Hello, I am | Scleroderma News Release |
| ISN/SCTC Research Fund Announced |
12-7-02 for Immediate Release The International Scleroderma Network (ISN) and the Scleroderma Clinical Trials Consortium (SCTC) have formed an alliance to create a special ISN/SCTC Research Fund for international scleroderma research. The International Scleroderma Network is a nonprofit agency that serves people affected by scleroderma. The ISN's website at sclero.org offers 800+ pages in more than 16 languages. The ISN also publishes the Voices of Scleroderma book series. The Scleroderma Clinical Trials Consortium (SCTC) is an international group of medical institutions interested in advancing the science and practice of therapeutic clinical trials for scleroderma. The SCTC sponsors educational and research programs in the area of clinical trials and scleroderma and fosters communication among investigators involved in scleroderma research. The ISN/SCTC Research Fund will be funded with ten percent of all general donations to the ISN, as well as all general funds it receives that are restricted for research. It is estimated that the first year contributions will be minimal, since ISN is still in its start-up phase and has not yet fully launched its membership and fundraising programs. As part of this agreement, the ISN Medical Advisory, led by Dr. Magdalena Dziadzio of Royal Free Hospital in London, will participate in the SCTC collaborative process for recommending research projects to the SCTC Board of Directors. Negotiators for this collaboration were Dr. Peter Merkel of the Rheumatology Department of Boston University MedicalCenter for the SCTC, Shelley Ensz, Founder and President of the ISN, and Dr. Magdalena Dziadzio, Chair of the ISN Medical Advisory. A presentation and announcement of this agreement was recently made by Dr. Merkel at the SCTC meeting during the American College of Rheumatology (ACR) Conference. Dr. Merkel said, "Our entire system of giving grants is maturing and this is the perfect time for this alliance. This is clearly a 'win-win' for everyone." Dr. Dziadzio wholeheartedly agrees. "I am happy to see this alliance of the international patient and medical organizations, because it is a positive step toward supporting international research efforts for scleroderma." Shelley Ensz adds, "Everyone who is interested in supporting the international efforts to combat scleroderma may visit the our Sclero.org website or call us toll free (in U.S. only) at 1-800-564-7099. "Generous support of the ISN/SCTC Research Fund will herald a new wave of international research efforts to fight this dread disease. We hold firm to the belief that these efforts will eventually lead to a medical victory over scleroderma." For further information, contact: Shelley Ensz |
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