ISN Donation and Web Site News |
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| February 2004 |
| Voices of Scleroderma Volume 1: Featured Story #27 of 100 |
| The following story is featured in the ISN's Voices of Scleroderma Volume 1 book. The book has articles by world experts in scleroderma and caregiving, including Dr. Joseph Korn, as well as true personal stories from those affected by scleroderma and related illnesses. |
| Awilda: CREST and Morphea Scleroderma In 1971, I had the first symptoms of Raynaud's. I'm 53 years old and live in Puerto Rico... |
| ISN: What in the world is Scleroderma? New PDF Brochure. |
| The ISN has just released, in PDF format, our What in the world is scleroderma? (English version) brochure. Site visitors may freely read or print this brochure for distribution to their family, friends, classrooms and physicians. They may also use it to display publicly to help raise awareness of scleroderma in their community. 2-11-04. |
| Voices of Scleroderma Volume 1: Featured Story #26 of 100 |
| Arianna: Early LcSSc with lung involvement, recent alveolitis, and grade II esophagitis with hiatus hernia (Italy) What I want is to struggle against this disease to stop it from beating me... |
| Arianna: Early LcSSc con interessamento polmonare (DLCOc=44%), recente alveolite polmonare, esofagite di II grado con ernia iatale Mi chiamo Arianna e sono una ragazza di 26 anni... |
| Voices of Scleroderma Volume 1: Featured Story #25 of 100 |
| Angiola: Progressive Systemic Scleroderma (Italy) I would very much like to find other people that find themselves in a similar situation... |
| Angiola: Sclerodermia Sistemica Progressiva La sclerosi sistemica progressiva mi è stata diagnosticata nel febbraio 1997, quando avevo 57 anni, la diagnosi è stata immediata... |
| Voices of Scleroderma Volume 1: Featured Story #24 of 100 |
| Aileen: CREST Scleroderma Oh, the wonderful feeling to have a doctor sit there and tell you that you are not imagining things... |
| Voices of Scleroderma Volume 1: Featured Story #23 of 100 |
| Rose: Diffuse Scleroderma The decision to amputate was made, and the pain that kept me up in tears all night, every night was finally gone... |
| Voices of Scleroderma Volume 1: Featured Story #22 of 100 |
| Marilyn: Diffuse Scleroderma Being that I was a nurse you would think that I should have picked up on this myself... |
| Voices of Scleroderma Volume 1: Featured Story #21 of 100 |
| Easter (Hiwee Be-Maria): Scleroderma My name is Easter, and I'm Iraqi. About 16 years ago I began my struggle with scleroderma... |
| Voices of Scleroderma Volume 1: Featured Story #20 of 100 |
| Greg: Diffuse Scleroderma and Lung Transplant Patient I asked Dr. Frank C Arnett to see if I was a candidate for a lung transplant... |
| Voices of Scleroderma Volume 1: Featured Story #19 of 100 |
| Deborah Peck: Diffuse Systemic Sclerosis I first noticed my hands turning white in 1992 after my father's funeral... |
| Voices of Scleroderma Volume 1: Featured Story #18 of 100 |
| Carol Langenfeld: Diffuse Scleroderma People tell me that I have earned my credentials as a "certified patient" the hard way... |
| Voices of Scleroderma Volume 1: Featured Story #17 of 100 |
| Valeria: Systemic Sclerosis (Italy) I am a 21-year-old woman, and at the age of nine I was diagnosed with systemic sclerosis... |
| (Italiano) Valeria - Sclerosis sistemica Mi farebbe anche molto piacere sapere se esiste qualche centro, possibilmente non troppo lontano da Roma... |
| Voices of Scleroderma Volume 1: Featured Story #16 of 100 |
| Pushpa: Scleroderma with Raynaud's (Bangalore, India) Around my 21st winter, the year of 1982 in Calcutta, India, is when I first noticed my nails and fingers were turning blue when exposed to the cold... |
| Voices of Scleroderma Volume 1: Featured Story #15 of 100 |
| Laura W: Scleroderma, Sjögren's, Raynaud's and IBS I am glad to finally have an answer after years of tests, with no results... |
| Voices of Scleroderma Volume 1: Featured Story #14 of 100 |
| Kathi: Scleroderma/Lupus I am forty-three years old and have not been feeling well for ten years... |
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