| | How to Volunteer for ISN | | 1. Inquire about openings | | Email Volunteer Services | | 2. And/or send in your app. | | ISN Volunteer Application | | 3. If offered a position, sign | | ISN Volunteer Agreement | | 4. Submit your profile page | | ISN Representatives Form | | Active Volunteers | | A-C | | Acosta, Matilde | | Aron, Torok | | Balbir-Gurman, Dr. Alexandra | | Barg, Gary | | Becker, David | | Black, Professor Carol | | Bridgman, Ione | | Bulman, Lisa | | Carina, Iona | | Castellanos, Francisco | | Castro, Ana Celia | | Catoggio, Dr. Luis | | Czirják, Dr. László | | D-F | | Davidoff, Dina | | Devlin, Judith Thompson | | Dickson, Stephen | | Distler, Dr. Oliver | | Doom, Sheryl | | Elsanousi, Dr. Yasir | | Ensz, Shelley | | Ensz, Gene | | Falcini, Dr. Fernanda | | Foster, Dr. C. Stephen | | G-I | | Hasegawa, Maki | | Hopkins, Linda | | Howell, Kevin | | Ionescu, Tudor | | Iqbal, Dr. Asim | | Irvin, Dr. Liz | | J-K | | Jackson, Jie | | Jun, Dr. Jae-Bun | | Justis, Serena | | Kalender, Dr. Mehmet | | Kurzen, Françoise | | L | | Langenfeld, Carol | | Lamoli-Torres, Edwin | | Lehman, Dr. Thomas | | León, Alba | | Lin, Dr. Hsiao-Yi | | Lowe, Barbs | | Lowe, Wayne | | Lurtz, Krista (Romanian) | | M | | Maddoux, Carrie | | Magnani, Gwen | | Mahmud, Dr. Tafazzul | | Malcarne, Dr. Vanessa | | Manns, Earl | | Matucci-Cerinic, Dr. Marco | | Mens, Ans | | Miniati, Dr. Irene | | Müller-Ladner, Dr. Ulf | | Moorthy, Dr. L. Nandini | | N-Q | | Novotny, Jordana | | Piché, Susanne | | Pope, Dr. Janet | | R-S | | Roland, Pamela | | Sato, Dr. Shinichi | | Seibold, Dr. James R. | | Seminara, Lynda | | Smith, Dr. Roy | | Sralla, Patty S. | | Sridharan, Banumathy | | Stafilia, Dimitra | | Strong, Sandy | | Strong, Sid | | T-Z | | Tarro, Judy | | Trojanowska, Dr. Maria | | Van den Hoogen, Dr. Frank | | Varghese, Tony | | Volz, Lisa | | Willis, Janey | | Ydler, Luis | | Active: Need Rep Form | | These active volunteers (including contributing experts for our books) are invited to have an ISN profile page made by submitting an ISN Representatives Form. | | Castro, Ana Celia | | Duminey, Marthie | | Falcini, Dr. Fernanda | | Ionescu, Tudor | | Langenfeld, Carol | | Lin, Dr. Hsiao-Yi | | Lurtz, Krista | | Mens, Ans | | Van den Hoogen, Dr. Frank | | Ydler, Luis | | Inactive Volunteers | Inactive Volunteers:
On Leave of Absence | | These people are on leave of absence. Please keep in touch. | | Nolan, Heidi | Inactive Volunteers:
Need Update | | Our emails to you have bounced. You may reactivate, retire, or take a leave of absence. Please email us! | | Jacques, Jaqueline | | Magnani, Gwen | | Makarov, Yelena | | Mundargi, Kishori | | Wanzala, Justus Bahati | | Retired Volunteers | | Retired volunteers can reactivate by emailing us. Here is a partial listing: | | Cotton, Lizzy | | Gardner, Bunny | | Hassan, Yunus | | Hunt, Dee Dee | | Passoni, Gianalberto | | Patane, Christine | | Sadiq, Saba | | Scriber, Merrié | | Soto, Carol | | Stanley, Erin | | Young, Sherry Jo | | In Loving Memory | | ISN Volunteers who have passed away include: | | Carpenter, Jill | | Korn, Dr. Joseph | | Knaggs, Sherrill | | Heartfelt Thanks | | If you have ever served the cause of scleroderma in any way, anywhere in the world, we thank you tremendously! |
| | Board of Directors | | Founder and President | | Ensz, Shelley | | Vice President | | Ensz, Gene | | Board Member | | Strong, Sandy | | Board Member | | Strong, Sid | | Board Member | | Varghese, Tony | | Board Advisors | | Legal Advisor | | Hopkins, Linda | | Medical Advisory Chair | | Dr. James R. Seibold | | Development/Fundraising | | Development Director | | Open Position. Apply. | | Grant Writing | | Novotny, Jordana | | Fundraisers | | Bulman, Lisa | | Manns, Earl | | Open Positions. Apply. | | Medical Advisory Board | | Chair | | Seibold, Dr. James R. | | Directors | | Catoggio, Dr. Luis | | Distler, Dr. Oliver | | Foster, Dr. C. Stephen | | Lin, Dr. Hsiao-Yi | | Mahmud, Dr. Tafazzul | | Matucci-Cerinic, Dr. Marco | | Mouthon, Dr. Luc | | Müller-Ladner, Dr. Ulf | | Pope, Dr. Janet | | Sato, Dr. Shinichi | | Simms, Dr. Robert | | Van den Hoogen, Dr. Frank |
| | Newsroom | | News Manager | | Willis, Janey | | News Guide, Scleroderma | | Willis, Janey | | News Guide, Autoimmune | | Becker, David | | News Guide, Media News | | Willis, Janey | | Assistant News Guides | | Bulman, Lisa | | Tarro, Judy | | RSS News Feed | | Dickson, Stephen | | Publishing | | Publishing: Books | | We publish the Voices of Scleroderma book series! | | Chair of Archivist Committee | | Devlin, Judith Thompson | | Co-Editors | | Devlin, Judith Thompson | | Ensz, Shelley | | Senior Editors | | Dock, Maia | | Seminara, Lynda | | Stanley, Erin | | Contributing Experts | | Barg, Gary | | Black, Professor Carol | | Castellanos, Francisco | | Czirják, Dr. László | | Dziadzio, Dr. Magdalena | | Falcini, Dr. Fernanda | | Howell, Kevin | | Iqbal, Dr. Asim | | Korn, Dr. Joseph (In Memory) | | Langenfeld, Carol | | Lehman, Dr. Thomas | | Mahmud, Dr. Tafazzul | | Malcarne, Dr. Vanessa | | Matucci-Cerinic, Dr. Marco | | Miniati, Dr. Irene | | Moorthy, Dr. L. Nandini | | Seibold, Dr. James R. | | Trojanowska, Dr. Maria | | Artists and Illustrators | | Bridgman, Ione | | Ensz, Shelley |
| Knaggs, Sherrill (In Memory) |
| Distribution | | Patane, Christine | | Book PR in U.S. | | Open Positions. Apply. | | Friedman, Marsha | | Book PR in U.K. | | Lowe, Wayne | | Dickson, Steve (for interviews) | | Lowe, Barbs (for interviews) | | Translators | | Many ISN Translators also worked on our book series. | | Publishing: Brochures | | Desktop Publisher | | Piché, Susanne | | Publishing: Newsletter | | ISN Members receive our ISN Insider Newsletter! | | Newsletter Editor | | Sralla, Patty | | Desktop Publisher | | Piché, Susanne | | Senior Editor | | Seminara, Lynda Garry | | Columnists | | Castellanos, Francisco | | Devlin, Judith Thompson | | Maddoux, Carrie | | Seibold, Dr. James R. | | Willis, Janey | | Support Groups | | ISN Affiliates | | Bogota, Colombia | | Castellanos, Francisco | | Venezuela | | Acosta, Matilde | | Support Groups/Affiliates | | Do you want to start an ISN support group or affilaite with us? Open Positions. Apply. | | Support: Email | | Email Support (English) | | Open Position. Apply. | | Support: Forums | | Our free ISN Sclero Forums delivers terrific online support! | | Manager | | Maddoux, Carrie | | Assistant Manager | | Bulman, Lisa | | Support Specialists | | Doom, Sheryl | | Justis, Serena 'Barefut' | | Roland, Pamela 'Sweet' | | Willis, Janey | | Bloggers | | Justis, Serena 'Barefut' | | Lowe, Barbs | | Chat Manager | | Maddoux, Carrie | | Chat Host | | Doom, Sheryl | | Support: Phone | | Hotline Phone Support (English) | | Ensz, Shelley | | Roland, Pamela 'Sweet' |
| | Translations/Countries | | Translation Team Manager | | Open Position. Apply. | | Afrikaans/South Africa | | Email Support | | Marthie Duminey | | Arabic | | Elsanousi, Dr. Yasir | | Bahasa Malaysia | | Hassan, Yunus | | Canada | | Medical Advisory Board | | Pope, Dr. Janet | | Chinese | | Jackson, Jie | | Deutsche (German) | | Ionescu, Tudor | | Medical Advisory Board | | Müller-Ladner, Dr. Ulf | | Español (Spanish) | | Medical Advisory Board | | Catoggio, Dr. Luis | | Translators | | León, Alba | | Lamoli-Torres, Edwin | | Support Group Leader | | Castellanos, Francisco | | Français (French) | | Kurzen, Françoise | | Email Translator | | Ydler, Luis | | Greek | | Stafilia, Dimitra | | Hebrew | | Davidoff, Dina | | Hungarian | | Aron, Torok | | Indonesian | | Carina, Iona | | Israel | | Balbir-Gurman, Dr. Alexandra | | Italiano (Italian) | | Medical Advisory Board | | Matucci-Cerinic, Dr. Marco | | Translators | | Howell, Kevin | | León, Alba | | Japanese | | Medical Advisory Board | | Sato, Dr. Shinichi | | Translators | | Hasegawa, Maki | | Yoko | | Kannada | | Mundargi, Kishori | | Korean | | Jun, Dr. Jae-Bun | | Magyarul(Hungarian) | | Aron, Torok | | Nederlands(Dutch) | | Medical Advisory Board | | Van den Hoogen, Dr. Frank | | Translators | | Mens, Ans | | Pakistan | | Medical Advisory Board | | Mahmud, Dr. Tafazzul | | Polski(Polish) | | Email Translator | | Ydler, Luis | | Português | | Castro, Ana Celia | | Romana | | Lurtz, Krista (Romanian) | | Russian | | Balbir-Gurman, Dr. | | Makarov, Yelena | | Switzerland | | Medical Advisory Board | | Distler, Dr. Oliver | | Taiwan | | Medical Advisory Board | | Lin, Dr. Hsiao-Yi | | Tamil | | Sridharan, Banumathy | | Turkish | | Kalender, Dr. Mehmet | | Website | | Scleroderma from A to Z | | Webmaster | | Ensz, Shelley | | Assistant Webmaster | | Willis, Janey | | Project Manager | | Varghese, Tony | | Open Positions: Must know Dream-weaver MX. Apply. | | Page Guides | | Irvin, Dr. Liz | | Willis, Janey | | Website Story Editors | | Devlin, Judith Thompson | | Website Story Artists | | Bridgman, Ione | | Ensz, Shelley | | Tarro, Judy | | Volz, Lisa | | Scleroderma Webmaster's Association (SWA) | | SWA Founder and President | | Ensz, Shelley | | Ways You Can Help | | Apply to Volunteer | | Become an ISN Member | | Buy an ISN Book! | | Donate (General) | | Donate in Memory | | Medical Information | | Submit Your Story |
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