| Systemic Sclerosis: Limited Scleroderma |
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| Limited Scleroderma Patient and Caregiver Stories |
| Amy B: Limited Scleroderma with CREST I am a full time pharmacist in a pediatric hospital. In February or March of this year, I began to be very intolerable of the cold... |
| Angela O: CREST Now, the calcinosis is so bad on my fingers, that I find ordinary chores harder and harder... |
| Brenda: Limited Scleroderma, CREST, Raynaud's I was sick for five or six years, telling doctors how much pain I was in... |
| Christene: Limited Scleroderma I was diagnosed when I was just nineteen and at that time it was one of the scariest moments of my life... |
| Circadiano: Limited Scleroderma with Raynaud's in One Finger (Italy) About ten years ago she was diagnosed with lupus.... |
| D.M. Hoffe: Progressive Systemic Sclerosis (Scleroderma CREST) After an endoscopy it was discovered I had a Watermelon Stomach... |
| Dee B: Limited Scleroderma/CREST Syndrome I also
had the problem with people saying I was a hypochondriac, as at that
stage all the doctors I saw found nothing wrong with me, but I constantly
felt weary and ill... |
| Dodo: Limited Systemic Scleroderma (Italy) The tips of my fingers turned cold, and then became cyanotic, always hurt and in the end they became ulcerated... |
| (Italiano) Dodo: Sclerodermia Sistemica Limitata (Italia) Ho iniziato ad avere alcune punte delle dita delle mani molto fredde, che in pochi giorni diventarono prima cianotiche, sempre piú doloranti e infine presentarono delle ulcere... |
| Elaine GH: Limited Systemic Sclerosis I tell everyone I meet about scleroderma. I have joined two support groups and bought all three editions of Voices of Scleroderma... |
| Eli: Sclerodermia and Raynaud's Syndrome (Italy) After thirteen
years of
suffering, he has given me a diagnosis and a cure, before it is
too late, I hope... |
| (Italiano) Eli: Sclerodermia e Sindrome di Raynaud (Italia) Finalmente dopo 13 anni di sofferenza ho diritto anche io a una diagnosi e una cura,prima che sia troppo tardi. Spero... |
| Helen P: CREST Scleroderma I was diagnosed ten years ago when the symptoms kicked in with a vengeance following a very traumatic personal tragedy... |
| Iceback: CREST or Limited Scleroderma Never having heard of scleroderma, I never really asked any questions when he told me and went home to look it up on the Internet... |
| Irja: CREST, Limited Scleroderma I'm a 34-year-old woman from the land of Santa Claus, Finland. Ive had CREST since 1998... |
| Jackie: Scleroderma, CREST, and Pulmonary Hypertension We were identical twins, and she died in 1988 from kidney failure. We both started with Raynaud's... |
| Jenny: Severe CREST Syndrome and Limited Scleroderma I completed my last marathon in January 2002. On the advice of my doctors, I will not continue to run such long distances... |
| Jo P: Limited Scleroderma and Raynaud's I could barely walk ten feet without needing to sit down... |
| Kath: Systemic Sclerosis (Scleroderma) Moving to Spain has had a positive effect on my Raynaud's, but has had no effect, so far as I am aware, on my scleroderma... |
| Kathy M: CREST (Limited Systemic Scleroderma) If you do not have the right doctor, do not get furious, move on... |
| Kerrie: CREST Syndrome with Limited Scleroderma If I was not stressed before I went in, I certainly was then. I am going to get referred on to see someone different. Hopefully, I will be luckier second time around... |
| Leeben: Limited Scleroderma and CREST I won't go into how many doctors I had to visit before someone took me seriously; it was a total nightmare... |
| Lisa C: Limited Scleroderma My mother has rheumatoid arthritis (RA) and my thirteen-year-old daughter has what is believed to be early lupus... |
| Lorrie: Limited Scleroderma/CREST At first I thought, "Oh my goodness! I am going to die." But my doctor assured me that I could very likely live to be an old woman... |
| Maria: Scleroderma and Raynaud's (Ukraine) I live in a small town and in a poor country. My doctors have no computers or medical magazines... |
| Melinda: Granddaughter of Systemic Scleroderma Patient My grandmother was diagnosed with systemic scleroderma approximately twenty-five years ago... |
| Peggy: CREST and Raynaud's Years later, at fifty-six, my family doc said he thought I had scleroderma because I was having trouble with my hands, and my fingers looked like sausages... |
| Rosie: Limited Systemic Sclerosis (Australia) Some of my symptoms may not be due to limited scleroderma, however most of these symptoms have appeared since my diagnosis... |
| Rouge: Limited Systemic Sclerosis (Italy) I am 35 years old, and up to two years ago I thought I was only suffering from Raynaud's Phenomenon... |
| Sbirulino: Limited Systemic Sclerosis, First Stage Biliary Cirrhosis (Italy) They diagnosed Raynaud's Syndrome, until there was amputation of the first and second phalanges, which caused total invalidism... |
| (Italiano) Sbirulino: Sclerosi Sistemica variante Limitata, Cirrosi Biliare Primitiva (Italia) Mi avevano diagnosticato la sindrome di Reynaud, fino all'autoamputazione delle Ie e IIe falangi arrivando a portarmi ad una invalidità totale del 100%... |
| Sharon: CREST with Limited Scleroderma and Sjögren's (Australia) Day by day I discover another food I cannot eat, as I get heartburn (Esophageal Dysfunction) and my mouth and my tongue burn. I cannot eat any fruit or fruit juices... |
| Sheila: CREST with Limited Scleroderma I felt really scared, confused, and dehumanized in the process of my diagnosis and further dealings with the "western medical field".. |
| Sheila Z: Scleroderma I would like to first say that this site has been a great help for me to understand what is happening to my body and my life... |
| Shirley Wright: Limited Scleroderma I have had this disease for over twenty years now and I plan on being around a lot longer... |
| Soose: Limited Scleroderma I may have had scleroderma for the last year and a half or two years and did not know it... |
| Susan Raby-Dunne: Surviving Daughter of Scleroderma Patient My mother lived a fairly full and productive life for over thirty years after her diagnosis. She danced with my father and they were accomplished ballroom dancers... |
| Tara: Systemic Scleroderma I was diagnosed with scleroderma in January 2000, but I have had it since April 1997. It only became worse in the new year... |
| Theresa C: CREST/Limited Scleroderma I am fifty years old and I was diagnosed with CREST in September of 1996... |
| Tui: Limited Systemic Scleroderma I am wondering whether such treatments will be ongoing? |
