ISN Donation and Web Site News |
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| April 2004 |
| ISN Nominated for Tech Award for Technology Benefiting Humanity! |
 The nonprofit International Scleroderma Network has been nominated for The Tech Museum Awards for Technology Benefiting Humanity, in the Health category. The Awards is an annual program that honors individuals and organizations that are creatively applying technology to benefit humanity. At the Awards Gala each fall, five Laureates in each category are honored, and $250,000 in cash prizes are awarded. Posted 4-30-04. |
| Voices of Scleroderma Volume 1: Featured Story #57 of 100 |
| Sonya: Surviving Daughter-in-law of Diffuse Scleroderma Patient "In Loving Memory of CB" She was told to avoid stress as stress accelerates the disease... |
| Voices of Scleroderma Volume 1: Featured Story #56 of 100 |
| Marie C: Surviving Spouse of Scleroderma Patient Dean was a strong-willed "redneck" man and was never able to accept the severity of his disease... |
| Many Thanks to Business & Legal Reports of Old Saybrook, CT |
 The International Scleroderma Network extends our thanks to Business and Legal Reports of Old Saybrook, CT, for their donation in memory of Alfred Strempel. Posted 4-28-04. |
| Many Thanks to Bosch AdW ASC Team of Anderson, SC |
| The International Scleroderma Network extends our thanks to Bosch AdW ASC Team of Anderson, South Carolina, for their donation in memory of Joyce C. Masini. Posted 4-28-04. |
| Do You Have These Gifts to Offer? |
| The nonprofit International Scleroderma Network would greatly welcome gifts-in-kind from individuals or organizations. In particular, we are seeking donations of new or gently used digital cameras, computers or laptops running Windows XP Professional, and one credit card terminal. If you have items to offer, please contact Shelley Ensz by email or phone. Posted 4-28-04. |
| Voices of Scleroderma Volume 1: Featured Story #55of 100 |
| LaVonne: Surviving Mother of a Daughter with MCTD I have no faith in doctors anymore... |
| New Page: Cancer and Scleroderma |
| Cancer and Scleroderma. Systemic sclerosis (scleroderma) may be associated with an increased incidence of cancer, including breast cancer, B-cell lymphoma, lung cancer and tongue cancer. New page 4-26-04. |
| In Sympathy |
| The International Scleroderma Network extends our sympathy to the family and friends of Alfred Strempel, and especially to his daughter-in-law, Jeanette Davis. Posted 4-26-04. |
| In Sympathy |
| The International Scleroderma Network extends our sympathy to the family and friends of Joyce Masini. Our thoughts are with you in this time of grief. Posted 4-26-04. |
| Voices of Scleroderma Volume 1: Featured Story #54of 100 |
| Krista: My Caregiver's Story I used to love to walk into the forest; I can't do that anymore... |
| New ISN Representative: Riaz Hasani, IT Specialist |
| Riaz Hasani: IT Specialist. Currently I am working on my graduate degree in Software Design and Development from University of St. Thomas in St. Paul, Minnesota. New page 4-26-04. |
| New Page: Pregnancy and Scleroderma |
| Pregnancy and Systemic Scleroderma. Resources for those with systemic sclerosis (scleroderma) who are contemplating childbearing. New page 4-23-04. (Also see: Scleroderma Symptoms) |
| Voices of Scleroderma Volume 1: Featured Story #53of 100 |
| Keenan: Surviving Son of Fibrosing Alveolitis Patient It is tough to write about, but cathartic as well... |
| New Page: Eye Involvement |
| Eye Involvement in Systemic Scleroderma. This new page features information about normal tension glaucoma (NTG) and autoimmune iritis and uveitis. New page 4-22-04. (Also see: Scleroderma Symptoms) |
| New Member of Scleroderma Webmaster's Association |
 Scleroderma and Life Insurance by Steven H. Kobrin, LUTCF. Scleroderma is an interesting condition to underwrite for life insurance. Individuals (including small business owners) must work closely with their life insurance broker to ensure the best life quote possible, given their particular sceroderma symptoms. New SWA member 4-20-04. |
| Voices of Scleroderma Volume 1: Featured Story #52 of 100 |
| Jamie: Surviving Spouse of Progressive Systemic Sclerosis Patient I hope more men will post their stories because scleroderma is rare in men... |
| Voices of Scleroderma Volume 1: Featured Story #51 of 100 |
| Chris Beck: In Memory of My Mother, Veta Breit I am very proud of the fight she put up... |
| Voices of Scleroderma Volume 1: Featured Story #50 of 100 |
| Archie Bailey: Scleroderma: Sue's Story Time has passed since Sue's death. Only those who have experienced the grieving process can understand... |
| Voices of Scleroderma Volume 1: Featured Story #49 of 100 |
| A.M. Keyes: Surviving Daughter My father died on February 9, 2002 from pulmonary fibrosis, a complication of scleroderma... |
| Voices of Scleroderma Volume 1: Featured Story #48 of 100 |
| Terry: CREST I was told that I have CREST by a doctor who saw me in a Workman's Compensation case... |
| Voices of Scleroderma Volume 1: Featured Story #47 of 100 |
| Teresa: Scleroderma I was just diagnosed a few hours ago. Tears are streaming down my face... |
| Voices of Scleroderma Volume 1: Featured Story #46 of 100 |
| Soose: Limited Scleroderma I may have had scleroderma for the last year and a half or two years and did not know it... |
| Voices of Scleroderma Volume 1: Featured Story #45 of 100 |
| Shirley Wright: Limited Scleroderma I have had this disease for over twenty years now and I plan on being around a lot longer... |
| Voices of Scleroderma Volume 1: Featured Story #44 of 100 |
| Sharon: CREST with Limited Scleroderma, Sjögren's and Pulmonary Hypertension (Australia) Day by day I discover another food I cannot eat... |
| ISN Booth at Nonprofit Career Fair, Minneapolis |
 Free event! Visit the ISN booth at the Idealist.org Nonprofit Career Fair at Coffman Union, University of Minnesota campus, on Wednesday, April 7th, from 12-4pm!
The ISN has some exciting openings for 'virtual volunteers ' who participate using their own home computers. Meet ISN founders, Shelley and Gene Ensz, too! |
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