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| Newsroom |
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| Recent ISN Website News and New Patient Stories |
| Finnish is ISN's 23rd Language! |
| (Suomi/Finnish) Mit� skleroderma on? (What is Scleroderma?) by ISN Finnish Translator, Emmi Myohanen, launches the 23rd language for the nonprofit International Scleroderma Network's SCLERO.ORG website. (Finnish) Skleroderma on harvinaine, krooninen autoimmuunisairausa, joka koettelee arviolta 300 000 amerikkalaista, erityisesti naisia jotka ovat 30-50 vuotiaita sairauden puhjetessa. Yleisesti ottaen sit� esiintyy yhdell� tuhannesta amerikkalaisesti, ja nais-potilaiden suhde mies-potilaisiin on noin nelj�n suhde yhteen. Posted 11/10/09. (Also see: Emmi Myohanen and ISN Finland Support Group) |
| Do you have digital (finger) ulcers? |
| The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 11/10/09. (Also see: DISTOL Trial) |
| ISN is Tackling Scleroderma Now, Thanks to Recent Donors! |
| The nonprofit International Scleroderma Network, home of sclero.org, thanks the following members and supporters for their donations or purchases of scleroderma books, brochures, newsletters, memberships, and awareness bracelets: Dianne and Vasiliki. 11/10/09. (Also see: Sclero Shop/Donate) |
| In Loving Memory of Roger Ford (Birdman) |
| Obituary: Roger Dean Ford. Survivors include his beloved wife and best friend, Julie Ford of Oak Island, NC. Memorials should be made to International Scleroderma Network, 7455 France Ave S # 266, Edina MN, 55435 or online at www.sclero.org. Arrangements are in the care of Heritage Funeral Home, Weddington Chapel. Online condolences may be left at www.heritagefuneral.net. (Also see: ISN Donate in Memory) Thank you to donors in his memory:
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| Actelion Pharmaceuticals is Tackling Scleroderma Now! |
 The International Scleroderma Network thanks Actelion Pharmaceuticals for their generous grant to tackle scleroderma and pulmonary hypertension now! Reposted 11/02/09. |
| Donate Your Car/Truck/Motorcycle/Boat! |
 Donate Your Vehicle. The nonprofit International Scleroderma Network accepts cars, trucks, motorcycles, snowmobiles and boats -- from the U.S. and Canada. To donate your vehicle, please call toll free 1-877-537-5277. Donate for "ISN". International Scleroderma Network, www.sclero.org. Reposted 11/02/09. (Also see: Donate Your Vehicle) |
| New Personal Stories |
| Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end... |
| (Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia... |
| (Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was... |
| Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information... |
| More New Stories: August-November 2009 |
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Polski | Russian | Spanish | Turkish | Other Languages |
| We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes. |
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| Go to Website News: October 2009 |
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