ISN Donation and Web Site News |
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| August 2006 |
| In Loving Memory of Stanley Braschowitz |
 The International Scleroderma Network thanks Audrey and Richard Quinlan for their donation to tackle scleroderma research, support, education and awareness in loving memory of Stanley Braschowitz . Posted 08-15-06. (Also see: ISN: In Loving Memory Donors) |
| Thank you to ISN Donors, Tara Brown and Michael Wozniak |
| The International Scleroderma Network extends our thanks to Tara Brown and Michael Wozniak for their Microsoft Giving matching donation. Their comprehensive donation helps us provide a powerhouse of vital information and support services and top notch international peer-reviewed research. Posted 08-14-06. (Also see: ISN Donors) |
| 08-26-06: Bogotá, Columbiana |
| (Español/Spanish) Asociación Colombiana de EsclerodermiaNuestra proxima reunion se celebrara el Sabado 26 de Agosto de 2006. 10:00 a.m. en el World Trade Center. Calle 100 8 A 55, Bogota, Colombiana. Posted 08-11-06. |
| Scleroderma Care and Research Journal, Vol. 3, No. 2 |
| Scleroderma Care and Research Journal: Spring 2006. This free online PDF medical journal issue includes articles on Health Related Quality of Life: A Primer with a Focus on Scleroderma, and Pulmonary Arterial Hypertension in Systemic Sclerosis: Risk Factors and Diagnosis. SCTC Spring 2006. (Also see: SCAR Journals, Emotional Adjustment and Pulmonary Hypertension) Reposted 08-08-06. |
| Pulmonary Hypertension Registry of Scleroderma by SCTC |
| Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States. Reposted 08-08-06. (Also see: Pulmonary Hypertension) |
| SCOT Trial: Open Enrollment, 2005-2008 |
| SCOT Clinical Trial, which stands for "Scleroderma Cyclophosphamide Or Transplantation", will compare two potential therapies: autologous stem cell transplantation versus high-dose monthly cyclophosphamide. Study dates 2005-2008. Reposted 08/08/06. (Also see: Scleroderma Clinical Trials: Current, Cyclophosphamide, Cytoxan and Stem Cell Transplantation) |
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