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| Recent ISN Website News and New Patient Stories |
| 2009 ASCLER Revista: Esclerodermia con Calidad de Vida (PDF) —Gratis! |
 (Español/Spanish) En la Asociación Colombiana de Esclerodermia ASCLER celebramos el cinco aniversario de su fundación con el lanzamiento de su segundo Revista: 2009 Esclerodermia con Calidad de Vida (PDF). Esta es una publicación en español que ofrece orientación, información, esperanza y ayuda a todos los pacientes que padecen de la enfermedad, a sus familiares o relativos, a la comunidad médica y a toda persona interesada en el tema. Posted 01-06-09. |
| In Loving Memory of Tom Regensburger |
 The nonprofit International Scleroderma Network thanks the following people for their comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses, in loving memory of Tom Regensburger: Dee Gable, Thomas Furey, Robert Klimm, William R. Johnson Sr., Robert Marant, Ilene Martin, Joan Ruhl, and Jill Swiatowicz. Posted 01/05/08. (Also see: Donate in Memory) |
| Thanks to Debra Barrales: Silver Sponsor of Earl Manns Marathons! |
| The nonprofit International Scleroderma Network thanks Debra Barrales for her Silver Sponsorship for upcoming Earl Manns Marathons. Her comprehensive donation provides research, support, education and awareness for scleroderma and related illnesses. Posted 01/02/09. (Also see: Donate and Earl Manns) |
| Thanks to Rev. Griffith and Evelyn Williams! |
| The nonprofit International Scleroderma Network thanks the Reverend Griffith and Evelyn Williams for their comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. Posted 12/30/08. (Also see: Donate) |
| ISN Fund: In Honor of Caregivers |
 The nonprofit International Scleroderma Network thanks Carrie Maddoux for her donation "In Honor of Caregivers", with special recognition to Lori Bass, David Knaggs, and CE Tanner. The fund provides comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. New fund totals will be posted each month. Help us show our appreciation for all caregivers by donating now! Posted 12/29/08. (Also see: Donate in Honor of Caregivers) |
| Thanks to Rose Adkins |
| The nonprofit International Scleroderma Network thanks Rose Adkins for her comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. Posted 12/27/08. (Also see: Donate) |
| Thanks to Monica Serianni |
| The nonprofit International Scleroderma Network thanks Monica Serianni for her comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. Posted 12/21/08. (Also see: Donate) |
| ISN Fund: In Honor of Caregivers |
| The nonprofit International Scleroderma Network has launched a new fund, "In Honor of Caregivers". The fund provides comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. New fund totals will be posted each month. Help us show our appreciation for all caregivers by donating now! Posted 12/19/08. (Also see: Donate in Honor of Caregivers) |
| Welcome New ISN Affiliate: Finnish Scleroderma Association |
 Welcome New ISN Affiliate: Finnish Scleroderma Association! The Finnish Scleroderma Association, Suomen Skleroderma Yhdistys ry, has become an affiliate of the nonprofit International Scleroderma Network. The association is led by Maria Paiho-Vartiainen. Posted 12/19/08. |
| Thanks to Kathy Baxter and United Way! |
| The nonprofit International Scleroderma Network thanks Kathy Baxter for her comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses, through United Way. Posted 12/19/08. (Also see: Donate) |
| Thanks to Daniel and Diane Doiron! |
| The nonprofit International Scleroderma Network thanks Daniel and Diane Doiron for their comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses in loving memory of Violet Doiron. Posted 12/19/08. (Also see: Donate) |
| Thanks to Earl and Delana Manns! |
| The nonprofit International Scleroderma Network thanks Earl and Delana Manns for their comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses. Posted 12/19/08. (Also see: Earl Manns and Donate) |
| Thanks to Arnold Slotkin! |
| The nonprofit International Scleroderma Network thanks Arnold Slotkin for his comprehensive donation to provide research, support, education and awareness for scleroderma and related illnesses, in memory of Marta Marx. Posted 12/19/08. (Also see: Donate) |
| Welcome ISN Assistant News Guide: Jeannie McClelland |
 ISN Assistant News Guide: Jeannie (JJ Knitter) McClelland. Like many of us I had difficulty getting a diagnosis and once I did, even more difficulty finding out about the 'elephant in the room'. That's why I'm especially pleased to be able to volunteer to help with the ISN Newsroom. I'd like to help people have good access to the all latest information about scleroderma. Posted 12/09/08. |
| ISN SCLERO.ORG Newsletter: Free Sample Issue! |
 ISN SCLERO.ORG Newsletter: Free Sample Issue! This is also a great time to help us tackle scleroderma. If you would like a free subscription, just write in "FREE" on the enclosed donation/order form. (Also see: Donate/Join/Shop) |
| Venezuela Revista: Esclerodermia y Algo Mas (FLASH Document) —Gratis! |
 (Español/Spanish) En la Grupo de Apoyo de Venezuela contra la Esclerodermia: Revista:Esclerodermia y Algo Mas (FLASH Document) —Gratis! Esta es una publicación en español, 41 paginas.
(English) The Scleroderma Support Group of Venezuela (which is an affiliate of the ISN) has published a 41-page online FLASH magazine, in Spanish, Escleroderma y Algo Mas, which is free! Reposted 12/02/08. |
| Mila: Morphea Now I am twenty-five years old, and that spot has grown throughout my right leg and on one side of my belly button... |
| (Español/Spanish) Mila: Morfea Hoy en día tengo 25 años y esa mancha está en toda mi pierna derecha y al lado de mi ombligo... |
| (Español/Spanish) (Update) Jeins: Esclerodermia Sistemica Difusa y Dermatopolimiositis Ya había escrito mi historia hace 3 años cuando recién estaba pasando por la enfermedad. Para quienes no lo saben tengo esclerodermia y dermatomiositis desde los 19 años. |
| Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite... |
| (Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito... |
| Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for... |
| (Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on... |
| More New Stories: November 2008 |
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