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| Related Items | ||||||||||||||||||||||||||||||||||||
| Worldwide Scleroderma Experts. It is very important to seek specialist care for scleroderma and related illnesses. Lists included SCTC and EUSTAR. ISN. | ||||||||||||||||||||||||||||||||||||
| Internet as a Tool for Patient Support Groups to Provide Quality Information. AIM: To compare the inquiries received by the Scleroderma Society (SS), UK with those received by the International Scleroderma Network (ISN). Worldwide collaboration of medical professionals with patient organisations should lead to a better understanding of clinical needs and better support. Web presence and e-mail contacts should be used by patient organisations in order to improve the quality and availability of support. M. Dziadzio. SL0003 EULAR 2004. (Also see: ISN, Dr. Magdalena Dziadzio, Dr. Roy Smith, Prof. Carol Black, and Shelley Ensz) | ||||||||||||||||||||||||||||||||||||
| A Pilot Database Analysis of Enquiries Submitted to the Medical Committee of an International Scleroderma Website This pilot database analysis identifies the main areas of information that should be available to those affected by, or working with, scleroderma. Magdalena Dziadzio FRI0078 EULAR 2003. (Also see: Dr. Magdalena Dziadzio, Dr. Roy Smith, Prof. Carol Black, and Shelley Ensz) | ||||||||||||||||||||||||||||||||||||
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