| SCOT Trial: Open Enrollment, 2005-2008 |
| SCOT Clinical Trial, which stands for "Scleroderma Cyclophosphamide Or Transplantation", will compare two potential therapies: autologous stem cell transplantation versus high-dose monthly cyclophosphamide. Study dates 2005-2008. Reposted 03-24-06. (Also see: Scleroderma Clinical Trials: Current, Cyclophosphamide, Cytoxan and Stem Cell Transplantation) |
| Meagan (Meg) McLaughlin: ISN Support Specialist |
| Meagan (Meg) McLaughlin: ISN Support Specialist. I am delighted to join the Sclero support specialist team! The message board was, and continues to be, a place to go for knowledge, understanding, support and love. Posted 03-21-06. |
| Ja ney Willis: ISN Website Assistant |
 Janey Willis: ISN Website Assistant. Janey, who is ISN Technical Writer, ISN Assistant News Guide, and an ISN Support Specialist, is now also preparing and posting ISN news and medical items for the website, using the Macromedia Contribute program, and creating a manual for it, as well. Posted 03-21-06. |
| Steve Dickson: ISN Autoimmune News Guide |
 Stephen Dickson: ISN Autoimmune News Guide. In this new role, I prepare the ISN's Autoimmune News, researching and preparing articles about autoimmune diseases for the ISN Newsroom and website. I am also a Support Specialist, and ISN Guide to RSS Newsfeed. Posted 03-21-06. |
| Lisa Bulman : ISN Fundraiser |
 Lisa Bulman: ISN Fundraiser. Lisa has been promoted to ISN Fundraiser, in addition to her roles as ISN Senior Support Specialist for Sclero MSN and as ISN Assistant News Guide. Her first event will be a women's soccer match, which was first announced in the ISN Insider Newsletter for members and volunteers. Posted 03-21-06. |
| Marbella Brown is Tackling Scleroderma Now! |
 The International Scleroderma Network extends our thanks to the Marbella Brown for her comprehensive donation to tackle scleroderma research, support, education and awareness. Posted 03-10-06. (Also see: ISN Comprehensive Donors) |
| SWA New Member: SCOT Clinical Trials |
 SCOT: Cyclophosphamide or Transplantation website has joined the Scleroderma Webmaster's Association (SWA) free "Scleroderma Sites to Surf!" program.
SCOT is a clinical research study designed for people with severe forms of scleroderma. These 2 approaches are investigational, which means that they are still being tested in research studies and are not approved by the U.S. Food and Drug Administration (FDA) for the treatment of scleroderma. SCOT is being sponsored by the National Institutes of Health (NIH) through its Division of Allergy, Immunology and Transplantation (DAIT) in the National Institute of Allergy and Infectious Diseases (NIAID). Study dates 2006-2009. Posted 03-10-06. (Also see: SWA: Scleroderma Sites to Surf!) |
| Welcome Emilia Pitrelli: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Emilia Pitrelli as a new or renewing member. Posted 03-10-06. (Also see: ISN Membership) |
| Welcome Judith Dulinski: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Judith Dulinski as a new or renewing member. Posted 03-10-06. |
| In Loving Memory of Jane Seeley |
 The International Scleroderma Network thanks the following people for their comprehensive donation for scleroderma research, education, support, and awareness in loving memory of Jane Seeley. Posted 03-10-06. (Also see: Donors in Loving Memory) |
Penny Casteel
Patti Harris
Tonya Hunter |
Melissa Matlock
Susan Lawless |
|
| Thank You to Donor, Audrey Love Charitable Foundation |
| The International Scleroderma Network extends our thanks to the Audrey Love Charitable Foundation for their comprehensive donation to tackle scleroderma research, support, education and awareness. Posted 03-09-06. (Also see: ISN Comprehensive Donors) |
| ISN New Page: Rheumatoid Arthritis |
| Rheumatoid Arthritis (RA) is a chronic autoimmune disease that primarily affects the joints. Topics include rheumatoid arthritis symptoms, causes, diagnosis, antibodies, scleroderma and rheumatoid arthritis, prevention, treatments, research, support, and over 25 personal stories. ISN. Posted 03-09-06. |
| 03-24-06: Bogotá, Columbiana |
 (Español/Spanish) Asociación Colombiana de Esclerodermia Tenemos programada nuestra proxima reunion para el dia Viernes 24 de Marzo, n en la Carrera 10 N º 20-19, oficina 606-A edificio Saraga de Bogotá D.C. Posted 03-09-06.
|
| Sherrill Knaggs: ISN News Manager |
 Sherrill Knaggs: ISN News Manager. Sherrill has been promoted to ISN News Manager to oversee the development of the burgeoning team that has developed under her leadership. Sherrill has been with the ISN since our launch as a nonprofit agency in 2002, and is also holds many other positions within the ISN. Posted 03-08-06. |
| Welcome Sally Kovarik: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Sally Kovarik as a new or renewing member. Posted 03-02-06. (Also see: ISN Membership |
| ISN: Amazing Virtual Volunteer Opportunities! |
| The nonprofit International Scleroderma Network is continually expanding and we have some terrific new openings for Internet volunteers, including the areas of support, website assistants, volunteer services, book promotion, donations and membership, fundraising, grant writing, translators, etc. Existing and retired volunteers are always invited to apply for additional roles or transfers, too. See our main Volunteer page for openings and applications! Reposted 03-02-06. |
| ISN Voices of Scleroderma Volume 3: Judith Thompson Devlin Signing! |
Judith Thompson Devlin has signed and sent the initial shipment of Voices of Scleroderma Volume 3 to those who contributed their story to this volume. It is packed with top notch medical information and support for scleroderma patients, caregivers, and their friends, families and doctors! The book (and book series) is for sale on Amazon and is also available by mail. Order your copies today! Reposted 03-02-06. (Also see: Voices of Scleroderma Book Series and Judith Thompson Devlin) |
| SCOT Trial: Open Enrollment, 2005-2008 |
| SCOT Clinical Trial, which stands for "Scleroderma Cyclophosphamide Or Transplantation", will compare two potential therapies: autologous stem cell transplantation versus high-dose monthly cyclophosphamide. Study dates 2005-2008. Reposted 01-11-06. (Also see: Scleroderma Clinical Trials: Current, Cyclophosphamide, Cytoxan and Stem Cell Transplantation) |
| NIH: Now Enrolling for Family/Twin Study |
 Families with Twins or Siblings where one has Systemic Rheumatic Disorders (Rheumatoid Arthritis, Juvenile Rheumatoid Arthritis, Lupus, Scleroderma, or Myositis) and one does not. Families may enroll at the NIH Clinical Center in Bethesda, Maryland, just 9 miles north of Washington, DC or at their local physician’s office. For information on the study, call the NIH patient recruiting office toll free at 1-800-411-1222 (For TTY: 1-866-411-1010). National Institutes of Health Clinical Center (NIH). Reposted 01-11-06. (Also see: Clinical Trial Open Enrollments, Scleroderma Research Registries and Causes of Scleroderma: Genetics ) |
Get our free Sclero e-Newsletter!
