| Šì¦Ä§Ã¡1⁄4÷á¡ ±ýÈ¡ø ±ýé? What is Scleroderma? |
| þó3⁄4ô Àì ̧ò ̈3⁄4 ±Ø3⁄4¢ÂÅ÷ ¦„øÄ¢ ±ýŠ. þÐ þýÛõ áÕòЊã3⁄4¢Â¡ ̧ 3⁄4¢Õò3⁄4ôÀ1⁄4Å¢ø ̈Ä. ÁÚô¨À À¡÷ì¸×õ. |
| This page was written by Shelley Ensz, and has not yet been medically edited. See Disclaimer. |
| Šì¦Ä§Ã¡1⁄4÷á¡ ±ýÈ¡ø ±ýé? |
| |
| What is Scleroderma? |
| |
| Šì¦Ä§Ã¡1⁄4÷á¡- ̈Åô ÀüȢ À¢ÃíÃí ̧û |
| þó3⁄4ô À¢ÃíÃí ̧û PDF ÅÊÅò3⁄4¢ø ̄ûÇé. «§¿ ̧ ̧õôäð1⁄4÷ ̧Ç¢ø ̄ûÇ þÄÅo ô§Ã¡ìáá¡é ‘«§1⁄4¡ô ã1⁄4÷’-þý(Adobe Reader) ̄3⁄4Å¢Ô1⁄4ý, þì§ ̧¡ôÒ ̧ ̈Çô ÀÊì ̧ þÂÖõ. ¿£í ̧û § ̧¡ôÒ þ ̈1⁄2ôÀ¢ý á£Ð ìÇ¢ì ¦oö3⁄4 À¢ýéÕõ, § ̧¡ô ̈Àô ÀÊì ̧ óÊ¡Ţð1⁄4¡ø, ‘«§1⁄4¡ô ã1⁄4÷’-3 (Adobe Reader) þíÌ ¦1⁄4aý§Ä¡ð ¦oöÂ×õ. |
(PDF À¢ÃíÃõ) Šì¦Ä§Ã¡¼÷Á¡ (Šì¦Ä÷-µ-¼÷Á¡) ±ýÈ¡ø “«Øò¾Á¡É §¾¡ø” ±ýÚ ¦À¡Õû. þó§¿¡ö ¸ñ¼Å÷¸ÙìÌ §¾¡ø þÚì¸õ ÁüÚõ ¾ÊôÒ, þÃò¾ ¿¡Çí¸ÙìÌ §º¾õ, þýõ ÁüÚõ §¿¡ö ±¾¢÷ôÒ «¨ÁôÀ¢ø Á¡üÈí¸û ¬¸¢Â¨Å ¿¢¸ú¸¢ýÈÉ. À¢ÃÍÃò¾¢ø, Šì¦Ä§Ã¡¼÷Á¡-Å¢ý «È¢ÌÈ¢¸¨Çô ÀüȢ ÀðÊÂø ¯ûÇÐ! o÷ŧ3⁄4o oslash; ¯ûÇÐ! o÷ŧ3⁄4o Šì¦Ä§Ã¡1⁄4÷á¡ « ̈áôÒ |
| Brochures About Scleroderma |
| These brochures are in PDF format. The files will open automatically in Adobe Reader, which is a free program which is already installed on most computers. If you click on the file link and it doesn't open, download Adobe Reader here. |
What in the world is Scleroderma? (PDF Brochure) Scleroderma (sklare-oh-derma) means "hard skin." This complex disease involves tightening and thickening of the skin, blood vessel damage, inflammation and immune system changes. Brochure includes a systemic scleroderma symptom checklist! International Scleroderma Network. |
| Šì¦Ä§Ã¡1⁄4÷á¡- ̈Åô ÀüȢ Òò3⁄4 ̧í ̧û |
Šì¦Ä§Ã¡1⁄4÷á¡ ±ýÀÐ ̄ñ ̈á¢ø ±ýé? þó3⁄4 § ̧ûÅ¢ì ̧¡é Å¢ ̈1⁄4 «È¢Â, ̄Â÷3⁄4à áÕòÐÅ áüÚõ þ3⁄4à 3⁄4 ̧Åø ̧û «1⁄4í ̧¢Â 3.±Š.±ý-é¢ý Šì¦Ä§Ã¡1⁄4÷á¡Å¢ý ÌÃø ̧û Òò3⁄4 ̧ò ¦3⁄4¡Ìô ̈À ÀÊìÌá¡Ú ÀâóÐ ̈à ¦oö ̧¢§È¡õ. þÐ §¿¡Â¡Ç¢ ̧û, «Å÷ ̧ÙìÌ À1⁄2¢Â¡üÚ§Å¡÷, áüÚõ áÕòÐÅ÷ ̧û ¬ ̧¢Â « ̈éÅáÖõ ́Õ§oà À¡Ã¡ð1⁄4ôÀÎõ ́Õ Òò3⁄4 ̧ò ¦3⁄4¡ÌôÀ¡Ìõ! þó3⁄4ô Òò3⁄4 ̧ò ¦3⁄4¡ÌôÒ Šì¦Ä§Ã¡1⁄4÷á¡ ÅøÖé÷ ̧Ç¢ý ̧ðÎ ̈à ̧û, áüÚõ §¿¡Â¡Ç¢ ̧Ç¢ý ̄ñ ̈áì ̧ ̈3⁄4 ̧ ̈Ç ̄ûÇ1⁄4ì ̧¢ÂÐ. §¿¡Â¡Ç¢ ̧û 3⁄4í ̧û §¿¡Â¢ý 3⁄4ý ̈á ÀüÈ¢ Å¢Çì ̧¢ì ÜÚÅÐ1⁄4ý, Šì¦Ä§Ã¡1⁄4÷á¡Å¢ý «È¢ÌÈ¢ ̧ ̈Çì ̧ñ1⁄4È¢óÐ §¿¡ ̈Âì ̈ ̧¡Ùõ ó ̈È ̧û ÀüȢ 3⁄4í ̧û ¬§Ä¡o ̈é ̧ ̈ÇÔõ À ̧¢÷óÐ ¦ ̧¡û ̧¢È¡÷ ̧û. |
| Books About Scleroderma |
But what is scleroderma really like?! To answer that, we strongly recommend the ISN's Voices of Scleroderma book series for top quality medical and support information. It receives rave reviews from patients, caregivers and doctors alike! Articles by highly esteemed scleroderma experts are combined with true stories from patients and caregivers explaining their illness and sharing their ideas for coping with all types of scleroderma symptoms. |
| Šì¦Ä§Ã¡1⁄4÷á¡-Å¢ ý Å ̈ ̧ ̧û |
Šì¦Ä§Ã¡1⁄4÷á¡ þÃñÎ Å ̈ ̧ôÀÎõ - ̄1⁄4Ä¢ý ́Õ ÌÈ¢ôÀ¢ð1⁄4 ÀÌ3⁄4¢Â¢ø áðÎõ §3⁄4¡ýÚ3⁄4ø (§Ä¡ì ̧ ̈ÄŠð - localized), áüÚõ ̄1⁄4Ä¢ý ÀÄ ÀÌ3⁄4¢ ̧Ç¢ø §3⁄4¡ýÚ3⁄4ø (...¢Šð1⁄4á¢ì - systemic). ...¢Šð1⁄4á¢ì(systemic) Å ̈ ̧¡éÐ ̄1⁄4Ä¢ý ±ó3⁄4ô ÀÌ3⁄4¢Â¢ø §ÅñÎá¡é¡Öõ §3⁄4¡ýÈÄ¡õ (§3⁄4¡ø, þÃò3⁄4 ¿¡Çí ̧û, áüÚõ ̄1⁄4Ä¢ý ̄ûÙÚôÒ ̧û). þÐ “...¢Šð1⁄4á¢ì Šì¦Äá...¢Š” áüÚõ Ê·ôäŠ(diffuse), Ä¢á¢1⁄4ð(limited), ì¦ÃŠð(CREST) áüÚõ μÅ÷Ä¡ô(overlap) ¬ ̧¢Â ¦ÀÂ÷ ̧Ç¡ø ÌÈ¢ì ̧ôÀÎ ̧¢ÈÐ. §Ä¡ì ̧ ̈ÄŠð Å ̈ ̧¡éÐ á¡÷·À¢Â¡(morphea) áüÚõ Ä£é¢Â÷(linear) ±éôÀÎõ, þÐ ̄1⁄4Ä¢ý §3⁄4¡ø (áüÚõ «3⁄4ý «Ê¢ø « ̈áó3⁄4¢ÕìÌõ 3⁄4¢íì ̧û) ÀÌ3⁄4¢Â¢ø 2üÀÎõ; ¬é¡ø þ3⁄4顸 ̄1⁄4Ä¢ý ̄ûÙÚôÒ ̧ÙìÌ À¡3⁄4¢ô§À¡, «øÄÐ ́ÕÅÃÐ ¬Ôð ̧¡Äõ Ì ̈Èŧ3⁄4¡ 2üÀ1⁄4¡Ð. Ì ̈Æó3⁄4 ̧ÙìÌ 2üÀÎõ Šì¦Ä§Ã¡1⁄4÷á¡ ÌÆó ̈3⁄4ôÀÕÅ Šì¦Ä§Ã¡1⁄4÷á¡ ±éôÀÎ ̧¢ÈÐ. Å¢Çì ̧í ̧û «È¢Â, Šì¦Ä§Ã¡1⁄4÷á¡-Å¢ý Å ̈ ̧ ̧û Àì ̧ò ̈3⁄4ô À¡÷ì ̧×õ. |
| Types of Scleroderma |
There are two main types of scleroderma, localized and systemic. The systemic forms can affect any part of the body (skin, blood vessels, and internal organs.) The systemic forms are also referred to as "systemic sclerosis" plus other terms such as diffuse, limited, CREST, and overlap. The localized forms are morphea and linear. They affect only the skin (and sometimes the underlying tissues) but do not affect the internal organs, or reduce one's life expectancy in any way. When any form of scleroderma (either localized or systemic) occurs in children, it is also called Childhood Scleroderma or Juvenile Scleroderma. See Types of Scleroderma page for further explanation. |
| §¿¡ ̈ ¿¢÷1⁄2¢ôÀ3⁄4¢ø ̄ûÇ þ1⁄4÷À¡Î ̧û |
Šì¦Ä§Ã¡1⁄4÷á¡ ́Õ «Ã¢Â §¿¡Â¡ ̧×õ, ¦ÅÌ o¢Ä áÕòÐÅ÷ ̧Ùì§ ̧ ÀâîoÂá¡é §¿¡Â¡ ̧×õ þÕôÀ3⁄4¡ø, þ3⁄4 ̈éì ̧ñ1⁄4Ȣ ¿£ñ1⁄4 ̧¡Äá¡ÅÐ1⁄4ý, ̧Êéá¡ ̧×õ þÕì ̧¢ÈÐ. ¬ÃõÀ ̧ð1⁄4í ̧Ç¢ø þÐ ãðÎÅÄ¢ (¬÷ò ̈ÃðÊŠ) §À¡ýÈ o¢Ä þ ̈1⁄2ôÒò 3⁄4¢í §¿¡ö ̧ ̈Ç ́ò3⁄4¢Õì ̧¢ÈÐ. ¦ÀÕõÀ¡Öõ, §¿¡ ̈Âì ̧ñ1⁄4È¢Å3⁄4¢ø ̄ûÇ ¿¢îoÂá¢ý ̈áÔõ, 2á¡üÈóõ áé¿¢ ̈Ä ̈ ¦ÅÌÅ¡ ̧ À¡3⁄4¢ôÀ3⁄4¡ø, §¿¡ ̈ °÷ƒ¢3⁄4ôÀÎò3⁄4¢ì ¦ ̧¡ûÅ3⁄4üÌû «Å÷ ̧ÙìÌ 2üÀÎõ ÅÕò3⁄4í ̧§Ç þ󧿡¢ý ÐÂÃá¡é ̧ð1⁄4õ ±ý ̧¢È¡÷ ̧û þ󧿡¡Ǣ ̧û.(4) §¿¡ ̈ ¿¢÷1⁄2¢ôÀ3⁄4¢ø ̄ûÇ þ1⁄4÷À¡Î ̧û - À̾¢¨Âô À¡÷ì¸×õ. |
| Difficult Diagnosis |
| Proper diagnosis of scleroderma is often long and difficult, since it is a rare disease which few doctors are well-versed in, and in the early stages it may resemble many other connective tissue diseases, such as systemic lupus erythematosus, polymyositis, and rheumatoid arthritis, just to name a few. |
| Often the diagnostic uncertainty and frustration takes a huge toll on the psychological well-being of these patients, who describe their journey to diagnosis as being by far the most difficult part of their illness.(4) See Difficult Diagnosis. |
| Effects of Systemic Scleroderma |
| ...¢Šð1⁄4á¢ì Šì¦Ä§Ã¡1⁄4÷á¡ §3⁄4¡Ä¢Öõ, ̄1⁄4Ä¢ý ̄ûÙÚôÒ ̧Ç¢Öõ ̄ûÇ 3⁄4¢íì ̧Ç¢ø ÅÄ¢Ôõ Å£ì ̧óõ(fibrosis) 2üÀÎòÐ ̧¢ÈÐ. þ3⁄4ý Å¢ ̈ÇÅ¡ ̧ À¡3⁄4¢ì ̧ôÀð1⁄4 §3⁄4¡Öõ, ̄1⁄4ø ̄ÚôÒõ þÚ ̧¢ì ̧¡1⁄2ôÀÎÅ3⁄4¡ø, þó§¿¡ö “áé¢3⁄4÷ ̧ ̈Çì ̧øÄ¡ ̧ á¡üÚõ §¿¡ö” ±ýÚ ÀÃÅÄ¡ ̧ «È¢ÂôÀÎ ̧¢ÈÐ. |
| Effects of Systemic Scleroderma |
| The systemic forms of scleroderma cause fibrosis (scar tissue) to be formed in the skin and/or internal organs. The fibrosis eventually causes the involved skin or organs to harden, which is why scleroderma is popularly known as the "disease that turns people into stone." |
| Šì¦Ä§Ã¡1⁄4÷á¡-Å¢ý ãÄì ̧¡Ã1⁄2í ̧û |
| Šì¦Ä§Ã¡1⁄4÷á¡ §¿¡ö 2üÀÎÅ3⁄4ü ̧¡é ãÄì ̧¡Ã1⁄2í ̧û þýÛõ ̧ñ1⁄4È¢ÂôÀ1⁄4Å¢ø ̈Ä. o¢Ä Å ̈ ̧Â¡é §¿¡öìÌ Ã...¡Âéò 3⁄4¡ìÌ3⁄4ø ̧û ̧¡Ã1⁄2á¡ ̧ þÕì ̧Ä¡õ ±ýÚ ¿õÀôÀÎ ̧¢ÈÐ. áÃÀÏì ̧û áüÚõ o¢Ä ̈ÅÊ ̧¢Õᢠ̧û ¬ ̧¢Â ̈ÅÔõ ̧¡Ã1⁄2á¡ ̧ « ̈áÂÄ¡õ ±ýÚõ ̧Õ3⁄4ôÀÎ ̧¢ÈÐ. Šì¦Ä§Ã¡1⁄4÷á¡-Å¢ý ãÄì ̧¡Ã1⁄2í ̧û - À̾¢¨Âô À¡÷ì¸×õ. |
| Causes of Scleroderma |
| The cause of scleroderma is unknown. Some cases of scleroderma have been linked to chemical exposures. Genetics, fetal cells, and viruses might also be factors in the development of scleroderma. See Causes of Scleroderma. |
| Šì¦Ä§Ã¡1⁄4÷á¡ ́Õ ¦3⁄4¡üÚ§¿¡ö «øÄ |
| Šì¦Ä§Ã¡1⁄4÷á¡ ́Õ ¦3⁄4¡üÚ§¿¡ö(1) «øÄ, «3⁄4¡ÅÐ, þÐ ̈ ̧ÌÖìÌÅ3⁄4ý ãÄá¡ ̧§Å¡, ̧ðÊôÀ¢ÊôÀ3⁄4ý ãÄá¡ ̧§Å¡, óò3⁄4á¢ÎÅ3⁄4ý ãÄá¡ ̧§Å¡, ̄1⁄4ÖÈ× ¦ ̧¡ûÅ3⁄4ý ãÄá¡ ̧§Å¡, þÃò3⁄4 oõÀó3⁄4á¡ ̧§Å¡, §¿¡Â¡Ç¢ ̄ñÀ3⁄4üÌô ÀÂýÀÎò3⁄4¢Â À¡ò3⁄4¢Ãí ̧ ̈Çô ÀÂýÀÎòÐÅ3⁄4¡§Ä¡, «øÄÐ ̧¡üÚ Å¡Â¢Ä¡ ̧ þÕáø, Ðõáø ãÄá¡ ̧§Å¡ 2üÀÎÅ3⁄4¢ø ̈Ä. þó§¿¡ö ÒüÚ§¿¡ö ̄ñ1⁄4¡ì ̧ìÜÊÂÐõ «øÄ. |
| Scleroderma is Not Contagious or Cancerous |
| Scleroderma is not classified as contagious (1), which means that you cannot get scleroderma by shaking hands, hugging, kissing, sexual contact, contact with blood or bodily fluids, sharing eating utensils, or by airborne contact from coughing or sneezing. And it is not cancerous in any way.(1) |
| Šì¦Ä§Ã¡1⁄4÷á¡ - «È¢ÌÈ¢ ̧Ùõ o¢ ̧¢î ̈o ó ̈È ̧Ùõ |
| þý ̈È ̧¡Ä ̧ð1⁄4ò3⁄4¢ø, Šì¦Ä§Ã¡1⁄4÷á¡ §¿¡ ̈ Ì1⁄2ôÀÎòÐÅ3⁄4ü ̧¡é áÕóÐ ̧§Ç¡, o¢ ̧¢î ̈o ó ̈È ̧§Ç¡ þø ̈Ä. ¬é¡ø, þ󧿡¢ý «È¢ÌÈ¢ ̧ ̈Ç Ì1⁄2ôÀÎòÐÅ3⁄4ü ̧¡é o¢Èó3⁄4 o¢ ̧¢î ̈o ó ̈È ̧û ÀÄ ̄ûÇé. þó3⁄4 Å ̈Äò3⁄4Çò3⁄4¢ø ÌÈ¢ôÀ¢1⁄4ôÀðÊÕìÌõ §¿¡Â¢ý «È¢ÌÈ¢ ̧Ç¢ø ÀÄ, ...¢Šð1⁄4á¢ì(systemic) Šì¦Ä§Ã¡1⁄4÷á¡-Å¢ý «È¢ÌÈ¢ ̧û ¬Ìõ. ...¢Šð1⁄4á¢ì Šì¦Ä§Ã¡1⁄4÷á¡Å¢ ý «È¢ÌÈ¢ ̧û áüÚõ áÕòÐÅ ¬Ã¡öîo¢ ̧û ÀÌ3⁄4¢ ̈Âô À¡÷ì ̧×õ. “Šì¦Ä§Ã¡1⁄4÷á¡ ±ýÈ¡ø ±ýé?” ±ýÈ À¢ÃíÃò3⁄4¢ÖûÇ,...¢Šð1⁄4á¢ì Šì¦Ä§Ã¡1⁄4÷á¡Å¢ý «È¢ÌÈ¢ ̧Ç¢ý ÀðÊ ̈Äô À¡÷ì ̧×õ. þÐ PDF-ÅÊÅò3⁄4¢ø ̄ûÇÐ. ...¢Šð1⁄4á¢ì Šì¦Ä§Ã¡1⁄4÷á¡Å¢ ý «È¢ÌÈ¢ ̧û(link) áüÚõ áÕòÐÅ ¬Ã¡öîo¢ ̧û(link) ÀÌ3⁄4¢ ̈Âô À¡÷ì ̧×õ. |
| Scleroderma Symptoms and Treatments |
| At present, there are no proven treatments or cure for any forms of scleroderma. However, there are effective therapies for many of the symptoms. Most of the symptoms listed in this website are those of systemic scleroderma. See Systemic Scleroderma Symptoms and Scleroderma Treatments and Clinical Trials. Also see the Systemic Scleroderma Symptom Checklist in our free PDF from the ISN's "What is Scleroderma?" brochure. |
| Šì¦Ä§Ã¡1⁄4÷á¡ - Àâ§o¡3⁄4 ̈é ̧û |
| Šì¦Ä§Ã¡1⁄4÷á¡-Å¢ý o¢ ̧¢î ̈oì ̧¡é Àâ§o¡3⁄4 ̈é ̧û o¢Ä, ¿õÀ¢ì ̈ ̧äðÎõ Å ̈ ̧¢ø « ̈áóÐûÇé. þÅüÚû ‘Ц1⁄4õ ¦oø á¡üÚ ó ̈È(BMT)’-Ôõ «1⁄4íÌõ. Àâ§o¡3⁄4 ̈é ̧û - À̾¢¨Âô À¡÷ì¸×õ. |
| Scleroderma Clinical Trials |
| There are some experimental therapies which show promise for treatment of scleroderma, including Stem Cell Transfusion (BMT). See Clinical Trials. |
| Šì¦Ä§Ã¡1⁄4÷á¡- ̈Åô ÀüȢ 3⁄4 ̧Åø ̧û |
| Šì¦Ä§Ã¡1⁄4÷á¡ - ́Õ ̧ñ§1⁄2¡ð1⁄4õ MayoClinic.com |
| Šì¦Ä§Ã¡1⁄4÷á¡-Å¢ý ÌÃø ̧û - ÀÌ3⁄4¢ 1 þó3⁄4ô Òò3⁄4 ̧õ Šì¦Ä§Ã¡1⁄4÷á¡- ̈Åô ÀüÈ¢ ÅøÖé÷ ̧û ÜÚõ áÕòÐÅò 3⁄4 ̧Åø ̧ ̈Ç «1⁄4ì ̧¢ÔûÇÐ. þ3⁄4¢ø Šì¦Ä§Ã¡1⁄4÷á¡-Å¢ý «È¢ÌÈ¢ ̧Ç¢ý ÀðÊÂÖõ, þ󧿡¡ø À¡3⁄4¢ì ̧ôÀð1⁄4 100 §¿¡Â¡Ç¢ ̧Ç¢ý ̧ ̈3⁄4 ̧Ùõ «1⁄4íÌõ. o÷ŧ3⁄4o Šì¦Ä§Ã¡1⁄4÷á¡ « ̈áôÒ |
| Šì¦Ä§Ã¡1⁄4÷á¡ ±ýÈ¡ø ±ýé? “ ̄í ̧û ̄1⁄4Ä¢ý o¢Ä ÀÌ3⁄4¢ ̧Ç¢ø, §3⁄4¡ø 3⁄4ÊòÐ, þÚ ̧¢ô §À¡Â¢Õó3⁄4¡ø ±ôÀÊ þÕìÌõ ±ýÚ ¦ ̧¡ïoõ ̧üÀ ̈é ¦oöÐ À¡Õí ̧û. §áÖõ, ÌÇ¢÷ 3⁄4¡í ̧ óÊ¡3⁄4¢Õò3⁄4ø, «Êì ̧Ê 2üÀÎõ ¦¿ï¦oâîoø, ãðÎ þÚÌ3⁄4ø, áüÚõ À¢È ̄ûÙÚôÒ À¢Ãîoé ̈ ̧û ¬ ̧¢Â ̈ÅÔõ þÕó3⁄4¡ø?”. 2ᢠ( ́Õ ...¢Šð1⁄4á¢ì Šì¦Äá...¢Š §¿¡Â¡Ç¢Â¢ý á ̧û) |
| Šì¦Ä§Ã¡1⁄4÷á¡ ±ýÈ¡ø ±ýé? ãðÎÅÄ¢ « ̈áôÒ («¦áâì ̧¡) |
| Šì¦Ä§Ã¡1⁄4÷á¡ ±ýÈ¡ø ±ýé? ¦áÊ...¢ý¦¿ð |
| Šì¦Ä§Ã¡1⁄4÷á¡ ±ýÈ¡ø ±ýé? “Šì¦Ä§Ã¡1⁄4÷á¡- ̈Åì ̧ñ1⁄4È¢ÅÐ ̧Êéõ. §3⁄4¡Ä¢ø ¦áøÄ ¦áøÄ á¡üÈí ̧û 2üÀ1⁄4Ä¡õ «øÄÐ ̄1⁄4ø ̄ÚôÒ oâ¡é ó ̈È¢ø þÂí ̧¡3⁄4¢Õì ̧Ä¡õ. ¬ÃõÀ ̧¡Ä «È¢ÌÈ¢ ̧Ç¢ø o¢Ä.....” ̧é1⁄4¡-Å¢ý Šì¦Ä§Ã¡1⁄4÷á¡ « ̈áôÒ |
| Information about Scleroderma |
| Overview of Scleroderma MayoClinic.com |
| History of Scleroderma and School Report Resources. Help raise awareness of scleroderma by doing a school report on it, with help from these resources. International Scleroderma Network. |
| History of Scleroderma: Paul Klee and Scleroderma. Paul Klee is perhaps the most famous person to have had scleroderma. International Scleroderma Network. |
| The Scleroderma Book: A Guide for Patients and Families by Dr. Maureen Mayes. |
| Voices of Scleroderma Volume 1 Book offers medical information about scleroderma by leading experts. Includes scleroderma symptom checklist, plus 100 personal stories of people living with scleroderma and related illnesses. International Scleroderma Network. |
| What is Scleroderma? "Imagine for me if you would that in certain areas of your body the skin has begun to thicken and harden. Then on top of this, you have a painful sensitivity to cold, frequent heartburn, stiff joints and various other internal problems." Amy (Daughter of a Systemic Sclerosis patient) |
| What is Scleroderma? Arthritis Foundation (U.S.) |
| What is Scleroderma? MedicineNet |
| What is Scleroderma? "Scleroderma can be difficult to diagnose. There may be slowly evolving skin changes or malfunction of an organ. First symptoms may include..." Scleroderma Society of Canada |
| Šì¦Ä§Ã¡1⁄4÷á¡ §¿¡Â¡Ç¢ ̧Ç¢ý ̧ ̈3⁄4 ̧û |
| ...¢Šð1⁄4á¢ì Šì¦Ä§Ã¡1⁄4÷á¡ |
| ì¦ÃŠð ̧ ̈3⁄4 ̧û |
| Ê·äŠ ̧ ̈3⁄4 ̧û |
| Ä¢á¢1⁄4ð ̧ ̈3⁄4 ̧û |
| μÅ÷Ä¡ô ̧ ̈3⁄4 ̧û |
| §Ä¡ ̧ ̈ÄŠð Šì¦Ä§Ã¡1⁄4÷á¡ |
| Ä£é¢Â÷ ̧ ̈3⁄4 ̧û |
| á¡÷·À¢Â¡ ̧ ̈3⁄4 ̧û |
| Morphea Stories (Italiano) |
| áüÈ ̈Å |
| §¿¡ ̈Âì ̧ñ1⁄4È¢Å3⁄4¢ø ̄ûÇ þ1⁄4÷À¡Î ̧û |
| .þ…¢§É¡·À¢Ä¢ì ·À¡¨…ÊŠ |
| þý1⁄4÷ŠÊ„¢Âø ...¢Š ̈1⁄4ÊŠ |
| ŠÂ¡ì¦Ãý ...¢ýð§Ã¡õ |
| Scleroderma Patient Stories |
| Systemic Scleroderma: |
| CREST Stories |
| Diffuse Stories |
| Limited SD Stories |
| Overlap Patient Stories |
| Localized Scleroderma: |
| Linear Stories |
| Morphea Stories |
| Morphea Stories (Italiano) |
| Others |
| Difficult Diagnosis and Undiagnosed |
| Eosinophilic Fasciitis |
| Interstitial Cystitis |
| Sjögren's Syndrome |
| References |
| (1) |
