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International Scleroderma Network (ISN) at sclero.org |
We provide stellar global research, support, education and awareness for scleroderma and related illnesses, such as
pulmonary hypertension,
with over 5,000 pages in 23 languages for medical professionals and consumers alike. Here's how we can help you: |
| Stellar Medical Information |
| Find it Fast! |
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| Find a Scleroderma Expert |
| Worldwide Scleroderma Experts. |
| What is Scleroderma? |
| What is Scleroderma? It is a rare form of arthritis. Various types of it can affect the skin, blood vessels, and/or internal organs. |
| Autoimmune/Arthritis Diseases |
| Similar Skin Diseases |
| Scleroderma Symptom Photos |
| ISN Photo Repository: |
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| Video Tour of SCLERO.ORG! |
| Video Tour of SCLERO.ORG explains how we can help you deal better with scleroderma and related illnesses. |
| Newsroom |
| Visit our Newsroom. |
| Newsletter. Join today! |
Get our free Sclero e-Newsletter! Our membership newsletter is free with timely and helpful medical and support information. Just enter your email address, that's all!. |
| Brochures |
| What is Scleroderma? brochure is available in: English, Español, and Japanese. |
| School Reports |
| School Report Resources. Raise awareness by doing a school or university report on scleroderma, by using these materials, which includes a History of Scleroderma. |
| Books |
| We have published a tremendous book series, based on this web site. If you like this site you'll love our books! |
| Voices of Scleroderma Volumes 1, 2 and 3, by the nonprofit International Scleroderma Network! |
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| (Espanol/Spanish) TV Video |
(Espanol/Spanish) Síntomas característicos de la esclerodermia. Francisco Castellanos, presidente de la Asociación de esclerodermia, habla en CST sobre algunos síntomas de esta patología, entre otros, el cambio de coloración en los dedos de las manos y los pies. También, el especialista Gustavo Nasswetter, explica por qué la esclerodermia se presenta más frecuentemente en las mujeres. CST, NTN24. (Also see: Francisco Castellanos and Asociación Colombiana de Esclerodermia) Posted 08/11/10. |
| Thanks to Actelion Pharmaceuticals |
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| Thanks to WWMR, a Division of IntrinsiQ |
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| Support Groups |
| U.S. Support Groups |
| Worldwide Support Groups |
| ISN Affiliate Support Groups: |
| — Colombia |
| — Finland |
| — Philippines |
| — Trinidad & Tobago |
| — United Kingdom |
| — Venezuela |
| Patient & Caregiver Stories |
| Personal Stories. Over 900 heartwarming and inspiring stories, linked to and from related medical symptom pages. |
| Phone Hotline |
Ask for our free info packet! |
1-800-564-7099
(Toll Free U.S.) |
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1-952-583-5735
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| Email Support |
| English Inquiry Form |
| Español Inquiry Form |
| Italiano Inquiry Form |
| Donate or Shop |
| Donate or shop for scleroderma awareness bracelets, books, brochures, can koozies! |
Donate Your Used Vehicle to our Scleroderma Nonprofit! Free towing. Fast service. We accept cars, trucks, motorcycles, snowmobiles and boats! Call Toll Free 1-877-537-5277. Donate for "ISN". |
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| The Global Leader |
| Translations (23 languages!) |
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| ISN Medical Advisory Board |
| Dr./Prof. |
Country |
| Catoggio, Luis |
Argentina |
| Distler, Oliver |
Switzerland |
| Foster, C. Stephen |
U.S. |
| Lin, Hsiao-Yi |
Taiwan |
| Mahmud, Tafazzul |
Pakistan |
| Matucci-Cerinic, Marco |
Italy |
| Molitor, Jerry A. |
U.S. |
| Mueller-Ladner, Ulf |
Germany |
| Mouthon, Luc |
France |
| Pope, Janet |
Canada |
| Sato, Shinichi |
Japan |
| Seibold, James R. |
U.S. (Chair) |
| Simms, Robert |
U.S. |
| Van den Hoogen, Frank |
Netherlands |
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| Scleroderma Research Funding |
| We support vital, top notch, peer-reviewed international research. Donate to scleroderma research. |
| About the ISN: How to Contact Us |
| Over 75 global virtual volunteers run the ISN! |
| ISN Representatives Profiles: Who we are. |
| ISN Representatives by Teams |
| How to Volunteer. |
| Contact us by email, postal mail, or phone. |
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| Go to ISN Representatives |
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