| What is Scleroderma? (MAIN MENU) |
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| Types of Scleroderma: Overview |
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Juvenile Scleroderma |
| This page was written by Shelley Ensz and has not yet been medically edited. See disclaimer. |
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| Overview |
| When any form of scleroderma (either localized or systemic) occurs in children, it is also called Childhood Scleroderma or Juvenile Scleroderma. (Also see: Types of Scleroderma) |
| Juvenile-onset systemic sclerosis: children are not small adults. Chronic ill health from any cause in childhood impacts heavily, not only on physical growth and development, but also in terms of social, educational and psychological development. C. P. Denton. Rheumatology. November 28, 2008. |
| Juvenile Scleroderma |
| The localized forms of scleroderma (such as Linear and Morphea) are most common in children. However, any type of scleroderma can onset during infancy or childhood, including systemic forms such as diffuse and limited. |
| Juvenile Systemic Sclerosis. Juvenile systemic sclerosis (JSSc) is a rare connective tissue disease of unknown etiology. Characteristic features include fibrosis of the skin, subcutaneous tissues, and internal organs as well as abnormalities of the vascular and immune systems occurring in children 16 and younger. This disease is one of the most severe rheumatologic conditions diagnosed in children. Luke M Webb, MD. Emedicine from WebMD. 06/20/09. |
| Study provides clearer picture of childhood sclerosis incidence. The study results gave an incidence rate per million children per year of 3.4 for localised scleroderma, including an incidence rate of 2.5 for linear scleroderma, and 0.27 for systemic sclerosis. Arthrtis Research Campagn. 02/19/10. |
| Books for Juvenile Scleroderma |
| Books for Juvenile Scleroderma features the ISN's Voices of Scleroderma book series, which is base on our www.sclero.org web site! ISN. |
| Experts for Juvenile Scleroderma |
| Juvenile Scleroderma Experts. It is very important to consult a scleroderma expert for the proper diagnosis and treatment of scleroderma, because it is a rare disease. Treatments are better at preventing progression than healing any damage that has already occurred. ISN. |
| Prognosis for Juvenile Scleroderma |
| Prognosis for Juvenile Scleroderma. Localized scleroderma, such as linear, morphea, en coup de sabre, do not reduce a person's life expectancy. For children with systemic sclerosis (scleroderma), such as diffuse or limited/CREST, the survival rate is better for those who have adult onset. ISN. (Also see: Types of Scleroderma) |
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| Research on Juvenile Scleroderma |
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| Patient and Caregiver Stories about Juvenile Scleroderma |
| Allen's Mom: Son has Scleroderma With his tightness of skin he has a very hard time bending, walking up the stairs and for the most part he cannot walk for more than a few minutes without his legs giving out... |
| Anita G: Localized Scleroderma This also started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms... |
| Chris S: Mother of Linear Morphea Patient Whatever it was, I knew it should not be there... |
| More Juvenile Scleroderma Patient and Caregiver Stories... |
