TV Video: Hannah - Health Insurance Story. View her fight for insurance coverage for the SCOT Trial, with David Becker, ISN Assistant News Guide.
Tackle Scleroderma! Join/Shop/Donate
SCLERO.ORG by the nonprofit International Scleroderma Network (ISN) is a full-service nonprofit charitable foundation providing stellar research, support, education and awareness
Search sclero.org:

ISN's Voices of Scleroderma Book Series
Books feature the stories from sclero.org!
Availability by Country/Currency
Voices of Scleroderma Volume 1
 Voices of Scleroderma Volume 2
Voices of Scleroderma Volume 3
Voices of Scleroderma Volume 2: Search Inside!

Voices of Scleroderma Volume 2, Search InsideVoices of Scleroderma Volume 2 features 100 patient and caregiver stories, in 5 languages, as well as articles by world experts in scleroderma.

Contributing professionals for Voices of Scleroderma Volume 2 include Professor Carol Black, Dr. Christopher Denton, Dr. L. Nandini Moorthy, Dr. James Seibold, Dr. Maria Trojanowska, Kevin Howell, and Dr. Vanessa Malcarne.

For a complete listing of other places to buy these books, for individuals, booksellers and libraries, by country and currency, see Voices of Scleroderma: Availability by Country/Currency.

A few of the stories in Volume 2:
1. Sissy: Spouse of Progressive Systemic Scleroderma Patient What do people do who are unfamiliar with medical terms, insurance problems, and changes in the disease process...
2. Cathy B: Spouse of Scleroderma Patient I am looking for other wives who also want someone to talk to and share stories or ideas with...
3. Eliza: Daughter-in-Law of Morphea Patient (Poland) Who should we listen to? Who is right? Where should we look for help?
4. Janice: Daughter of Scleroderma Patient (Brazil) I have lupus and my mom has scleroderma. She is sixty-two years old and does not know that I am trying to understand her illness better...
5. Luis: Son of Scleroderma PatientSpain) I believe my mother�s illness was caused by the depression she suffered due to the death of my thirteen year old brother...
6. Mani: Son of Systemic Scleroderma Patient (Hyderabad, India) My mother was always complaining of breathlessness, slight fever, and nails and fingers turning blue when exposed to cold air...
9. Mary Theresa: Daughter of Diffuse Scleroderma with CREST PatientOver the years we had all been in denial, ignoring the fact that we knew that she had a serious disease that can be fatal...
10. Debby B: Systemic SclerosisI began experiencing unexplained aches and fatigue, along with swelling and numbness in my hands, at the end of 1999...
 
Go to Voices of Scleroderma Volume 3
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
© Copyright 1998-2009 International Scleroderma Network
All Rights Reserved
Sclero Forums   Home   Join/Shop/Donate   Medical   News   Support   Translations   Search