00 A.M. en el edificio World Trade Center, calle 100 8 A - 55, Bogota, D.C.. Posted 03-27-07. |
| Scleroderma Awareness Bracelets, Now Available! |
 Scleroderma Awareness Bracelets are in stock and now available for $2.50 each (including shipping) from the nonprofit International Scleroderma Network (ISN). The teal silicone wristbands say "SCLERODERMA" on one side, and "SCLERO.ORG" on the other. Order them now through ISN Secure Shop ! Posted 3-25-07. |
| Welcome Patsy Lundberg, ISN New or Renewing Member |
| The International Scleroderma Network welcomes Pat Smith as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 03-23-07. (Also see: Join or Donate and ISN Membership) |
| Welcome Pat Smith, ISN New or Renewing Member |
| The International Scleroderma Network welcomes Pat Smith as a new or renewing member. ISN Members receive the ISN Insider Newsletter —a "must have" for scleroderma patients and caregivers and all fans of the www.sclero.org website! Email memberships are $25 and Postal memberships are $35. Posted 03-22-07. (Also see: Join or Donate and ISN Membership) |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma now! Reposted 03-21-07. (Also see: ISN Donors) |
| Carrie Maddoux is Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Carrie Maddoux for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 03-21-07. (Also see: Join or Donate) |
| You are Invited to an Online Pampered Chef Party for Scleroderma: March 17 through April 5, 2007! |
 Order some well deserved cooking items from The Pampered Chef and support Scoring for Scleroderma. The Pampered Chef and one of its host will generously donate 15% of total sales and 15% of the commission, respectively to ISN. This is your opportunity to support the International Scleroderma Network for research, support, education and awareness, and in the process, improve your quality of life in the kitchen. So treat yourself to some new things. You deserve it! Send this to your friends, family, and everyone you know! To order click here. Posted 3/18/07. (Also see: Lisa Bulman, ISN Fundraiser) |
| In Loving Memory of Beryl Blatt | | The International Scleroderma Network thanks the following people for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Beryl Blatt. Updated 04-26-07. (Also see: ISN Donations in Loving Memory) | Anonymous (5)
Mr. and Mrs. Larry Belgrade
Carol and Lionel Brazen
Norman and Bobbie Bloch
Anna Marie Brodsky
Tricia Brouwers
Scott and Debbie Brown
Sharon & Aaron Chanowitz
Jerry Chern
Judy Clar
Marc and Randi Cohn
Matthew and Paula Cohn
Babe & Schellie Cutler
Digital Acoustics
Gene and Shelley Ensz
Avelina Friedman
George and Barbara Fuchs
David and Edith Gass
Joyce Guidice
Chuck, MaryLee and Casey Helander
Hochman Family
Dr. and Mrs. Walter Hofman
Myles Kagan | Joan Ladon
Lake Forest Food and Wine Specialties
Mr. and Mrs.Philip Lieberman
Lake Forest/Lake Bluff Chamber of Commerce
Fidel and Joyce Lopez
David and Deborah MacKenzie
Phyllis Malitz
Linda Martinat
Karen Meyer
Sean Mitus
Margaret O'Connor
Rosalie Ovson
Howard Pearlman
Kennedy Pierson
Gary Plotnick
Eric Robin
Ellen Rogin
Matt Schnider
Shain, Burney, Ross and Citron, Ltd.
Shelly Simms
Natalie and Fred Strauss
James Walsh
Paula J. Wierschem | | | | Welcome Fran Waranius, ISN New or Renewing Member | | The International Scleroderma Network welcomes Fran Waranius as a new or renewing member. ISN Email memberships are $25 and Postal memberships are $35. Posted 03--09-07. (Also see: Join or Donate and ISN Membership) | | | | Trudy Barna-Lloyd is Tackling Scleroderma Now! | | The International Scleroderma Network thanks Trudy Barna-Lloyd for tackling scleroderma now with a comprehensive donation for research, support, education and awareness. Posted 03-07-07. (Also see: ISN Donors and Join or Donate) | | Pulmonary Hypertension Registry of Scleroderma by SCTC | | Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Reposted 03-05-07. (Also see: Pulmonary Hypertension) | | SCOT Trial: Open Enrollment, 2005-2008 | | SCOT Clinical Trial, which stands for "Scleroderma Cyclophosphamide Or Transplantation", will compare two potential therapies: autologous stem cell transplantation versus high-dose monthly cyclophosphamide. Study dates 2005-2008. Reposted 03/05/07. (Also see: Scleroderma Clinical Trials: Current, Cyclophosphamide, Cytoxan and Stem Cell Transplantation) | | NIH: Now Enrolling for Family/Twin Study | | Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Reposted 03/05/07. (Also see: Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics ) |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! | | The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma now! Posted 03-05-07. (Also see: ISN Donors) | | Welcome Vera Lonergan, ISN New or Renewing Member | | The International Scleroderma Network welcomes Vera Lonergan as a new or renewing member. ISN Email memberships are $25 and Postal memberships are $35. Posted 03-05-07. (Also see: Join or Donate and ISN Membership) | | In Loving Memory of Maxine Gail Mackler |  The International Scleroderma Network thanks Gerald Mackler for his comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Maxine Gail Mackler. Posted 03-01-07. (Also see: ISN Donations in L o ving Memory) | | Also see: Join ISN, ISN Members, and More ISN News: February 2007. | |
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