ISN Donation and Web Site News |
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| May 2004 |
| Voices of Scleroderma Volume 1: Featured Story #68 of 100 |
| The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses. |
| Alex: Localised Scleroderma (Italy) I am a 34-year-old woman and I have been suffering from localised scleroderma for about 20 years... |
| Voices of Scleroderma Volume 1: Featured Story #67 of 100 |
| Valerie: Mother of Morphea Patient We noticed that our son was developing a purplish "rash" on his left leg when he was about four years old... |
| Voices of Scleroderma Volume 1: Featured Story #66 of 100 |
| Davie's Mom: Mother of Linear Scleroderma Patient Davie could be a candidate for skin grafts. If anyone has tried this I would love some input... |
| Thank you to Research Donor, Kathleen Wilson. |
| The International Scleroderma Network extends our thanks to Research Donor, Kathleen Wilson. Posted 5-26-04. (Also see: ISN Membership) |
| Welcome Lee Claflin: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Lee Claflin as a new or renewing member! Posted 5-24-04. (Also see: ISN Membership) |
| Voices of Scleroderma Volume 1: Featured Story #65 of 100 |
| Kathy Gaither: Mother of Juvenile Scleroderma Patient I decided that I was going to turn our negative experience with scleroderma into something positive for us and for other parents. |
| Voices of Scleroderma Volume 1: Featured Story #64 of 100 |
| Joy: Mom of Cassi, Who Has Morphea I carefully checked the bruises; Cassi (age 6) said that they did not hurt and she did not have anyone hit her... |
| Welcome Cynthia Grantham: ISN New or Renewing Member |
| The International Scleroderma Network welcomes Cynthia Grantham as a new or renewing member! Posted 5-21-04. (Also see: ISN Membership) |
| In Memory of Sharon Marshlack |
| The International Scleroderma Network extends our thanks to Susan Kahn for her donation in memory of Sharon Marshlack. Posted 05-20-04. (Also see: ISN: Gifts in Memory) |
| New Page: Multiple Sclerosis |
| Multiple Sclerosis Topics include symptoms, overlap, treatments, research, support organizations, personal stories and media stories about MS. New page, 05-20-04. |
| Open Position: ISN Email Support Specialist |
| ISN Email Support Specialists, Open Position Volunteer applications are now being accepted for Email Support Specialists to answer ISN site inquiry emails. New page, 05-20-04. |
| Causes of Scleroderma: Dendritic Cells |
| Causes of Scleroderma: Dendritic cells are involved in the regulation of the body's immune system response, and are thought to be a key to preventing or treating autoimmune diseases. New page, 05-14-04. |
| Voices of Scleroderma Volume 1: Featured Story #63 of 100 |
| Jo: Mother of a Child with Morphea Scleroderma Last year we noticed that our daughter had a blotchy, purple/red "rash"... |
| Burlington,Ontario Support Group Update |
| Burlington/Oakville (Ontario, Canada) Area Scleroderma Support and Information Group. New support group leader is Linda Hayes. Update, 05-14-04. |
| Voices of Scleroderma Volume 1: Featured Story #62 of 100 |
| Jane S: Mother of Morphea Scleroderma Patient In 1990 my healthy and bright six-year-old daughter complained of her right foot itching and hurting... |
| In Memory of Maxine Mackler |
| The International Scleroderma Network extends our thanks for donations in memory of Maxine Mackler. Posted 05-12-04. (Also see: ISN: Gifts in Memory) |
| Dr. Janet Pope, ISN Medical Advisory Board |
| Dr. Janet Pope: ISN Medical Advisory Board. I am a rheumatologist in Canada with a specific interest in scleroderma. I look forward to sharing my expertise with the ISN. New page, 05-10-04. /td> |
| Voices of Scleroderma Volume 1: Featured Story #61 of 100 |
| Dot: Mother of Morphea/Linear Patient I have read many of the stories posted and have felt encouraged by them... |
| Voices of Scleroderma Volume 1: Featured Story #60 of 100 |
| Bregan: Mother of Daughter with Morphea (New Zealand) My fourth child, who is now seven years old, has just been diagnosed with Morphea... |
| Dr. Liz Irvin: ISN Guide to Eye Involvement |
| Dr. Liz Irvin is the new ISN Guide to Eye Involvement. She is also the founder and moderator of the Uveitis/OID Support Group at the Massachusetts Eye and Ear Infirmary, Harvard Medical School. New page, 05-05-04. |
| Voices of Scleroderma Volume 1: Featured Story #59 of 100 |
| Bill Jordan: Surviving Boyfriend of Scleroderma Patient Wendy was heartset on dancing that evening even though she was connected to an oxygen machine... |
| Voices of Scleroderma Volume 1: Featured Story #58 of 100 |
| Star: Widow of Scleroderma Patient I am 43 and I lost my husband on October 7, 2001... |
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