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Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!
Frog jumping for joy by Shelley EnszPDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.
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ISN Volunteer Position Description: Email Support Specialist (English)

If you are interested in applying for any volunteer position with the nonprofit International Scleroderma Network, or if you have further questions about any position or possible openings, please email volunteers@sclero.org.
Title: ISN Email Support Specialist (English)
Respond to web site inquiry emails on a daily basis, providing our standard emails as well as trying to answer specific questions for concerned doctors, patients, and family members.
Status
This is an open position, until further notice. Posted 08-21-09.
Position Summary
This position is vital for helping to provide quality scleroderma support and information for those affected by scleroderma throughout the world. Our email support specialists reply to all our site inquiry emails in a prompt, thorough and courteous manner.
Position Type
Virtual Volunteer. Candidate would work entirely from their own home via computer. Therefore they must have their own computer with Internet access.
Time Commitment
Approximately 10 hours per week on a regular basis, hours and schedule to be determined by volunteer and coordinated with manager. Prompt, daily turnaround is vital for this position.
Position Reports To
ISN Support Manager (an open position) and to ISN Volunteer Services manager until that position is filled.
Language Requirements
Candidate must be able to read and write English, with excellent spelling and composition skills.
The International Scleroderma Network (ISN) is an international nonprofit 501(c)(3) agency founded in Minnesota. We provide healthcare information and support via our 5,000+ page SCLERO.ORG website in 23 languages. We publish the Voices of Scleroderma book series, and we support international research efforts for scleroderma.
Scleroderma is a rare arthritis/autoimmune disease that is popularly known as the "disease that turns people to stone" because it causes a hardening of the skin, blood vessels and/or internal organs.
1.

Responds to a wide variety of ISN site inquiry emails on a daily basis, answering all emails according to ISN policies regarding medical accuracy, mainstream medicine, links and attribution of sources, adequate disclaimers, in a thoughtful, supportive and sincere manner.

2. Initiates the creation or completion of an ISN Email Support Specialist Training Manual and proactively develops it.
3. Researches medical information on the ISN website to provide members with the most up-to-date support and medically approved information.
4. Makes recommendations regarding changes or improvements to the ISN Support Manager or other supervisor.
5. Assists in training other new ISN Email Support Specialists, as requested.
7. Sends all questionable, troublesome or unusual messages to their supervisor for resolution.
8. Informs their supervisor in advance when additional coverage is needed for their personal absence (for vacation, sickness, or any other reason.)
General Requirements
1. Disciplined and committed to timely and thoughtful responses to ISN web site visitors.
2. Problem-solve sensitive issues and handle them with the highest level of confidentiality.
3. Provide caring and knowledgeable support to all site visitors.
4. Must know a great deal about scleroderma and related autoimmune symptoms, and medical/pharmacological terms.
5. Must have own computer with email and Internet access.
 
Go to Position Description: Fundraising Event Organizers
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums
  2. Email: isn@sclero.org
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International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

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