ISN Donation and Web Site News for 2002

December 2002

New Member of Scleroderma Webmaster's Association:

Scleroderma (Systemic Sclerosis) is a new website by Dr. Debabrata Bandyopadhyay of Calcutta, India, who is Associate Professor and Head of the Dermatology Dept. at R. G. Kar Medical College and Hospitals. 12-23-02.

Dorota Dziadzio-Kouris: ISN German Translator

Dorota Dziadzio-Kouris: ISN German Translator Dorota is our new German translator. New page, 12-22-02.

New Russian Page

Russian Story Submission Form by Yelena Makarov, ISN Russian Translator. New page. 12-12-02.

New Scleroderma Webmaster's Association (SWA) Member:

In Memory of Mom by Raymound Girouard. New member. 12-05-02.

ISN Fibromyalgia Guide & ISN Story Editor

Sherry Jo Young: ISN Fibromyalgia Guide and ISN Story Editor. Page updated and photo added. 12-02-02.

ISN Medical Advisory:

Dr. Magdalena Dziadzio, Chair of the ISN Medical Advisory is now doing research at Royal Free Hospital in London. Page updated. 12-2-02.

Chair of ISN Legal Advisory Council:

Linda K. Hopkins: Chair of ISN Legal Advisory Council Linda is an attorney and author of a book on intellectual property policies in the United States federal government. She has advised the Office of the President of the United States on intellectual property policy in technology programs. She will be advising the ISN Board in legal and public policy decisions. New page. 12-01-02.

ISN Donation and Web Site News: November 2002

ISN Spanish Version:

(Spanish) La Esclerodermia Lineal traducida por Gabriela Hebin. 11-23-02.

ISN Russian Version

(Russian) What is Scleroderma? translated by Yelena Makarov. This new page marks the 17th language for this website. 11-21-02.

New ISN volunteer openings include:

ISN Grant Writer Position Description. New page, 11-21-02.

ISN SWA Digital Artist. New page, 11-21-02.

ISN Desktop Publisher Position Description. New page, 11-21-02.

ISN Development (Fundraising) Chair Position Description. New page, 11-21-02.

ISN Information Technology (IT) Director: Position Description New page, 11-21-02.

ISN Russian Translator: Yelena Makarov

(English) Yelena Makarov: ISN Russian Translator New page, 11-20-02.

ISN Japanese Translator: Maki Hasegawa

(English) Maki Hasegawa: ISN Japanese Translator New page, 11-18-02.

ISN Donation and Web Site News: October 2002

Tech Museum Awards: Technology Benefiting Humanity

Tech Museum Awards: Technology Benefiting Humanity At the invitation of the judges, the ISN's SCLERO.ORG website was nominated for this year's Tech Awards for Humanity. This award is for innovators and visionaries from around the world who are applying technology to profoundly improve the human condition. Tech Museum 10-31-02.

ISN Chinese Translation by Jie Jackson

欢迎:硬皮病的概况 (Simplified Chinese) Welcome to SCLERO.ORG by Jie Jackson, a medical student in China. This new page is our 16th language! 10-25-02

ISN Chinese Translator: Jie Jackson

(English) ISN Simplified Chinese Translator: Jie Jackson. Jie is a graduate student at school of the College of Traditional Chinese Medicine of Zhejiang, China. New page, 10-25-02.

ISN Representative: Dr. Alexandra Balbir-Gurman

(Russian version) Dr. Alexandra Balbir-Gurman, ISN Russian Translator. Dr. Balbir-Gurman is an Israeli rheumatologist. New page, 10-11-02.

ISN Kiswahili (Swahili) Translator: Justus Bahati Wanzala

(Kiswahili) Justus Bahati Wanzala: Kalimani wa Shirika la ISN wa Lugha ya Kiswahili New page, 10-12-02.

(English) Justus Bahati Wanzala: ISN Kiswahili Translator. Kiswahili (Swahili) is one of the languages of Kenya, Africa. New Page, 10-11-02.

Scleroderma Information by Wayne Lowe

Scleroderma Information is a new web page by Wayne Lowe, who is a new member of Scleroderma Webmaster's Association. 09-27-02.

Saba Sadiq: New ISN Story Editor

Saba Sadiq: ISN Story Editor (Website). New page, 09-27-02.

September 2002

Scleroderma Information by Wayne Lowe, new member of Scleroderma Webmaster's Association. 9-27-02.

Saba Sadiq: ISN Story Editor (Website). New Page, 09-27-02.

San Francisco Bay Area Scleroderma Support Group. New page, 09-22-02.

(German) Vorlage der Krankengeschichte bzw. Durchsichtsformular (Story Submission Form) by Dorota Dziadzio. New page, 09-19-02.

Erin Stanley: ISN Senior Editor. New page, 09-18-02.

August 2002

(Turkish) Zor tani (Difficult Diagnosis) translated by Mehmet Kalender. New page, 08-30-02.

(Turkish) CREST Nedir? (CREST Scleroderma) translated by Mehmet Kalender. New Page, 08-30-02.

(Turkish) Skleroderma Tipleri: Genel Bakis (Types of Scleroderma) translated by Mehmet Kalender. New page, 08-29-02.

(Turkish) Cocukluk Cagi Sklerodermasi Nedir? (Juvenile Scleroderma) translated by Mehmet Kalender. New page, 08-28-02.

(Nederlands) Hoe plaats je je verhaal? (Story Guidelines) translated by Ans Mens. New page, 08-26-02.

Dr. Alexandra Balbir-Gurman, ISN Russian Translator and ISN Russian Medical Editor. New page, 08-26-02.

(Turkish) Overlap (Ust Uste Binmis) Skleroderma (Overlap) translated by Mehmet Kalender. New page, 08-23-02.

Gwen Magnani, ISN French and Italian Translator. New page, 08-23-02.

(Turkish) Morphea Nedir? (Morphea Scleroderma) translated by Mehmet Kalender. New page, 08-22-02.

ISN Contributing Author: Dr. Vanessa Malcarne. New page, 08-21-02.

(Turkish) Cizgisel Skleroderma Nedir? (Linear Scleroderma) translated by Mehmet Kalender. New page, 08-20-02.

(Turkish) Sinirli Skleroderma Nedir? (Limited Scleroderma) translated by Mehmet Kalender. New page, 08-20-02.

(Turkish) Yaygin Skleroderma Nedir? (Diffuse Scleroderma) translated by Mehmet Kalender. New page, 08-20-02.

Tashamee Williams is the new ISN Email Support Guide. New page, 08-19-02.

(Turkish) Gonderiniz Icin Tesekkurler (Thanks for Submitting Story Form) translated by Mehmet Kalender. New page, 08-14-02.

(Spanish) ¡Gracias por su Aporte! traducida por Luis Ydler. New page, 08-14-02.

(Turkish) Hikaye sunusu veya Yenileme Formu (Story Submission Form) translated by Mehmet Kalender. New page, 08-11-02.

(Spanish) Esclerodermia: Presentación de Relato ó Forma de Revisión traducida por Luis Ydler. New page, 08-10-02.

Bunny Gardner is the new ISN Awards Coordinator for Scleroderma Webmaster's Association. New page, 08-8-02.

(Turkish) ISN: Skleroderma by Mehmet Kalender of Istanbul 8-7-02; the ISN Turkish Version marks the 15th language for this website. Mehmet is a medical student in Turkey.

Mehment Kalender is the new ISN Turkish Translator. He is a 5th year medical student in Istanbul, Turkey. 08-06-02.

Scleroderma Photos Wanted We want photos of scleroderma symptoms to post on this web site or use in our printed materials to illustrate symptoms such as Morphea, Linear, Sclerodactyly, Raynaud's, Calcinosis, Telangiectasia (etc). International Scleroderma Network (Photo at left: Alopecia from ISN Photo Repository)

July 2002

(Italiano) Yahoo! Gruppi Italia Sclero-IT Benvenuti nel gruppo di supporto per i visitatori del sito web SCLERO.ORG, la versione Italiana del sito www.sclero.org. 07-04-02

New ISN Guide Toni Wilcher, is our new ISN Clinical Trials Content Guide. She will keep us updated on any new clinical trials or medications. 07-03-02.

June 2002

(Italiano/English) Kevin Howell. New page, 06-17-02.

Fibromyalgia with ISN Guide Sherry Jo Young new page on ISN. 06-10-02.

(Polski/English) Dr. Roy Smith. New page, 06-05-02.

Scleroderma Webmaster's Association: May 2002

New ISN Guide Sherrill Knaggs, is our new ISN News Guide. She will keep our Newsroom updated on scleroderma medical and media news. New page, 05-24-02.

(Italiano/English) Il dott. Mario Gismondi New page, 05-23-02.

Scleroderma Webmaster's Association: April 2002

Scleroderma Association of Queensland has a new email address. 04-18-02.

Scleroderma Webmaster's Association: March 2002

Raynaud's Patient Stories with ISN Guide Sherry Jo Young. New page, 03-29-02.

Scleroderma Family Registry and DNA Repository All scleroderma patients (including children) in the United States and Canada are encouraged to register! New page, 03-25-02.

Scleroderma Webmaster's Association: Feb. 2002

(Polski) Leczenie objawu Raynauda was translated by Dr. Magdalena Dziadzio. New page, 02-21-02.

(Polski) Formularz przedstawienia historii lub wniesienia poprawek was translated by Dr. Magdalena Dziadzio. New page, 02-07-02.

(Kannada) What is Scleroderma? page was updated by Kishori Mundargi. Page updated, 02-6-02.

Scleroderma Webmaster's Association: Jan. 2002

Raynaud's Patient Stories. This new page was researched by Sherry Jo. New page, 03-29-02.

(Kannada) Types of Scleroderma was translated by Kishori Mundargi. New page, 01-29-02.

(Italiano) Cavo Orale was medically edited by Dr. Magdalena Dziadzio. 01-27-02.

Atrophoderma of Pierini and Pasini (APP) is similar to Morphea Scleroderma. Some doctors think it represents a late-stage Morphea. New page, 01-26-02.

Greek: Dimitra Stafilia's Story (English and Greek versions). Dimitra is the ISN Greek translator. New pages, 01-17-02.

Stockholm Challenge SCLERO.ORG has been accepted as an entrant in the prestigious Stockholm Challenge Award, the international IT-awards program that has made Stockholm a hub in a global movement trying to bridge what is usually called the digital divide. 01-16-02

Polski: Co to jest objaw Raynauda? was translated into Polish by Dr n.med. Magdalene Dziadzio. New page, 01-15-02.

Italiano: Implicazioni Cardiache was medically edited by Dr. Magdalena Dziadzio. 01-14-02.

Saskatchewan Scleroderma Self Help Group has joined the Scleroderma Society of Canada, and launched their own web page by Linda Schauf. 01-13-02.

The (U.S.) Scleroderma Foundation will now be maintaining all support group pages for their groups. ISN continues to offer Free Home Pages for any other scleroderma support groups in the world. 01-9-02.

The Kahnawake Support Group is now affiliated with the Scleroderma Society of Canada.

The Scleroderma Association of Winnipeg Inc. is now affiliated with the Scleroderma Society of Canada.

Canada

Saskatchewan Scleroderma Self Help Group. Linda Schauf.

Greece (Greek)

ISN: Greek by Dimitra Stafilia. ISN.

India

ISN: Kannada by Kishori Mundargi. ISN.

Canada

Scleroderma Society of Canada A major Canadian resource, with support groups in Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland, Labrador, Nova Scotia, Ontario, Prince Edward Island, Quebec, and Saskatchewan.

SWA: New Members (Most recent listed first)

Visit the SWA's Scleroderma Sites to Surf! Main Directory. We make it easy to find scleroderma information on the Internet. All our services are free, to members and visitors alike.

Introducing our newest Scleroderma Webmaster's Association members:

Visit the SWA's Scleroderma Sites to Surf! Main Directory

Saskatchewan Scleroderma Self Help Group. Linda Schauf.

ISN: Greek by Dimitra Stafilia. ISN.

ISN: Kannada by Kishori Mundargi. ISN.

Sklerodermia. Dr n.med. Magdalen Dziadzio ISN

The Scleroderma Society 3 Caple Rd, London NW10 8AB Tel: 020 8961 4912 Email: kimflig@bigfoot.com. Kim Fligelstone, Chairperson.

Ontario: Ottawa Scleroderma Support. ISN.

India Scleroderma Support of New Delhi. ISN.

Thailand Scleroderma Support. ISN.

Arab Scleroderma Support Group (United Arab Emirates) ISN.

Anchorage, Alaska: Scleroderma and Autoimmune Support Group. ISN.