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Francisco J. Castellanos

ISN Support Group Leader, Bogotá, Columbia: Asociación Colombiana de Esclerodermia
English Version Spanish Version

Francisco CastellanosHello, my name is Francisco J. Castellanos. I am the ISN Support Group Leader for Bogotá, Colombia, the Asociación Colombiana de Esclerodermia (ASCLER).

I have had morphea scleroderma for about two years, and my diagnosis was confirmed by specialists almost one year ago. I have diverse skin plaques of different sizes. My dermatologist informed me that the type of morfea scleroderma that I have can be associated with lichen sclerosus et atrophicus.

When it was confirmed that I had scleroderma, I tried to seek help from a support group in my country, but surprisingly I did not find any. This motivated me to found ISN's Colombian Association (ASCLER), which provides help for patients with scleroderma and their families.

Our association has many diverse activities, including monthly meetings with members; workshops and conferences directed by medical specialists; and the Scleroderma Quality-of-Life Program (Programa Esclerodermia con Calidad de Vida). These activities are planned and developed with fundamental goals in mind: to better understand scleroderma and to improve quality of life for patients and their relatives.

Voices of Scleroderma Volume 3

My story is published in the wonderful book on scleroderma entitled Voices of Scleroderma Volume 2 . The story appears in both Spanish and English. I have also written an article about our organization in Voices of Scleroderma Volume 3 (in Spanish).

Feel free to send information to me (via email) regarding disease treatment, quality of life, and other subjects and diseases related to scleroderma. My email address is f-castellanos@sclero.org.

Related Links
(Espanol/Spanish) Video: Síntomas característicos de la esclerodermia
Francisco Castellanos in TV Interview(Espanol/Spanish) Síntomas característicos de la esclerodermia. Francisco Castellanos, presidente de la Asociación de esclerodermia, habla en CST sobre algunos síntomas de esta patología, entre otros, el cambio de coloración en los dedos de las manos y los pies. También, el especialista Gustavo Nasswetter, explica por qué la esclerodermia se presenta más frecuentemente en las mujeres. CST, NTN24. (Also see: Francisco Castellanos and Asociación Colombiana de Esclerodermia) Posted 08/11/10.
(Spanish/Español) 2009 ASCLER Revista: Esclerodermia con Calidad de Vida —Gratis!
En la Asociación Colombiana de Esclerodermia ASCLER celebramos el cinco aniversario de su fundación con el lanzamiento de su segundo Revista: 2009 Esclerodermia con Calidad de Vida (Uniflip, a Flash document). Esta es una publicación en español que ofrece orientación, información, esperanza y ayuda a todos los pacientes que padecen de la enfermedad, a sus familiares o relativos, a la comunidad médica y a toda persona interesada en el tema. Posted 01-06-09.
Voices of Scleroderma Volume 3: Just Released!
Voices of Scleroderma Volume 3Voices of Scleroderma Volume 3 has just been released, with 100 more new patient and caregiver stories! Contributing professionals include Dr. Marco Matucci-Cerinic and Dr. Irene Miniati (on Systemic Scleroderma), Dr. Fernanda Falcini (on Juvenile Scleroderma), Dr. Tafazzul e-Haque Mahmud, Dr. Laszlo Czirjak (on Scleroderma-Like Disorders), Dr. James Seibold, Francisco Castellanos, and Carol Langenfeld. Posted 01-24-06.
 
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