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janeywillisHello, I am Janey Willis, ISN News Director and ISN Asst. Webmaster. David Becker, ISN Assistant News Guide researches our Autoimmune News section. Jeannie McClelland, ISN Assistant News Guide, researches Scleroderma Medical and Media News. Assistant News Guide Lisa Bulman posts these stories to our Sclero Forums.
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September 2008
For Some Doctors, Empathy Is in Short Supply. While doctors are able to address such concerns as medication issues, missed appointments, or pain, they tended to skirt "existential" issues, such as questions dealing with life and death, which are of paramount importance to most patients. Washington Post. 09/22/08.
Time to start the Vitamin D supplements again. Research continues to strengthen the theory that this vitamin has been significantly underestimated over the years. Studies have consistently linked low levels of Vitamin D with breast, prostate, and colon cancer, heart disease, diabetes and numerous other autoimmune disorders. As physicians make Vitamin D level testing part of their routine testing, some are finding that almost 60% of their patients are low. (Note from ISN: Always consult your physician BEFORE taking any supplements.] The Daily Gleaner. 09/27/08. (Also see: Vitamin D Deficiency)
Can I be ill and happy? Philosophy lecturer, Havi Carel debated that in theory. Then she had to put it into practice. Telegraph.CO.UK. 0/15/08. (Also see: Coping)
Rural women needed for chronic illness study. Women interested in participating in the group must be physically able to use a computer, have a basic knowledge of how to use a computer, be between the ages of 35 and 65 and be living with a chronic disease such as arthritis, cancer, multiple sclerosis, diabetes or heart disease. Montana State University. March 12, 2008.
Family fights to shed light on painful, fatal skin disease. Thirteen years ago, Linda Counterman noticed a change in the joints throughout her body. It was painful to move her fingers, and with time, it became more difficult to walk long distances. 9News.com. 09/11/08.
New Approaches May Help Tame Scleroderma. Some new therapies are beginning to have an impact on the vasculopathic and fibrotic components of the disease. Better understanding of the key signaling pathways in pulmonary arterial hypertension (PAH), such as the endothelin pathway, has led to the development and approval of agents such as bosentan, sildenafil, and ambrisentan. N.Walsh. Skin & Allergy News. Volume 39, Issue 8, Page 65 (August 2008) (Also see: PAH and Scleroderma Treatments)
UT Medical School receives $6 million NIH grant to study scleroderma. The medical school will conduct a genome-wide association study that will attempt to identify gene regions that influence a patient’s susceptibility to a serious form of scleroderma known as systemic sclerosis. EurekAlert. 09/10/08.
Survival Instincts Propel 'Difficult Patient' To Insist On Quality Care. Michelle Mayer had to become a "difficult patient" before she could get her physicians to accurately diagnose the disease that was destroying her health. Once the diagnosis was made, she had to continue to be what many physicians describe as "difficult" before she could get the best treatment for scleroderma. EurekAlert! 09/10/08. (Also see: Physician/Patient Relationship)
The Healing of a Serious Illness. The most effective strategy is to confront the problem, act accordingly, and let whatever happens in the future flow from your actions rather than your fears. Joel Nathan. HealthNews. 08/30/08. (Also see: Emotional Adjustment)
We want the children to have normal lives. Paul and Jennifer Corder have four children—Eliza, Elias, Pearl and Nika. Pearl and Nika have unique medical problems. Cleveland Daily Banner. 08/06/08.
Why caregivers suffer more illness. Something goes awry in the white blood cells of caregivers of the elderly or chronically ill to increase their disease risk, U.S. and Canadian researchers say. UPI.com. 08/28/08. (Also see: Caregivers)
Are your feet swollen? If you find that your feet don’t fit into your shoes anymore or that pressing down with a finger leaves a ‘pit’ on the leg or foot, you need to check it out. The Hindu. 08/31/08.
Making pneumo shot a rule rather than an exception. The individual and community protection that pneumococcal vaccine could provide are cost savings to everyone involved when both direct and indirect costs are considered. Philippine Daily Inquirer. 08/15/08. (Also see: Vaccinations)
 
Go to Scleroderma Media News: August 2008
 
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