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| Media & Stories |
| Local man completes stem-cell therapy. Randy suffers from systematic scleroderma, a disease that affects the organs of the body and hardens the skin. The Dupreys and their young son, Alek, went to Duke University so Randy could undergo research-based stem-cell therapy to try to help his condition. PressRepublican.com. 06/30/08. |
| Fibromyalgia: Little understood, often frustrating. You wouldn't know it by looking at her, but at any given moment Dana Poole hurts all over. In addition to widespread pain, patients may complain about fatigue and sleep disturbances, depression, headaches, irritable bowel syndrome and heightened sensitivity. CNN.com./Health. July, 2008. (Also see: Fibromyalgia) |
| How Cells Die Determines Whether Immune System Mounts Response. Every moment we live, cells in our bodies are dying. One type of cell death activates an immune response while another type doesn't. This finding eventually could have important implications in the treatment of autoimmune diseases and cancer. NewsWire. 07/15/08. (Also see: Causes of Scleroderma and Autoimmunity) |
| Ask The Mayo Clinic: Causes and treatments for pulmonary fibrosis. I've had numerous bouts of pneumonia over the years. Now I've been told that I have pulmonary fibrosis. Can you tell me what to expect and is there anything I can do? SeattlePI.com. 06/08/08. (Also see: Pulmonary Fibrosis) |
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| Tackling Scleroderma! |
| Tackling scleroderma in July 2008 through donations, memberships, books, brochures and awareness bracelets: |
Sonya Eastmond
Microsoft
Tara Brown
Michael Wozniak
Actelion
Kathy Baxter
United Way of Snohomish County
Winn Schillberg
Lee Warner Stainbank
Jacquelyn Martinez
Samantha Banks
Carol Sheehan
Updated 07/23/08. |
| Earl Mann's Family Visits Sclero.org! |
The Earl Mann's Family visited ISN headquarters in Minnesota, following completion of his second marathon-running ISN fundraiser in Missoula, Montana. Pictured from left are his wife, Lanie; Shelley Ensz, ISN Founder and President; Earl Manns, ISN Fund Raiser, and their daughters Faith, Mya and Madison. (Also see Earl Manns, and Shelley Ensz.) Posted 07/21/08. |
| Scleroderma Can Koozies Now Available! |
Scleroderma Can Koozies! Keep your hands warm with cold pop cans and help raise awareness of scleroderma at the same time! Can koozies now available, $2.50 each, minimum order of 4 ($10), please. Posted 07/21/08. |
| 2008 Scoring for Scleroderma Recap! |
Lisa Bulman's 3rd Annual Scoring for Scleroderma Soccer Tournament was held Friday evening, June 20, 2008, at the Canton Sportsplex in Canton, Massachusetts. The event was a huge success, raising nearly $10,000 for scleroderma! Our special thanks to Platinum Sponsor, Actelion. Read more... |
| In Loving Memory of
Kristin A. Hubartt |
| The nonprofit International
Scleroderma Network thanks Gary Hubartt for his donation in loving memory of Kristin A. Hubartt. (Also see: Donations in Memory) Posted 07/14/08. |
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