| In Loving Memory of Doris Schwartz |
| The International Scleroderma Network thanks Anonymous and Michelle Little for their donation to tackle scleroderma research in loving memory of Doris Schwartz. Posted 06-27-06. (Also see: ISN: In Loving Memory Donors) |
| In Loving Memory of Doris Schwartz |
| The International Scleroderma Network thanks All American for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Doris Schwartz. Posted 06-26-06. (Also see: ISN: In Loving Memory Donors) |
| In Honor of Sheryll Bedingfield, Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Elaine and Richard Freund & Family for their comprehensive donation to tackle scleroderma research, support, education and awareness, in honor of Sheryll Bedingfield. Posted 06-26-06. (Also see: Comprehensive Donors) |
| In Loving Memory of Maxine Gail Mackler |
| The International Scleroderma Network thanks Gerald Mackler for his June donation in loving memory of Maxine Gail Mackler. Posted 06-26-06. (Also see: ISN: In Loving Memory Donors) |
| Welcome Barbara Lyons: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Barbara Lyons as a new or renewing member. Posted 06-26-06. (Also see: ISN Membership) |
| In Honor of Sheryll Bedingfield, Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Ronald Georgeff for his comprehensive donation to tackle scleroderma research, support, education and awareness, in honor of Sheryll Bedingfield. Posted 06-26-06. (Also see: Comprehensive Donors) |
| ISN Scoring for Scleroderma Huge Success! |
| The Scoring for Scleroderma Women’s Soccer Tournament, which was held on June 19, 2006, at the Canton Sports Plex, in Canton, Massachusetts was a huge success! Everyone had a great time and generously donated to this worthy cause! At this time, the tournament has raised over $5,000 with donations still coming in! Read the whole story! (Also see: Lisa Bulman, ISN Fundraiser) Posted 06-22-06. |
| 06-19-06: ISN Scoring for Scleroderma Fundraiser Today! |
| Scoring for Scleroderma to benefit the nonprofit International Scleroderma Network is kicking off today—Monday, June 19th at the Canton Sports Plex, in Canton, Massachusetts. You can join in the fun and support the fundraiser by shopping at the special Scoring for Scleroderma Gift Shop ! Posted 06-19-06 by Lisa Bulman, ISN Fundraiser. |
| Sid Strong: ISN Board of Directors |
Sid Strong: ISN Board of Directors. I have closely observed the establishment and growth of this amazing website, and the resulting nonprofit International Scleroderma Network. I am a former business owner. I presently serve on two other boards, and I am delighted to put my experience to good use in making sound decisions for the ISN. Posted 06-16-06. |
| 07-01-06: Bogotá, Columbiana |
| (Español/Spanish) Asociación Colombiana de Esclerodermia Nuestra proxima reunion se realizara el Sabado 1 de Julio de 2006 a las 11:00 A.M. en la Universidad Nacional de Colombia. Sede Bogota. Facultad de Medicina. Dirige la Dra. Paola Coral Alvarado, Internista - Residente Reumatologia. Posted 06-15-06. |
| 06-19-06: ISN Scoring for Scleroderma Fundraiser! |
| Scoring for Scleroderma to benefit the nonprofit International Scleroderma Network is ready to kick off! The women's soccer tournament will be held on Monday, June 19th at the Canton Sports Plex, in Canton, Massachusetts. You can join in the fun and support the fundraiser by shopping at the special Scoring for Scleroderma Gift Shop ! Posted 06-14-06 by Lisa Bulman, ISN Fundraiser. |
| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
| The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma! Posted 06-09-06. (Also see: ISN: Comprehensive Donors) |
| Pulmonary Hypertension Registry of Scleroderma by SCTC |
| Pulmonary Hypertension Registry of Scleroderma (PHAROS) is a multicenter study of systemic scleroderma (systemic sclerosis) patients in the United States who are at high risk for developing pulmonary hypertension as well as those with newly diagnosed with pulmonary hypertension, by members of the Scleroderma Clinical Trial Consortium (SCTC). Reposted 06-07-06. (Also see: Pulmonary Hypertension) |
| 06-22-06: Shelley Ensz: Book Signings at Panera Bread in Twin Cities |
| Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series  , will be doing public book signings for all 3 volumes at Panera Bread in Minnesota from 10:30am-2:00pm, on Thursday, June 22, 2006 at 3808 Grand Way, St. Louis Park, Minnesota. Help raise awareness of scleroderma: bring your friends and family! Books will be available for purchase. Posted 06-07-06. | |
| Welcome Christien Dokter-van der Werff: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Christien Dokter-van der Werff as a new or renewing member. Posted 06-06-06. (Also see: ISN Membership) |
| You're Invited: Monday, June 5th ISN Book Signing in Minnesota! |
| Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series , will be doing a book signing on Monday, June 5, 2006 at the Panera Bread restaurant in Yorktown Mall, Edina, Minnesota. ISN books will be available for purchase. Each volume features articles by world experts in scleroderma, as well as over 100 helpful and engaging patient and caregiver stories to provide guidance and support for coping with all types of scleroderma (localized and systemic). Reposted 06-02-06. | |
| ISN Nominated for Tech Award for Technology Benefiting Humanity! |
| The nonprofit International Scleroderma Network has been nominated for The Tech Museum Awards for Technology Benefiting Humanity, in the Health category. The Awards is an annual program that honors individuals and organizations that are creatively applying technology to benefit humanity. It is all of us working together, as site visitors, members, and volunteers, who have earned this special recognition. Reposted 06-02-06. (Also see: ISN Membership and ISN Volunteers) |
| ISN Shop for Scoring for Scleroderma Fundraiser by Lisa Bulman |
Join in the fun and support ISN's Scoring for Scleroderma fundraiser by shopping at the special Scoring for Scleroderma Gift Shop ! Order your items now—everything from t-shirts, track suits, sweatshirts, hoodies, dog t-shirts, bibs, infant clothing, mouse pads, coffee mugs, calendars, aprons, caps, tote bags, and teddy bears are available for purchase online and the profit from each sale benefits this fundraiser! Posted 06-02-06. (Also see: Lisa Bulman, ISN Fundraiser) |
| Welcome Agis Antonopoulos: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Agis Antonopoulos as a new or renewing member. Posted 06-02-06. (Also see: ISN Membership |
| Thank you to ISN Donors, Tara Brown and Michael Wozniak |
| The International Scleroderma Network extends our thanks to Tara Brown and Michael Wozniak for their Microsoft Giving matching donation. Their comprehensive donation helps us provide a powerhouse of vital information and support services and top notch international peer-reviewed research. Posted 06-02-06. (Also see: ISN Donors) |
